Jump to content

cyclinglady

Advanced Members
 View Profile  See their activity

  • Posts

    9,348

  • Joined

  • Last visited

  • Days Won

    396

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Stress may be a factor in developing celiac disease. It might the "original" cause of it, but researchers/experts do not know. It could be a virus, bacteria, divorce, birth, toxin, whatever....they have not figured it out. But what they do know is that for celiac disease alone (no other AI disorder) gluten triggers the autoimmune response. Gluten is not...
  2. cyclinglady
    Welcome Amanda! Gosh, I can not believe that your doctor did not catch you celiac disease diagnosis! (Sadly this happens all too often.) Actually, anemia is the most common symptom of celiac disease. I too, did not have GI issues when I was diagnosed and I had Marsh Stage IIIB villi damage. I hope your recovery from your recent glutening...
  3. cyclinglady
    Hi! Here's a great site to help you determine if you have diabetes or are on the way to developing it: Open Original Shared Link I have done a lot of research on the subject, so this site is not trying to sell you anything. There is a book and I have ordered it for my Aunt and Uncle who are not internet savvy. It contains all the same information...
  4. cyclinglady
    Encourage her to get scoped. She's got two positives. A very formal diagnosis may help others in the family!
  5. cyclinglady
    Then eat leftovers or skip breakfast (by lunch you will so hungry, you won't be picky).
  6. cyclinglady
    Eat some fish, meat, poultry and veggies. Be sure to add some fats if needed (avocado, coconut/olive oils, etc.) Why does it have to be a traditional European/American breakfast? Think outside the box!
  7. cyclinglady
    I know that my hubby will be the first to tell you that I have had WAY more support from family, friends and medical (no eye-rolling ). But...the bottom line he is healthy and well on a gluten free diet. Kind of critical when you are self-employed. You have to be on the top of your game! So, a gluten free diet may be the answer for you. I know...
  8. cyclinglady
    Karen and SquirmingItch are right. Losing weight can easily happen. By not eating out, eliminating dairy, and skipping processed junk food, you are going to naturally lose weight. I am sad to report that this could just be temporary! I am gaining as I continue to cheat on my low carb high fat eating plan. I have diabetes, along with celiac disease ...
  9. cyclinglady
    Before you take the celiac blood tests, make sure you have been consuming gluten daily for the past 8 to 12 weeks. If you have been gluten free, the tests will be invalid (doctors often forget about this......)
  10. cyclinglady
    It's easy to miss patchy areas of the small intestine. If spread out, the small intestine is larger than the size of a tennis court. But you have a few options. You could ask for a genetic test and the rest of the celiac panel. This might help the GI to give you an official diagnosis, along with trialing the gluten-free for six months. (There is a reason...
  11. cyclinglady
    You don't have to give up on baking! I easily converted all my traditional Christmas cookies to gluten-free. Even Kolacky's (yeast-based) turned out great! My Polish relatives would be proud! gluten-free cookies do require freezing to preserve freshness and parchment paper is necessary. My freezer is filled with brownies, chocolate chip cookies, snickerdoodles...
  12. cyclinglady
    I am diabetic to boot, and I exercise a lot. I fuel myself with very few carbs. I rely on fats and proteins. I carry nuts, maybe a fruit (if riding and can burn the sugar). I load up on meals before hand, like whole Greek yogurt with added cream, eggs with plenty of butter, fish, meat and some veggies. After three years of being gluten free...
  13. cyclinglady
    This might explain your rashes and IBS symptoms: Open Original Shared Link Open Original Shared Link Jebby is a forum member of celiac.com. She is a premie doctor who has celiac disease. I like reading her blog. Anyway, Mast Cell Activation Syndrome is real. Could be the source of your rashes. There is not a cure for MCAS, but antihistamines...
  14. cyclinglady
    So, the Biocard is a start. Now, you should get into your GP and ask for a full celiac panel if at all possible. Bring the biocard results in to show your doctor. Keep eating gluten until you get all testing done (more blood tests and an endoscopy to obtain biopsies of the small intestine. Good luck!
  15. cyclinglady
    WTF! I tested positive to ONLY the DGP IGA. The rest of my blood panel was negative. Even in follow-up testing (after a glutening) I still test negative to all but the DGP IGA. My GI does not even bother to order the TTG anymore for me. It takes only one positive on the panel. Not all the celiac tests are perfect or catch everyone. My biopsies revealed...
  16. cyclinglady
    Just want to add that I tested only positive on the DGP IgA. The other celiac tests blood tests were negative. My visual via endoscopy was normal, yet my biopsies revealed a Marsh Stage IIIB (moderate to severe damage). Follow-up testing revealed that I continue to test positive to only the DGP IgA (now, that's the only test my GI will order to save...
  17. cyclinglady
    Your anxiety should ease once you start to heal. Unfortunately, it takes time to heal, a lot of time. So just be patient, try to reduce your workload, let things slide around the house, and try to rest. Focus your energy on learning about your new diet.
  18. cyclinglady
    I am kind of confused. You were diagnosed as having celiac disease based on a celiac blood panel and biopsy (via endoscopy)? Or are you self-diagnosed and your doctor thinks you have gastritis? If you have not officially diagnosed with celiac disease, you should consider getting back on to a gluten diet and getting tested (celiac disease tests are...
  19. cyclinglady
    Here's my two cents.... That hip pain? Mine was related to osteoporosis and resolved on a gluten free diet. Getting a bone scan is excellent advice. Then work with your doctor to determine the best course of action to build your bones. There is a huge learning curve for the gluten-free diet. It's all about trial and error, unfortunately. So...
  20. cyclinglady
    It might be worth going to a MD and getting a celiac blood test and a referral to a dermatologist for a skin biopsy (make sure he/she is celiac savvy). Your antibodies could be elevated (or maybe not). You could be getting gluten exposure somehow. But, as Karen said, it could be completely unrelated to gluten. Wish I could be of more help.
  21. cyclinglady
    I can not specifically speak for Lucky Charms, but if it's made from oats (think it is), I would treat it the same as the Cheerios. Some celiacs (about 10%) react to oats regardless if they are certified or not. Certified gluten-free oats must not be grown in fields that once had wheat for four years. Each batch is tested. The problem with GM's oats...
  22. cyclinglady
    I stand with Trisha Thompson of the Gluten Free Watchdog (kind of like Consumer Reports for gluten). She does not recommend them, nor does the Canadian Celiac Organization. Scroll down to the comments that are from 2016. Folks are still reporting they are getting sick. It seems to be a bit of Russion Roulette. Personally, we do not eat them. My downtime...
  23. cyclinglady
    Okay, so the extreme fatigue and other symptoms are probably all related to celiac disease. Neurological symptoms are common in many of us. Those take longer to resolve in general. But things do get better! I promise!
  24. cyclinglady
    Jon, i think you need to find out from your doctor if your Epstein Barr virus is active.
  25. cyclinglady
    Hey SOL! Just wanted to let you know that I am a forum Moderator (we try to keep out Spammers) and I am not authorized to see your address. It is not public. If you sign out, you can check for yourself. But when you sign in, you can see everything about yourself. Am I making sense? Anyway, I prefer being anonymous. One reason I have not...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.