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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Remember, the celiac tests are not perfect; hence, the continued recommendation to diagnose with a biopsy. You did not go that route. Your blood tests were convincing. The gluten-free diet should also be viewed as another "test" to detemine your diagnosis. So, you have been talking about blood test numbers. How are your symptoms? Improving...
  2. cyclinglady
    The celiac panel (blood test) is comprised of several tests. You may have just had the TTG IgA and the IgA control test.
  3. cyclinglady
    Welcome! Symptoms vary with those with celiac disease. It is why a diagnosis is often so hard to get. You said that you tested negative on celiac testing. I would confirm whether or not you had a complete celiac panel or just a screening test: TTG. Here is the full panel: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG ...
  4. cyclinglady
    Welcome Ware96! Everyone has different ways of coping with an accidental glutening. For me, I try to cut back on activities and eat soft well-cooked (even fruit) foods that are easy to digest. Think stews and soups. Cut out all processed food as much as possible until you feel better. I become temporarily lactose intolerant after a glutening too...
  5. cyclinglady
    I think you can have celiac disease and an allergy to wheat. But since a functional doctor diagnosed your wheat allergy I would be leary. Here is why. Was the testing IgE or IgG? There is a difference. From what i read (i am not a doctor or scientist), IgE responses can cause anaphlyatic responses. The IgG is more like an intolerance. To me, allergies...
  6. cyclinglady
    Consumer Reports rates this diet very well. My SIL has been on and off it several times. Long term effectiveness? I don't know. I can tell you a low carb with fat diet took pounds off me and my blood sugar loves it. I try to "eat to my meter". Easy to do when the holidays are NOT upon us. ? My sweet tooth is back. So hard to give up those foods...
  7. cyclinglady
    Just make sure you daughter gets the complete panel. Often providers only allow first-line doctors (GP, PCP) to only order the TTG tests. Kids often test better on the DGP. That may mean insisting on a GI referral. This should not be an issue since you had positives. You can see why now that an endoscopy can help in more ways than one (firm diagnosis...
  8. cyclinglady
    Are you sure it is the avocado? What about the garlic or onions? Are the spices gluten free?
  9. cyclinglady
    Welcome to the forum! You have a positive on the celiac panel. Your doctor should have referred you to a Gastroentrologist for further testing. Celiac disease is not a gluten allergy. Celiac disease is a autoimmune disorder that is triggered by gluten. Other autoimmune disorders like thyroiditis, lupus, MS and RA have unknown triggers. Open...
  10. cyclinglady
    Thank you for sharing! Your posting will help many!
  11. cyclinglady
    Were these the result of a second biopsy done in 11/2016 or 12/2016?
  12. cyclinglady
    Shannon, My heart goes out to you! With two little ones and the holidays soon approaching, I can imagine the stress and anxiety you must be feeling (and made worse by being ill). You need help! Take a few minutes to make a plan of all your activities and chores. Then start crossing off a few if possible. This is the time to simplify. Buy cookies...
  13. cyclinglady
    dMason might be too young to recall Chinese Baby Formula that had Melamine in it and killed and sicken so many Chinese children. It has just been 10 years, but I do not buy food items (even from American parent companies) from China. I hope China's food supply has improved, but do i need to take additional risks? Open Original Shared Link
  14. cyclinglady
    Welcome to the forum. Why did you go gluten free for a year?
  15. cyclinglady
    Antibodies can take a long time to rise and to drop. A gluten challenge requires a person to consume gluten daily for 8 to 12 weeks in order to get an accurate celiac blood test. I got glutened last summer. My antibodies were measured four weeks after my initial glutening. They were off the charts. They continued to rise even after being on...
  16. cyclinglady
    It is possible, but the Gold standard is still biopsies obtained from an endoscopic procedure, along with testing for antibodies. CT scans are often ordered when adults have unexplained abdominal pain. In the old days they would use xrays like the procedure the OP had. Radiologists are hoping to catch more celiacs by looking at abnormal thickness, etc...
  17. cyclinglady
    I am so glad to hear that! The OP has been having a difficult time for the last few months. So, i was being overly cautious. So happy for your family!
  18. cyclinglady
    I retract my statement. The results were said to "appear" to be gluten free. That batch sample was okay...but so are Some Cherrios, right? The gluten-free watchdog normally tests food and not paper products.
  19. cyclinglady
    Hey, i had an opportunity to check the Gluten Free WatchDog (kind of a Consumer Reports for gluten). This product tested at below 5 ppm. Maybe a good batch or just fine. Time will tell!
  20. cyclinglady
    So, of course it is "naturally" gluten free, but they do not mention any sorting methods, etc. Not all wheat is collected at the time of harvest. It falls to the ground or remains on the stalk. Plus, this company gathers the stalks in China and the final prduct is not tested. Humm. I would need more research. Honestly, this is not a food product. ...
  21. cyclinglady
    I am leary of anything from Trader Joes and I have been a customer for over 30 years! Here is why. Their items are private labeled. Before the FDA laws went into effect, many members experienced issues (e.g. jebby who is a premie doctor). Things might have changed, but you still can not talk directly with the manufacturer (they private label everything...
  22. cyclinglady
    I would put my money on hormonal imbalance. I had KP after my doctor included testosterone in my hormonal cocktail to combat some pretty severe perimenopausal symptoms. It resolved once we dropped the testosterone. But nothing surprises me about celiac disease and what it can do to your body.
  23. cyclinglady
    Lentils and beans are naturally gluten free, but cross contamination can occur as they can be grown in fields that wheat has been in. This is easily remedied by sorting them and then washing them prior cooking them. What i do not get is that if you have been a Vegetarian or even Vegan, you should have been eating nutrtionally dense foods (e...
  24. cyclinglady
    Just make sure those supplements are gluten-free! My anemia resolved within a few months with added iron. I generally do not take any supplements, but prefer to get all my vitamins and minerals through whole foods. Lab tests show I am no longer deficient. So supplementation might be helpful in the beginning, but not always necessary once healing occurs...
  25. cyclinglady
    FYI. During my endoscopy, my GI could see no visible damage. My biopsies revealed a Marsh Stage IIIB (moderate to severe damage). So....it's not over until all testing is complete. You could go gluten free, but you might wait until you get final results (if you can stand it). What if the pathologist loses your samples? What if paperwork is misplaced...
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