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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Anemia was really my one main symptom. I had seven weeks between my blood test and biopsy and I ate gluten like there was no tomorrow. I kid you not, that I consumed a loaf of bread a day. Seven weeks and I was done with gluten. I developed gut issues. I did not see any improvement for six weeks in the gluten-free diet. Then it took about a year to...
  2. cyclinglady
    Sorry, that is 1/3. But symptoms are reduced or eliminated even if there is still intestinal damage. The sad news is that they used to think kids always healed but 20% do not per research released this past month. See my modified post for supporting links.
  3. cyclinglady
    I bake a lot. My kitchen is small, so I just use a hand mixer (no room for a fancy mixer). But mostly, I stir by hand. That is what my grandmothers did. No mixers for them! I need to keep my muscle mass. Why lift weights? Knead or mix dough! ?
  4. cyclinglady
    They do not known exactly what causes a person to have to much Zonulin (gluten is one suspect). Celiacs seem to have too much of it. But since some 1/3 of adults never heal from celiac disease (Open Original Shared Link), we may also never reduce the amounts of zonulin. That could explain continued intolerances despite being gluten free. They think...
  5. cyclinglady
    Old age! ?. Or you can blame zonulin (protein gatekeepers/permability) that may contribute to inolerances.
  6. cyclinglady
    Celiacs are often lactose intolerant when first diagnosed. This may resolve if you are not genetically pre-disposed to being lactose intolerant (bing chunk of world population). You can also have issues with milk proteins, like casein. Nothing to do but avoid it. There is no casein free milk product. ?
  7. cyclinglady
    @Cboray, temporarily, change your diet to nutrtionally-dense and easy-to-digest foods. For me, that means homemade soups and stews. Hard to digest a crunchy carrot, popcorn, or apple. Cook them. Consider digestive enzymes that are certified gluten-free.
  8. cyclinglady
    I have Hashi's (dx 1997). During my final year of menopause (when I was diagnosed with celiac disease at the same time), my thyroid was swinging like crazy from hypo to hyper. My weight was never affected in all the years of having Hashi's. Hyper, I was hot (not a hot flash, but wearing shorts in winter...okay winter in California?). Hypo, I was cold...
  9. cyclinglady
    What did you sub for real gluten? Gluten makes baked goods "stretch and bind". Bakers often add more gluten (a separate ingredient) in bread. Did your flour mixture contain any gums? I personally can not tolerate Xanthan Gum yet it does not bother my hubby. Too bad for me, I can not eat most commercially produced gluten-free bread products (still after...
  10. cyclinglady
    Withdrawal symptoms have been reported. This tends to dissipate in a week or so. Your gut is damaged. Best to stick to well-cooked meat, fish, veggies, bone stock, soups, and even fruit until you feel better. Consider gluten-free digestive enzymes. The anxiety can take a while to resolve. Try to be patient (hard I know).
  11. cyclinglady
    celiac disease or NCGI has been called a chameleon by Dr. Fasano because the symptoms change and vary from person to person. My glutening last summer occurred days before my vacation. I suspect two "gluten free" products, but I will never know. I do want to point out that my symptoms were so different from when I was diagnosed (anemia and no GI symptoms...
  12. cyclinglady
    Yep, that's right per my research. If you think about it, inflammation is a sign of most diseases. Open Original Shared Link
  13. cyclinglady
    Brian, Exactly what celiac tests were ordered for you? I ask because, I test positive (even in follow-up testing for dietary compliance) only to the DGP IgA. I have never had a positive on the TTG tests (IgA and IgG) which are the common celiac screening tests (few tests = lower cost). The TTG is good, but does not catch all (like me). On...
  14. cyclinglady
    Let's start out with the fact that I am not a doctor. But I can say that your celiac test results are comparable to mine. Glad that your doctor did a fairly comprehensive panel. Had you just had the screening TTG, your diagnosis would have been missed. That's why I push for the complete panel if it's at all possible. You are not IgA deficient, so...
  15. cyclinglady
    Did your GI order a celiac antibodies test? That might really determine if you are still in a flare-up. Last summer, I got glutened (have no clue as to the source). Went to my GI over four weeks later and my DGP IgA was off the charts. I continued to feel really bad (vomiting, passing out, hives, rashes, swelling, stomach pain, the works....) for a total...
  16. cyclinglady
    I am happy to seem a posting from you, but not happy that you might be having issues. I am not an expert in cholesterol and can only go by my personal experience. A very low cholesterol in my research is just as bad as having a high one in terms of risk for cardio. My numbers (for decades) were very low (off the top of my head the total was 116 and HDL...
  17. cyclinglady
    Sorry to hear that. Lesson learned: obtain and maintain copies of ALL of your medical records! I started doing this back in 1996. I even maintain a spreadsheet for my family as well. Impresses any new doctor. the family history chart helped my niece get her Crohn's diagnosis. Her GI said he had never seen one so detailed. Well, you should...
  18. cyclinglady
    Sorry to hear about your daughter! My heart goes out to all of you (I have a 15 year old daughter myself who, so far, does not have celiac disease but with two parents with gluten issues, who knows?) Review our Newbie 101 thread under "Coping" for valuable tips. My tips? Do not eat out for months until she has healed. Try to eat whole foods that...
  19. cyclinglady
    Get an endoscopy to confirm celiac disease if at all possible. celiac disease can impact so many of your organs, including the liver. Most liver issues will resolve on a gluten free diet. Anxiety is huge. So, is the tingly and weird sensations that you have been experiencing. Nerve damage is real (so is cognitive damage). This might be attributed...
  20. cyclinglady
    Odds are he has celiac disease. That TTG score is pretty high. But, as you said, an endoscopy would be help establish the amount of damage and he would NEVER question his diagnosis (and neither would any future doctors as long as you keep all records). I personally would push for it. Your other kids? Did they check them for an IgA deficiency? Chances...
  21. cyclinglady
    Ennis, In your case, a gluten challenge would be crazy! A severe glutening could trigger something even more serious. It is a good idea to check for other issues that may be happening. Something is wrong for sure.
  22. cyclinglady
    Congratulations!
  23. cyclinglady
    Well, the bottom line is that YOUR health comes first. Eat only the food you prepared or oversaw -- period. Are you flying or driving? If driving, pack a cooler with lots of prepaid meals, snacks. Plan on shopping at the local grocery store. Search through "Find Me Gluten Free" for the area (I just did this last night for our upcoming vacation...
  24. cyclinglady
    Try just making bread without a breadmaker. The breadmaker is really just for the kneading and gluten-free bread does not require kneading. If you have time to let it rise, just do it by hand. That will save you money!
  25. cyclinglady
    Your doctor could be right. It could just be celiac disease. Have you had follow-up testing? This should be done six months and then every year to see if your antibodies are coming down (or are down). This will tell you if you really have been avoiding gluten. No sense guessing. Get tested and at least rule it out! Here are some links that back what...
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