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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    When was the last time you had a celiac blood panel? And what were the results? I assume that you are being dietary compliant? That is not an insult! I know you are well informed and diligent about the GF diet. My recently anitbodies tests were positive. I knew I was glutened five weeks ago and then most likely glutened again (was on vacation). I...
  2. cyclinglady
    Yes, she should get tested for deficiencies. Read this link from the American College of Gastroenteology (scroll to bottom): Open Original Shared Link
  3. cyclinglady
    I am not a doctor, but my own four year old broke her elbow while walking on her Dad's back (her version of massage while he was laying on the newly carpeted floor). The ER diagnosed her with a break and splint her arm (it was painful for her and we knew she was not faking it). Her visit to the Ortho doc said that it was hard to tell at that age because...
  4. cyclinglady
    Welcome! First, if you suspect celiac disease, you must continue to eat gluten daily until all testing is complete. Here is a link to the University of Chicago's celiac website (leading researcher and reputable!): Open Original Shared Link Go through the entire website to learn about the 300 or so symptoms of celiac disease. Find out about biopsies...
  5. cyclinglady
    Welcome back! Sorry to hear about your niece. Here is an older thread about this very topic: https://www.celiac.com/forums/topic/91919-broken-bones/ I am sure that once she has been gluten-free for a while her bones will improve!
  6. cyclinglady
    I am glad the mystery is solved!
  7. cyclinglady
    The AGA tests are old, but I think some doctors are still using them. Better to get the Aniti- Deamidated Gliadin Peptide (DGP) and both IGA and IGG versions. I know that the the Anti-tissue transglutaminase (TTG) tests (both IGA and IGG versions) are superior in terms of catching celiacs, but I always test negative. Weird, but true. The DPG IGA was...
  8. cyclinglady
    Arsenic should not cause any immediate reactions. There is arsenic in many products like apple juice. It becomes a concern with constant exposure over a long period. But do the research. This is not my area of expertise.
  9. cyclinglady
    Plenty of fluids, rest and easy-to-digest food for a few days or a week encourages healing from an accidental healing works best for me (and most people on this forum based on my observation).
  10. cyclinglady
    Your TTG was positive and you do not have an IGA deficiency (the test was a control test that validates the TTG IGA test), and the Gliadins were both positive. Out of the complete celiac panel, I was only positive on the DGP IGA. The rest were all negative yet I had a Marsh Stage IIIB on my biopsy (moderate to severe villi damage. Visually, my endo looked...
  11. cyclinglady
    Good news!
  12. cyclinglady
    Great news!
  13. cyclinglady
    As long as the beans are sorted (for pieces of wheat and rocks) and washed, I do not see an issue. I have not been glutened! The same for the rice cooker. If it is clean and has not had gluten in it, then it should be fine. Wash that rice off too. It will cut down on arsenic (Google the article Consumer Reports and arsenic). I skip the brown rice now...
  14. cyclinglady
    Sorry to break this to you, but you have celiac disease! your GI is right! And your GP did not even give you the complete panel nor did he give you the right screening test (cheaper) -- the TTG IGA. The biopsy will confirm it for sure. It can also tell you just how damaged your intestines are. You must continue to eat gluten until all testing is complete...
  15. cyclinglady
    Welcome! The only way to know for sure is to get tested. But....you have to be consuming gluten daily for 8 to 12 weeks or the blood tests will be invalid. Here are the tests: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP...
  16. cyclinglady
    IcelandGirl has nailed it for the thyroid testing. My brother was diagnosed with "Carpal Tunnel Syndrome" but it turned out to be Hashi's like me. His manifests in his wrists. Thyroid relplacement resolved that problem. I do not know anything about testing for lupus (I should since my Grandmother had it and RA and most likely celiac disease too!). ...
  17. cyclinglady
    Have you had follow-up testing since your celiac disease diagnosis? Here is a link to the University of Chicago's celiac website regarding follow-up care: Open Original Shared Link You stated that tests show inflammation in the body. Are you assuming that inflammation would be in your intestinal tract? What about other parts of your body? Many...
  18. cyclinglady
    Are you certain that the medications and supplements were gluten free? Have you contacted the manufacturers? I am no doctor, but 7,000 UI seems awfully high to be taken daily. You might research to find out how long it takes for Vitamin D levels to drop. I know that it took a couple of months for my b-12 levels to drop (they are still outrageously high...
  19. cyclinglady
    If you choose to go gluten-free, it can take months to a few years to feel better. Took me about two years, but I was also dealing with Hashimotos thyroiditis, diabetes, and menopause. My anemia resolved in about six months. Then I just dealt with the masked symptoms of celiac disease which I had always blamed on age! Read the newbie 101 section under...
  20. cyclinglady
    Are you sure you got the complete panel? Just the screening TTG IGA and the IGA deficiency test are often given instead of the complete panel to save on costs. In my case only the one DGP IGA test was positive. My TTG was negative! If my GI celiac savvy doctor had not ordered the entire panel, I would have been out of luck! Anemia was my primary symptom...
  21. cyclinglady
    I agree that this forum is great. At a recent conference of celiac experts (FDA and leading celiac disease doctors discussed possible drugs to offset accidental glutening in a nut shell) the doctors stated that celiac disease can be very socially isolating. So true! I know of just two other celiacs besides my husband. It is nice to be able to discuss...
  22. cyclinglady
    You are almost finished! Keep eating gluten until all testing is complete. Here is a link to the University of Chicago's celiac website (very reputable) discussing the biopsy procedure. Your GI should take 4 to six samples: Open Original Shared Link Here is another good source: Open Original Shared Link I hope you feel better soon! Ask anymore...
  23. cyclinglady
    Oops! Sorry! Here is the list of celiac disease tests: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken (Source: NVSMOM -- ) I meant to say that my TTG rests...
  24. cyclinglady
    Welcome! Time to get retested by a celiac-savvy GI! Here are the tests (actually any medical doctor can order a complete celiac panel which is critical in your case since your old TTG results were negative and the old AGA tests were used). I tested positive to only the DGP IGA and my TTG tests were negative yet biopsies revealed moderate to severe damage...
  25. cyclinglady
    Being gluten free for three months makes the tests invalid! Experts in Celiac Disease recommend consuming gluten 8 to 12 weeks DAILY prior to any celiac blood testing. Here is a link to the University of Chicago's celiac website regarding testing: Open Original Shared Link Here is a link to the British GI site. Again, it states that patients must be...
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