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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I felt a bit better in about six weeks. Then much better after a year and it took until year two to really feel good. It takes time to heal from celiac disease! This is an autoimmine disorder. It takes time (and everyone is different) for antibodies to subside and to stop attacking your small instestine. That is why adhering to the diet, avoiding...
  2. cyclinglady
    Sorry to hear this. My mother had the shingles but hers was not as bad as our neighbors. I asked about a vaccination, but you have to be over sixty. My mom was in her late 40's when she got them. Not sure if it is worth it to pay out of pocket. I am still debating! Take care! Watch that Lyrica. My mom had horrible side effects and gained 30 pounds...
  3. cyclinglady
    Welcome! How long since your celiac diagnosis and how long have you been gluten free?
  4. cyclinglady
    Get re-tested while eating gluten free. You may be getting gluten after all! Why guess? Get the facts! Besides all the leading experts (e.g. University of Chicago celiacs website) recommend follow-up testing as part of normal care for a celiac. Open Original Shared Link NVSMOM is right about getting your thyroid tested too!
  5. cyclinglady
    103 is a normal reading, especially after eating just carbs! That is good news. Be sure to test when you are feeling bad. You might catch the low numbers. Remember to test at one and two hours and start counting after the first bite of food. Keep a record. Hey, are those oats certified gluten free?
  6. cyclinglady
    Call and ask if you can pick up a photocopy of the lab results. It is your right to have them (you and your insurance paid for them). Next time, take notes or bring someone with you who can take notes. Did you ask him if you have or he suspects celiac disease? Try calling back and ask the nurse to read the chart.
  7. cyclinglady
    When you see your doctor or call your GI and tell him you are pregnant to speed things up, have him re-run the celiac panel to see if somehow you have been getting gluten. At least you can rule out gluten as the culprit. Then if it is normal, you can look for other answers and they may very well be just related to all the hormonal changes.
  8. cyclinglady
    Not enough! You need a slice of bread or two a day for 8 to 12 weeks per the University of Chicago's celiac website (blood tests), but maybe less based on other researchers. Oh, my hubby went gluten-free based on the poor advice from my allergist and his GP. It worked and he has been gluten-free for 14 years. But he will tell you that I have had WAY...
  9. cyclinglady
    Blood test and endoscopy (if needed).
  10. cyclinglady
    A celiac blood screening is easy and can be done by any medical doctor. Do not worry about an endoscopy. You can cross that bridge later. Self diagnosing? Here are the problems: 1) celiac disease is genetic. If you had a diagnosis, getting your kids and other family members tested is easy. You can have celiac disease even if you do not have symptoms...
  11. cyclinglady
    I am sorry that you are sick! Too late to get celiac disease (unless you do the challenge) but you can get tested for Type 1 diabetes. A GAD antibodies test can help confirm a diagnosis. Google the exact tests required. If you want to keep track of your blood sugar for a while, buy a cheap meter and strips from Walmart and test yourself -- especially...
  12. cyclinglady
    Did he take any biopsies? Visually, my GI said I looked good, but biopsies revealed a Marsh Stage IIIB. You should reconsider getting the blood panel just to see if you have been compliant with the diet. You might have been getting trace amounts of gluten somewhere recently. You just never know! Happened to me and I have no clue still what got me...
  13. cyclinglady
    Welcome Joshua! Four weeks into the gluten-free diet is not very long. I do not know if you have been diagnosed with celiac disease, but it can takes months to YEARS to recover. The University of Chicago's celiac website contains lots of valuable information and our own Newbie 101 thread under the "Coping" section is helpful. It covers issues like...
  14. cyclinglady
    I was recently glutened and my doctor suspected SIBO, but my celiac blood test revealed elevated antibodies. What a relief! SIBO, based on my personal research and discussions from an acquaintance who has been struggling with it, is tough to resolve. The test you describe normally takes place in a doctor's office and can take hours. I would feel safer...
  15. cyclinglady
    Ah, I thought I was getting glutened when I was first diagnosed, but it turned out that I could not handle Xanthan Gum. My husband could handle it because he had been gluten-free for 12 years. I switched to guar gum and did not have issues with that. Could I handle xanthan gum now after being gluten-free for over two years? Like you, I am diabetic....
  16. cyclinglady
    I beg to differ Gemini. Not all celiacs heal even on a gluten free diet. Read this study done by Joseph Murrary MD, Mayo Cinic as published in the American Journal of Gastroenterology. http://www.celiac.nih.gov/TissueDamage.aspx The reality is that even the leading celiac researchers do not have all the answers. I am not trying to scare people, but...
  17. cyclinglady
    I belong to Kaiser and am a new member. They did not diagnosis me. When my Mom's results came back as negative (my whole family lives out of state) and I became a member, I asked my PCP what tests are ordered if someone comes in asking to be tested for celiac disease. She stated just the TTG IGA and the IGA deficiency test. Then I got glutened (bad)...
  18. cyclinglady
    My only positve on the full panel was the DGP IGA. Like your mom, my mom tested negative. I found out that her doctor only ran the typical screening of TTG IGA and the iga deficiency test. I have copies of my test results (right now, printed today) and am mailing them to my mom and asking her to get the DGP tests. I bet I am not the only person in my...
  19. cyclinglady
    Sorry, there are no guarantees in life! I know there is conflicting information about how long to challenge and how much gluten to consume. My blood test results were not common as my TTG tests were negative but only the DGP IGA was positive. So, I was "mildly positive" per my GI. I consumed a lot of gluten between my endoscopy and blood tests (7 weeks...
  20. cyclinglady
    Lucky you! My Hashi's was swinging wildly just prior to my diagnosis, but my docs just attributed it to the last year of perimenopause. I went for a routine colonoscopy after I went through menopause. I was very anemic. Again, my other doctors just thought it was due to my Thalassemia (gentic anemia). But my GI guy caught it. At the time, I had no intestinal...
  21. cyclinglady
    I think you need to some more research before you have the endoscopy. The standard rule is that you must be consuming gluten at least 2 to 4 weeks prior to an endoscopy (8 to 12 weeks befor the blood tests). Open Original Shared Link Open Original Shared Link Maybe your doctor thinks that because he found damage (biopsy obtained during a colonoscopy...
  22. cyclinglady
    Wow! I am not a doctor, but that sounds like celiac disease. What does your doctor say? Anyone else in your family with celiac disease or have symptoms that could be celiac disease?
  23. cyclinglady
    The diagnostic process is flawed and the leading researchers know it, but the technology just is not there. I wish it were easier and consistent! Waiting is hard when it involves lab tests. However, there is the option of going gluten free. Yep. It can be done. My husband did just that 14 years ago per the poor advice of his GP and my allergist...
  24. cyclinglady
    I think you need more time! Some of us take months or YEARS to heal. You want to be sure you are able to stick to the diet so that you are healthy enough to get pregnant, carry to full-term and take care of your children! I would recommend that you return to your GI and ask for a complete celiac panel to determine if you are being diet compliant. The...
  25. cyclinglady
    Visually, my GI thought I looked fine, but my biopsies showed a Marsh Stage IIIB (moderate to severe damage). Based on member comments, this seems to be the norm. After all the villi are pretty small! Remember, too that the small intestinal tract when stretched out is about the size of a tennis court. There are many damaged areas that could be missed...
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