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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Is that Gliadin AB one of the older and a little less reliable tests? The newer one is DPG is better. It is hard to tell by what you posted. I have Hashimoto's and my IGA deficiency test was sky high (over 700). My TTG tests were negative. Only my DPG IGA was "weakly positive". Yet, I had a Marsh Stage IIIB (moderate to severe) intestinal damage...
  2. cyclinglady
    Welcome! Here are the desired tests: tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test to ensure tests are not false negatives) Oh, I tested positive on only one of the DGP's yet I had severe intestinal damage! That's why it is important to take the complete panel! -AGA IGA and AGA IgG - older and...
  3. cyclinglady
    I took my old stainless set and used Kleen King, a product that scrubs stainless and copper (I have ancient Revereware). They cleaned up just fine. I also scrubbed my stainless mixing bowls too. I never cook gluten in those pots now. I have a special gluten pot for my kid who get noddles every once in a while. I wash that pot with a separate sponge...
  4. cyclinglady
    Welcome, Kiwi! Here is a link from the University of Chicago: Open Original Shared Link Some celiac experts require 1 to 2 slices of bread or the equivalent but most agree to a 12 week challenge for celiac blood test.
  5. cyclinglady
    My endoscopy was 7 weeks after my blood test results were given (my choice....best for my schedule). I kept eating gluten, but my main symptom was anemia so it wasn't hard to do. I didn't have horrible GI symptoms. I ate all my old gluten-containing favorites in excess. That was not good. By the time I had my endoscopy, I did develop some intestinal...
  6. cyclinglady
    Is there a reason you went gluten free? Someone from the UK is going to have to address the Cadbury egg. Hershey's makes ours in the states and I am not sure the formula is the same. Eat fat to increase calories. Coconut oil. Olive oil, chicken fat, etc provided you can digest them.
  7. cyclinglady
    There is a thread topic about unsupportive family members and friends going around this week. Here's a funny video I found on YouTube about Celiac Disease and how some folks just don't get it! "Stuff People Say to Celiacs".
  8. cyclinglady
    Ugh! Please keep eating gluten until after the procedure that is what my educated GI doctor instructed me to do. Here's a link from the University of Chicago: Open Original Shared Link Open Original Shared Link So, let's say, you go gluten free now. A few weeks later, your endoscopy is postponed for another month. By then, it can be too...
  9. cyclinglady
    No, I am still pretty paranoid about getting glutened. I guess it's because I like feeling well. A glutening can set me back for over a week. Having a gluten free home has been essential for me. At least there is one place I can let down my guard. It helps that my husband is gluten free too. He went gluten free 14 years ago per the poor advice of my...
  10. cyclinglady
    No problem. I never had migraines or headaches when I was younger. My mom did. But, during perimenopause, I suffered with two migraines each lasting for a few days. It was as if I were in a bubble. People were talking to me at work and I could not hear them. Weird! Had to go home. Within minutes that weird sensation was gone, but I could not tolerate...
  11. cyclinglady
    Welcome! In order to get the best blood tests results (meaning a positive), you need to have been consuming gluten daily (the equivalent of 1 to 2 slices a day of bread) for a period of 8 to 12 weeks. Were you consuming adequate amounts of gluten? Your results. You got a positive. It was weak, but I only had one weak positive and my endoscopy...
  12. cyclinglady
    I would not count on it! First colonoscopy, I ended up in the ER for 8 hours after passing out in the hospital hallway after the procedure. The second was better, but I was weak from all the complications of celiac disease (anemia, etc.). I am sure everyone has a different story.
  13. cyclinglady
    We understand about the amount of time it can take to get an endoscopy in Canada. Karen was trying to make sure that all proper testing was done. It is hard after being gluten free to do testing again. For some, it is difficult to maintain the gluten free diet without that official diagnosis. I was diagnosed two years ago, but my husband was not....
  14. cyclinglady
    I use Splenda sparingly. I never used artificial sweeteners in the past because they gave me (and my Dad) headaches. That was aspartame, I think. Overall, real sweetners are best, but I have diabetes now, and that will kill me faster than artificial sweeteners.
  15. cyclinglady
    Anemia was my only symtom at the time of my diagnosis. But I had seven weeks between my blood panel and my endoscopy and I ate gluten like crazy! It was a fond farewell, except I started getting all the traditional stomach issues like bloating, stomach pinching, etc. It took about six months for the anemia to resolve and finally after two years, I feel...
  16. cyclinglady
    Do you have any children? Celiac disease is genetic. So, your diagnosis would help others to get tested even if they are not displaying any intestinal issues (my symptom was anemia). But if you choose to remain gluten free, you have to be very careful! Check out our Newbie 101 thread under "Coping" for tips that help uncover hidden gluten in processed...
  17. cyclinglady
    NVSMOM Gave you excellent advice. I just wanted to chime to let you know my TTG test was normal and I was not IGA deficient. My doc caught my positive blood test on the DGP tests -- and only one was barely positive yet my endoscopy (biopsy) revealed moderate to severe damage.
  18. cyclinglady
    You can do it! Hugs!
  19. cyclinglady
    It took me six months to resolve my anemia after going gluten free (not to mention healing my vertabrae fractures related to celiac disease) and total of two years before feeling completely normal. Now, just dealing with my thyroid and other hormone issues like so many women! Hang in there! There is a steep learning curve in avoiding gluten, so expect...
  20. cyclinglady
    You can use the search box of this forum and you should find many results concerning this topic. You might have some allergies to ingredients other than gluten that are causing skin reactions. Those with celiac disease or NCGI just need to avoid ingesting ingesting gluten. So, we are careful about lipsticks and anything put on our faces that we could...
  21. cyclinglady
    Yep, me! Since going gluten-free two years ago, my thyroid is size is now normal and I have no nodules. I was diagnosed with Hashi's almost 20 years ago based on an enlarged thyroid (felt during an exam by two doctors), two nodules, and confirmed with an antibodies test that was over 4,000! Antibodies went up and down over the years. I had wild swings...
  22. cyclinglady
    Here is another link about celiac disease and a celiac blood panel: Open Original Shared Link It sounds like he skipped the blood panel completely. I would not go gluten free until you get this blood panel. Many things can cause intestinal villi damage besides celiac disease. Be sure to get the complete panel because personally, I tested positive...
  23. cyclinglady
    Congratulations!
  24. cyclinglady
    I had a Marsh Stage IIIB intestinal damage based on biopsy. Visually my GI doctor thought I looked okay. He told me to wait for the biopies to come back. He took about six or so biopsy samples as the small intestines is about the size of a tennis court and patches of damged villi are easy to miss. Here is a link from the University of Chicago's Celiac...
  25. cyclinglady
    We are not doctors. I know you are trying hard to get a diagnosis. If you are not getting medical support, you can simply go gluten free for six months or so and gauge how you feel. It certainly will not harm you to eliminate all forms of wheat, barley and rye. If you decide to do this, you must be sure you are 100% gluten free. I wish you well...
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