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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Lab ranges vary. Can you provide the ranges for these tests?
  2. cyclinglady
    I think no one answered because you asked how fast he should recover after going gluten free. No one has an answer to this as everyone is different. I agree with the others in getting a firm diagnosis. Congrats on breastfeeding still!
  3. cyclinglady
    I found this article in today's news. Looks like many brands may contain traces of gluten!
  4. cyclinglady
    Have you considered getting tested for celiac disease? Celiac disease is not an allergy to wheat. It is an autoimmune response to gluten. There is special celiac blood test. In my experience I had no intestinal issues, just anemia at the time of my diagnosis and I was consuming lots of wheat daily!
  5. cyclinglady
    I gave up my old rolling pin. It was not worth the risk of getting sick. . rolling pin....feeling good.....rolling pin....FEELING GOOD! Kind of an easy decision to make for me. Wonder what others think? I was diagnosed the year of our 25th wedding anniversary, so I treated myself to lots of new kitchen gadgets and piece of mind!
  6. cyclinglady
    Love it!
  7. cyclinglady
    I think gluten eaters will notice less (or not at all) if the cake is chocolate, spice, carrot, lemon, etc. Plain vanilla does not hide the gluten-free flours in my opinion. I am so glad your daughter was happy!
  8. cyclinglady
    I am so glad for you!
  9. cyclinglady
    I had no visible damage (I think this is common), but I had a Marsh Stage IIIB biopsy result which means moderate to severe damage. The small intestine is vast (size of a tennis court), so damaged patches can be missed. With a high blood test result and a negative biopsy, the next step would be to go Gluten free for six months or longer. Hang in...
  10. cyclinglady
    Hard to say, since every lab is different. What did your doctor say? Waiting is so hard! Hang in there, Mom!
  11. cyclinglady
    I am not an allergy expert, but I spent years with an allergist. I never was given an epi pen. The only time I had an anaphylactic episode was with medications. The fix is easy -- never ingest them again (I.e. Aspirin, ibuprofen). I am allergic to pollens, mold, cold temperatures, grasses, latex, garlic, nuts, cat dander, etc. I get intestinal pain...
  12. cyclinglady
    How can you "think" you do not have celiac disease? I had no intestinal symtoms when I was diagnosed and I was eating a lot of gluten from rye, barley and wheat daily. There is no cure for celiac disease as it is an autoimmune disorder, like Karen said. Unlike lupus or MS, gluten triggers an autoimmune "flare-up" , so by avoiding gluten, we can avoid flare...
  13. cyclinglady
    So, do you think her TTG was low because she has been gluten light since she was 12 months old? If so, it was lucky she had any elevated antibodies. All celiac blood tests require patients to be on a gluten diet for up to eight to 12 weeks prior to testing. Not that it means anything since my TTg was negative. I was barely positive on my DPG yet I had...
  14. cyclinglady
    Thanks for the posting and welcome to the forum. Just wanted you to know that chances are, you will not get a response. This is a really old posting!
  15. cyclinglady
    Everything Bart said! I personally needed the biopsy. I wanted a benchmark for damage plus, I needed the firm diagnosis in order for me to be dietary compliant. I could not believe that both my husband and I needed to be gluten free. He has been gluten-free for 14 years now, so I knew exactly what it meant! My daughter's doctor did not hesitate...
  16. cyclinglady
    Were those noodles causing your nausea for the last six months or so?
  17. cyclinglady
    Welcome to the forum! First, let me grumble......why did they not test her for celiac disease? Going gluten free to test is difficult. It's can take up to a year or more to have symptoms resolve. Going back on gluten can bring back gluten-related symptoms with a vengance.! The test is a simple blood test. Oh, well. Neuropathies are common for...
  18. cyclinglady
    You just need one positive and you were lucky they caught it. The next step is to get an endoscopy and intestinal biopsies to confirm. Here is a link to the University of Chicago's celiac website that explains celiac disease and testing. Keep eating gluten until all testing is complete! Open Original Shared Link Welcome to the forum!
  19. cyclinglady
    Why don't you consider getting tested for celiac disease (blood test)? That would put you on the path to eliminating celiac disease. If you have celiac disease or Non-Celiac Gluten Intolerance (there is no damage to intestinal villi with NCGI), then you can NEVER consume gluten from wheat, barley or rye. No amount of probiotics will help if you have either...
  20. cyclinglady
    Yep, I am allergic to specifically to Bermuda grass and break out in hives. So, it is possible. Allergy tests do not cover every single possible allergen -- just the most common.
  21. cyclinglady
    Like I said, the next step is going to a Gastroentrologist for a consult and possible biopsy. I, myself had only one positive out of the complete celiac panel, yet I had moderate to severe damage per my intestinal biopsies. Again, there is no such thing as a gluten allergy. There is a wheat allergy. Celiac disease is an autoimmune response to gluten from...
  22. cyclinglady
    So happy for you! Thanks for the update. I am sure it will encourage many!
  23. cyclinglady
    I love it! Like Karen, I end up hosting ALL tha family parties. It is more work, but we feel safe and can enjoy ourselves more. The gluten eaters are always happy too.
  24. cyclinglady
    Here's to your family feeling better! Cheers!
  25. cyclinglady
    Try to get the full screen. Remember, I tested positive on the DPG IGA test only and negative on all the rest yet my biopsies revealed severe intestinal damage. Plus, you need to be eating gluten for 8 to 12 weeks. I recall that you had been gluten-free for a while and then only ate gluten for two weeks prior to the blood test. That can be an issue too...
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