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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You work for Starbucks, right? I have not ordered anything other than brewed coffee (and brought in my own soy milk) since my dx. Are cafe mochas with soy, gluten free? What about cross contamination? I have done some research, but I get conflicting answers. I sure like meeting up with friends for coffee.
  2. cyclinglady
    Congrats! Now start searching for a marked down Lodge cast iron! I adore cooking with cast iron!
  3. cyclinglady
    FYI, there is a celiac center at UC San Diego. It might be worth the drive and an out-of-pocket consult if you do not find answers in LA.
  4. cyclinglady
    Assuming the soy sauce is gluten-free, you might have issues with things like garlic (I am allergic to it) etc. or have issues with fermented products.
  5. cyclinglady
    Other than my anemia (I have two: thalassemia and iron deficiency) and thyroiditis (dx in '97), I did not have any intestinal symptoms except when I ate allergy provoking foods (casein,whey, nuts....). What I am trying to say is that celiac disease produces up to 300 symptoms and that many struggle for years (like yourself) to get answers. Read the university...
  6. cyclinglady
    You will do just fine. Just drink all the fluids as recommend, to prevent dehydration.
  7. cyclinglady
    If you can keep your body parts, that is the best solution. Had I known about celiac disease, I may have been able to save my gallbladder. It was infected, so it had to come out.
  8. cyclinglady
    Do you still have your gallbladder? I had mine removed when the HIDA scan showed 0% functionality eight years ago. A non- functioning gallbladder has always been known as the family curse and now we know that celiac disease is too! Hope you feel better soon!
  9. cyclinglady
    Keep eating gluten until all testing is complete. Go to the University of Chicago's celiac website and print off the list showing the complete celiac blood panel and show it to your doctor. This site contains valuable information, so I encourage you to browse through it. I hope you feel better soon!
  10. cyclinglady
    Well said, GFinDC!
  11. cyclinglady

    ARCHIVED Soy

    cyclinglady replied to kenlove's topic in Related Issues & Disorders

    Soy is a common allergen. You can develop allergies and intolerances at any time. Perhaps by avoiding it for a while, you can eat it occasionally. Since I am allergic to milk and nuts, I dread the day that soy starts to bother me. I use a lot of it!
  12. cyclinglady
    In case she doesn't respond, GFinDc recommends ( me too) to avoid alcohol at the beginning until there is some healing. It can bother some just like consuming dairy products. Old timers (those who have been gluten-free for a few years) don't have issues digesting alcohol. Of course, it must be gluten-free!
  13. cyclinglady
    That hit our household! I forgot. It was just my hubby. The rest of us got the standard flu two weeks ago. Hubby healed fast. It was a 24 bug. Either that, or I poisoned him! Ha! It is going around at school.
  14. cyclinglady
    Bart is right! You could pass out! Anemia that bad can cause heart damage. Your lab report will either say hemoglobin or ferritin. You do need a colonoscopy to rule out blood loss from a tumor, etc. along with an endoscopy to check for bleeding sources in your stomach and small intestines. The urgent care doc is right about that. Anemia can result...
  15. cyclinglady
    For now, you might just want to stick to the gluten free diet. I am pretty sure you have been gluten free for too long to get a good test result. As you said, a gluten challenge could be damaging to your baby. Consider a challenge when you stop breastfeeding if you want a formal diagnosis. You may want to get your baby checked for celiac disease, but...
  16. cyclinglady
    It looks like you have two choices: 1) get retested for celiac disease after going on a gluten challenge for two months (so hard to do!) or 2) go gluten free and try to identify other food intolerances with a food journal. It appears that you know that gluten gives you issues, so you might be ready to give it up for life. It took my husband a year to...
  17. cyclinglady
    Good tips! Gentle stretching. My hubby has back issues and he follows a stretching DVD and it helps him a lot. Since I teach water aerobics (or swimming), I'd highly recommend it for healing and injury prevention (going slow and building up)!
  18. cyclinglady
    Wow! Sorry to hear that you have neuropathies which can be related to Celiac Disease. I had some issues in the beginning, but the gluten free diet seems to be helping or at least preventing further damage. Are you going back on the gluten-free diet?
  19. cyclinglady
    Ugh, glutening! It sets me back for a week or so. Everyone is different. My reactions have been much more severe since my diagnosis (anemia was my main symptom). I hope you feel better soon. I just sent my hubby off to work and made sure he had a Lara bar and a fruit leather on hand. You never know when you are going to get hungry. Keep shelf stable...
  20. cyclinglady
    Wow, I hope that "6" is your Ferritin level and not hemoglobin! I was anemic too and the lowest hemoglobin was a seven and at that level I was out of breath just talking! I did not opt for any transfusions, but instead started taking iron with vitamin C at the direction of my doctor. I also cooked out of cast iron, and ate lots of iron rich foods. ...
  21. cyclinglady
    I am formally diagnosed, but my husband is not. He went gluten-free at the advice of two MDs 13 years ago. He refuses to get tested for celiac disease. Why bother at this point? He knows that gluten makes him sick (cranky, sinus congestion or infections, body aches). Are you sure that gluten is completely out of your diet (including hand lotions,...
  22. cyclinglady
    I just returned from a cookie meeting and I guess I will have to wait until the end of the month to try the gluten-free cookies when they make the initial deliveries for our service unit. I am really hoping that they are decent. If not, maybe they will source a better supplier for next year. I did hear that they are better than those cinnamon "diet cookies...
  23. cyclinglady
    I have not tried the gluten-free Girl Scout cookies yet. I expect they'll be no better than other store-bought gluten-free versions, but remember, it takes time to forget what gluten/wheat tastes like. I expect Chevy Chevrolet ( my brother has a 1968 model), you have not been gluten free long enough! In any case, our troop is selling them. I hope they...
  24. cyclinglady
    No, the troop gets about 70 cents per box. The rest of the profit goes to the council who must pay for volunteer training (from how to safely camp to child abuse identification....the classes are endless), fingerprinting and background checks (that exceeds fifty bucks per adult), liability insurance for every single Girl Scout event including meetings, etc...
  25. cyclinglady
    Ugh, I forgot about your corn intolerance. I would check out the cost to have it compounded. (As I sit here eating my corn Chex.... But I am not off the hook -- milk, nuts, garlic, eggs........)
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