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Not crazy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Not crazy

  1. Not crazy
    My mom made cut out sugar cookies at Christmas time a couple years ago. I went over after she made them and sat at the table talking with her while she frosted them. Had a really bad reaction. I may as well of just ate one. At least then my reaction may have been worth it (she makes the best cookies). Now I don't go over for a couple days after she makes...
  2. Not crazy
    Thank you. Completly missed the seal on the box (jumbo box from Sams club). Don't know how I did, looked all over the thing several times. I was thinking, seal? There was no seal? Looked at the box again and it was right there in front of my face.
  3. Not crazy
    I've been searching but not finding anything. Their customer service isn't open yet and need to make sure their mixes are made in a dedicated facility.
  4. Not crazy
    The baskets always had paper liners. But when they took away the baskets, they served my gluten free burger on a plastic plate that is used for gluten foods that had scratches in it. I don't like the idea of eating off a plastic plate that had gluten on it. I always figured that even if the baskets got gluten on them there was a paper liner keeping my food...
  5. Not crazy
    I was asked if I had a smart phone. When I said yes I has given business card sized card with a bar code to scan and it took me straight to the web site for the location I was at. What I didn't like was they stopped using the yellow baskets and served it on the same plastic plates they use for gluten food. I talked to the manager and told him didn't like...
  6. Not crazy
    I was told I had fibromyalgia. My "fibromyalgia" went away when I cut out all gluten. If I get a really bad glutening then my "fibromyalgia" comes back bad for about a week then slowly goes away again. See if your mom is willing to ask her doctor to run a full celiac panel. If she can't get a celiac test, it might be worth it for her to cut out gluten...
  7. Not crazy
    I also reacted after eating Aldis stuff. Have no idea which product it was. Kind of went on a gluten free shopping spree. I had the reaction I get from small amounts over time. I have a gluten free house and usually only add one new item at a time so if i do have a reaction I know what caused it. I have had the pizza pockets, wraps, and yellow cake...
  8. Not crazy
    Their brownies are the best. I've made them and gluten eaters had no idea they were gluten free. Had a cheese cake with the brownie used as the crust. Their yellow cake mix makes a to die for (adult only) armetto cake. I've also used it to make kind of an apple spice cake and topped it cream cheese frosting. Don't care to much for plain yellow cake ...
  9. Not crazy
    This is definitely chiari. I get dizzy, blurred vision, motion sickness, ringing in my ears, numb/t had pressure in the back of my head, numb/fingerling arms and hands, I can sometimes hear and feel my heart beat in my head, my neck popping echoes in my head. I get a sharp, stabbing, electric shock type pain starting at the base of my skull and goes up...
  10. Not crazy
    I replaced anything that was wood or plastic(storage bowls, cutting boards, spatulas, rolling pin, measuring cups/spoons, etc) along with the toaster, mixer, can opener, scratched pots and pans. Any thing metal and not scratched or glass was scrubbed really well with hot soapy water. Every cabinet and drawer was emptied and scrubbed with soapy water inside...
  11. Not crazy
    I was diagnosed with Chiari Malformation in Nov/Dec 2013. The symptoms went away for the most part. I avoided anything that caused symptoms to increase for weeks (no lifting, bending up and down, increased heart rate, etc) and then slowing was able to do more without issues. I got glutened a few weeks ago and as I was feeling better from being glutened...
  12. Not crazy
    Fibromyalgia is a very good reason to try going gluten free. But you need to be tested for celiac first. Make sure they run all the tests. If you improve on a gluten free diet it will be really hard to go back on it to be tested. I was told I had fibromyalgia and all those symptoms pretty much went away when I went gluten free. I have minor issues here...
  13. Not crazy
    Crohns does not just affect the large intestine. It can affect anything from the mouth to the anus and anywhere in between.
  14. Not crazy
    My husband just drinks out of the bottles so I don't worry (beer the only gluten allowed in my house). What about hand washing the glasses in an empty sink using a dedicated sponge or disposible rag. Then clean the sink after. That way no gluten can get on any other dishes or on a rag and spead to counters etc. I As far as kissing, no kissing until...
  15. Not crazy
    Going to spend a night or two in the Phoenix/ Mesa area, maybe a night in sedona, kids want a couple nights in Vegas( want to zip line down Fremont st again). Have no idea where we will be stoping at along the way or even which states were driving through yet to get there. Looking at a 2,500 to 3,000 mile trip total.
  16. Not crazy
    Besides all the usual "I could never eat like that" "So what is there left for you to eat" "I would die if I had to eat gluten free" This is my favorite. I can't even begin to try to type out the whole conversation but... Apparently I was suppose to keep exposing myself to a little amount of gluten by eating out and not being so strict with it at...
  17. Not crazy
    Going to be gone 7-9 days. Driving, have 2 teenagers and a husband. Kind of just winging most of our vacation, no set nights in set towns so have no idea where we'll say or what will be around. Will be site seeing, 1 day of hiking a mountain, 1 day floating down a river, other days walking trails, maybe a couple days in Vegas. The rest depends on what we...
  18. Not crazy
    After not eating out for well over a year after a bad glutening from a local place who's owner was gluten free and everyone was trained, I did try red robin. A friend ate there who also has to gluten free and said they would be safe. It was good and I didn't get sick. I talked to the server, told her I had celiac and would get very sick, that it wasn't a...
  19. Not crazy
    Try to get a copy of the tests the dr ran for celiac. There are a few and most doctors don't run them all they'll do one or 2 and call it good. You could of been negative on the one he ran but might of shown positive on the one he didn't. You also said there was pizza in the fridge so that means you have a shared kitchen. Most people become more sensitive...
  20. Not crazy
    I take my own food when I eat out. The first time i felt really awkward. It was with a large group of people I see maybe once or twice a year. It got easier each time after and I don't feel awkward at all. I bought an insulated bag/cooler that looks like a tote bag. No one knows I'm carrying a cooler through the resturant. I also bought resuable packs...
  21. Not crazy
    If it's not dh causing it and you have dry skin try coconut oil. You find it in the grocery store by the oils and crisco. If its solid, warm it just a little then massage it into you scalp and hair (great for dry hair) put on a shower cap (a towel would work but soaks up a lot of the oil). I leave it on half hour or more. Then shampoo it out, you might...
  22. Not crazy
    I had ITP about 13 yrs ago, about a year after my first was born. Counts were so low the lab called my dr who called me late at night and told me to go to the hospital because he was afraid of internal bleeding. It was being treated with prednisone and went away after I got pregnant with my second. A few months after I had my second I developed ulcerative...
  23. Not crazy
    Sorry. That should of said I have been eatting gluten FREE for over a year. The GI did the genetic tests to rule out celiac since blood tests wouldn't be helpful. One dr ran half the blood tests even after I explained I had been gluten free for a year. So wasn't surprised they were negative. But the negative results just made him think its all in my head...
  24. Not crazy
    I have been eating gluten for over a year so my GI did genetic testing. When I tried to ask about the results he looked at me like I was crazy and could only repeat what was wrote on the paper "celiac gene pairs are present". Then after I refused to do a 2 month gluten challenge to be tested he told me there wasn't anything else he could do and sent me...
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