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kbtoyssni

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Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    I also sent them an email: "I would like to comment on your article "Celiac disease: Should I use gluten-free skin-care products?" While the article is technically correct in stating that personal care products are only an issue for celiacs if they are ingested, I would argue that it is a lot harder to avoid ingesting all personal care products than this...
  2. kbtoyssni
    The article is technically correct, but I would argue that it is a lot harder to avoid ingesting all personal care products than this article implies. I know I get shampoo in my mouth on occasion - it may only be once or twice a year, but that's one or two glutenings a year that I'd like to avoid.
  3. kbtoyssni
    A couple things: -Celiac is not an allergy. It is an autoimmune disease. -By the time you can get diagnosed with celiac through blood test or scope, you already have a lot of damage to your intestines. -If you test negative for celiac it means you either have celiac but don't have enough damage, you "just" have a gluten intolerance, or you don't have...
  4. kbtoyssni
    If you get a negative result, you can always try the diet. You didn't mention what your girls' symptoms are that led you to suspect celiac, but if they show any symptoms trying the diet can't hurt. False negatives are common, and in my opinion, not a bad thing. It means they don't have enough damage from the disease yet to get a positive result. And regardless...
  5. kbtoyssni
    Can I get a percentage of the profits? I do have a very positive attitude. Life's too short to spend it being negative and bitter about things I have no control over.
  6. kbtoyssni
    It's pricey at first because most people are going to buy a bunch of substitutes or specialty gluten-free foods. It's so much easier to buy something that says gluten-free on the package than to try to call every company in the first week. And it's hard to figure out what to eat at first - you want to continue to eat your morning cereal and lunchtime sandwich...
  7. kbtoyssni
    If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure...
  8. kbtoyssni
    You may want to remind yourself that gluten is addicting to people with celiac so you will probably have some withdrawal and cravings for it. And what do you mean by "you got the taste for good food"? I love the food that I eat. Maybe you could get a new cookbook or check out a recipe site and start cooking new, yummy foods.
  9. kbtoyssni
    I always carry food with me, too, especially to sporting events. I don't even try to eat vendor-type food. And, unfortunately, if you want to keep yourself safe, you have to publicize that you have celiac. You need to be up front with your waitstaff and give them all the information they need to get you a safe meal. You have to ask questions about ingredients...
  10. kbtoyssni
    I wear my sunglasses. My mum has one of these onion choppers: Open Original Shared Link It's like a mini food processor and works great with no tears.
  11. kbtoyssni
    I would be nervous going without a bone scan if you think you might have the beginning stages of osteoporosis. If you do have low bone density your doctor might recommend you take something like boniva or fozimax to increase bone density instead of just calcium. You could ask for just the ankle bone scan - you should be able to take the kids to that...
  12. kbtoyssni
    Eventually you can start cooking more naturally gluten-free meals for the while family so you don't have to worry about contamination.
  13. kbtoyssni
    I would test the whole family. You've got nothing to lose. I'd also re-test your son. Celiac is something that gets triggered by an event so even if he didn't have it three years ago, it's possible he's developed it now. As for how to test - it depends. Enterolab is a perfectly ok diagnosis in my mind. It also keeps the official diagnosis off your...
  14. kbtoyssni
    This is what I did with all my old recipes, too, and they taste just as good as the wheat-flour versions.
  15. kbtoyssni
    I make the second recipe posted all the time (the ones without chocolate chips), but I'm going to try the chocolate chip one when I get home tonight I make mine with sunflower seed butter (peanuts make me sick), and they're just as good as the peanut butter ones. They also travel well. I usually make a batch when I travel to places like England when I...
  16. kbtoyssni
    If your mother-in-law insists on putting stuffing in the turkey, you could make a small cornish game hen for yourself. It's like having your own mini-turkey! Or cook some turkey at home and bring it to heat up on the day. I agree with everyone else - I would absolutely not under any circumstances eat turkey that had been stuffed with gluten. You want...
  17. kbtoyssni
    My reactions to gluten aren't too bad now, either. I get some mild stomach pain, some fatigue and joint pain, but nothing that really interrupts my life. I have a hard time knowing if I got glutened or if I'm just having an upset stomach day.
  18. kbtoyssni
    Take a deep breath. There's nothing you can do about the baby right now. You're doing your best to stay gluten-free - it's not like you got glutened on purpose. If you were glutened at your MIL's, your body needs time to heal and even safe food can irritate you.
  19. kbtoyssni

    ARCHIVED Dry Skin

    kbtoyssni replied to wowzer's topic in Coping with Celiac Disease

    The air doesn't hold as much moisture when it gets colder so it makes sense that your skin feels drier. Mine is feeling drier, too.
  20. kbtoyssni
    Yikes, you work at pizza hut??? I would get a new job ASAP. I don't think there's any way you can be gluten-free working in a place that uses wheat flour, unfortunately.
  21. kbtoyssni
    I like this cereal, and it does that snap-crackle-pop thing that Rice Krispies do. But be careful when you buy them - there's a wheat-free version (not gluten-free) and a gluten-free-version and the boxes look almost identical.
  22. kbtoyssni

    ARCHIVED Oats

    kbtoyssni replied to JNBunnie1's topic in Coping with Celiac Disease

    The protein in oats is similar enough to that in wheat, barely and rye that it does cause damage in some celiacs, but it's different enough that it does not cause damage in other celiacs. If you do get non-CCed oats, it's impossible to know which category you'd fall into without trying them.
  23. kbtoyssni
    Seems like you are trying to change the world one person at a time - starting with them. It's all about the grassroots movement! I agree that telling you to go do something bigger or stop complaining is not at all nice. If they can't handle the change, then how do they expect the world to? Do they think that if you educated everyone on the issues associated...
  24. kbtoyssni
    I imagine that if she gets glutened her intestines and immune system go on overdrive. If she keeps eating gluten after that the intestines and immune system are already irritated so they're not going to react much more. She'll probably stabilize into a general state of unwellness but will no longer have that huge initial reaction.
  25. kbtoyssni
    One thing to keep in mind is she needs to still be eating gluten when she gets her biopsy or it will be negative. I'm assuming you have a positive blood test which is a valid diagnosis, so you could opt to go gluten-free now and skip the biopsy. Many celiacs are addicted to gluten so you may find her desire for bread-based foods decreases after she's...
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