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kbtoyssni

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Latest Celiac Disease News & Research:

Everything posted by kbtoyssni

  1. kbtoyssni
    Welcome! It is a common misconception that celiacs are underweight due to malnutrition, but recent studies have shown that it's quite common for celiacs to be overweight as well. And neurological symptoms like the irritability can be caused by celiac. It's also common for blood tests to have false negatives, especially if you've been gluten-free on-and...
  2. kbtoyssni
    I was going to suggest these as a Lipton's substitute, too! They are delicious and hardly weight anything. It's called Thai Kitchen Instant Rice Noodle Soup. They've got about 190 calories each.
  3. kbtoyssni
    The tricky part is this amount has to be more than 7% (or is it 12% - can't quite remember) to take a medical deduction. For most people, it would be hard to spend this much. I do all my shopping at the regular grocery store, not a gluten-free specialty store, which really keeps costs down. I buy in bulk and shop the sale rack. I have also found rice...
  4. kbtoyssni
    I was reading the October 2007 issue of Runner's World last night, and there was an article about tri-athlete Desiree Ficker, and it mentioned she was gluten-free! She has a website where people can ask her questions, and there's a few questions about what to eat on long workouts (this question comes up here all the time!) Open Original Shared Link The...
  5. kbtoyssni
    There are three sections of muscle in your abs, and you should work them all. The first section runs right down the middle of your stomach and can be worked by traditional situps. The next section is on either side of your middle abs, and you can hit these by doing side situps or "bicycle" situps (there's a video of them here: Open Original Shared Link...
  6. kbtoyssni
    I crush gluten-free corn flakes and use those as a chicken nugget coating. If you want to do an endoscopy, you do need to keep the little guy on gluten (since your appointment is Monday, this might not be so bad). If the blood test was positive, I don't think I'd do a scope unless there's something in addition to celiac a GI wants to look for. You...
  7. kbtoyssni
    Some people also have problems with nightshades - it seems like the most common symptoms are joint pain. I wouldn't jump to the conclusion that your children have problems with nightshades until they are 100% gluten-free. If they still have problems I'd try eliminating dairy and soy before I'd try nightshades just because dairy and soy intolerances are...
  8. kbtoyssni
    I was in grad school for electrical engineering when I got sick. I ended up starting to hate it - I was way too sick to be effective which didn't work well at the top notch research institution I was at. I ended up dropping out and getting diagnosed a month later. I interviewed for a job in electrical engineering three months later and started working...
  9. kbtoyssni
    Sorry, I'm a Badger fan!
  10. kbtoyssni
    It sounds like you're doing ok right now which I'm happy about. But I am still concerned. 5% of the time still doesn't make things ok. Financial problems make life stressful, but it is not an excuse for abuse. My worry is 5% will turn into 10% which will turn into 25%, etc. It sounds a little bit like you are trying to justify his behavior. The fact...
  11. kbtoyssni
    I have no idea since gluten isn't altered by cooking. It could be more about what you ate with the gluten (like a malt shake would be much harder on the stomach with all the dairy and fat than a bit of gluten in a veggie dish)? And I am a huge fan of dietary response - why delay feeling better just for a piece of paper that makes it "official"? I don't...
  12. kbtoyssni
    He's right that he needs to keep eating gluten if he wants to pursue traditional testing. Gluten is very addicting to celiacs so his irritability when going off gluten is likely to be withdrawal. It certainly sounds like his symptoms could be gluten-related, especially with the wheat allergy as a kid. I had a negative blood test after being gluten...
  13. kbtoyssni
    I have mild symptoms for about three weeks. Each week is different: week one is stomach problems, week two is fatigue and joint pain, week three is depression. It's fantastic! I'm sure this is not the kind of answer you want to hear, but hang in there!
  14. kbtoyssni
    Add her to the list of doctors that don't have a clue! Luckily you've done your research so you don't trust your health to her and her limited knowledge of celiac.
  15. kbtoyssni
    I have no problem talking about it. There are some people who will continuously ask you stupid questions about wheat, but for the most part I find people are genuinely interested. They ask questions about what I'm eating and what I can and cannot eat, but I see it more as an educational thing. My close friends are very good at buying gluten-free and ask...
  16. kbtoyssni
    I see no reason why you shouldn't be able to have a career in law enforcement. Or a career in anything. Yes, you may need to take sick days, but you'd have to do that in any job. Once you get the diet down, you shouldn't need to take off too often. The only thing I can think is that if you are just a bit sick, you might be able to make an arrangement...
  17. kbtoyssni
    Very cool! It's nice to meet someone else who's part of the celiac family
  18. kbtoyssni
    This isn't the most scientific perspective, but when I think about the brain fog I get when glutened - the inability to focus on anything, the inability to construct a logical sentence - if I were a kid in school I'm sure my teachers would think I had a learning disability. Hopefully going gluten-free will help.
  19. kbtoyssni
    I'm so glad that your doctor was willing to write a note to the school without official testing! I also agree with everyone about the bipolor - many celiacs on gluten sure as heck seem bipolor but are just fine after going gluten-free. I'd be very surprised if it actually were bipolor. And if it is bipolor, Ezra's in a good situation - he's got a mother...
  20. kbtoyssni
    If there was a way you can prove a doctor told you that you could go back to eating gluten, that might help. It might have been a verbal thing, though. I imagine that unless you're still seeing the doctor you had as a kid, though, those records might be destroyed. Although, if your insurance knows that you were diagnosed as a kid, how did they find that...
  21. kbtoyssni
    I've never heard of celiacs not being able to donate blood. It's not a disease transmittable by blood, so I don't see why you can't.
  22. kbtoyssni
    I use corn tortillas to make wrap sandwiches. Or I eat egg salad in lettuce wraps.
  23. kbtoyssni
    Gosh, I have no idea. Sometimes I just call my doc to ask if it's something serious and come in if she says so - maybe you could do that?
  24. kbtoyssni
    This is absolutely an abusive situation. You have to do what's best for you and your daughter. Do you really want her growing up in this environment? I agree with the other posters - you need to do something like going to counseling or getting out of the house.
  25. kbtoyssni
    Ditto what everyone else said - I'm disappointed/disgusted, but not surprised. I think a lecture to the class is a good idea. If you have medical studies to back up your data, I don't see why they shouldn't take you seriously. And I was also going to say a letter to the publisher is in order. Celiac should absolutely be mentioned in the next revision...
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