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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    I agree with j-mommy. It sounds like it could be a symptom of gluten, but if you're sure you're not getting any gluten, I'd head to the doc. There are plenty of other things that can cause fatigue and sleep problems so it's worth getting checked out.
  2. kbtoyssni
    Awesome! Congrats!
  3. kbtoyssni
    Yay! I'm glad you figured out what was wrong and that it's easily treatable. Make sure you take some probiotics after your antibiotics are gone.
  4. kbtoyssni
    From what I've read, the protein in oats is similar enough to wheat gluten that some celiacs will react, but some won't. And that's not just feeling sick, it's that some do get damage and some don't. I choose not to eat oats (I haven't actually tested myself), but some do successfully. The problem is that most oats are contaminated - manufactured on the...
  5. kbtoyssni
    I think Stax are made on a dedicated line so those shouldn't have any contamination issues. The other products I know don't have their own line, but I can't remember if it's a shared line or just a line in close proximity.
  6. kbtoyssni
    That's fantastic, Ursa! I'm so happy you finally found a doc who could steer you in the right direction.
  7. kbtoyssni
    While the biopsy is considered the gold standard in the medical world, I feel a bloodtest or dietary response is a perfectly valid diagnosis. There's several things to consider here: -Do you need a biopsy to commit to putting her on a gluten-free diet? Some need that final bit of proof to fully commit. -Would you still keep her gluten-free if the biopsy...
  8. kbtoyssni
    I'm also concerned about the blood. If it's more like dried blood, you've probably got some internal bleeding and you should go to a doctor now. Even if it's not your own. It may not be celiac related at all.
  9. kbtoyssni
    Do they make Cheetos on a shared line or just in the same facility as wheat products? I've never had problems with any Frito-Lay product and I do like the occasional Cheeto so I'm just trying to weigh my risks here.
  10. kbtoyssni
    In this thread, Emily Elizabeth says that the book "Celiac Disease: A Hidden Epidemic" states you have to be eating 4 servings of gluten for 2 months which is probably a better reference than my memory Open Original Shared Link
  11. kbtoyssni
    I've heard it's more like 5-6 weeks of eating around 4 servings of gluten a day to get a positive test. I did a two week elimination diet that included wheat (so I was certainly eating some gluten), then ate gluten for about a week to do a blood test and it came back negative.
  12. kbtoyssni
    Just out of curiosity - why do they recommend seeing a dietitian every year? (And I am assuming they mean a celiac-knowledgeable dietitian which can be hard to find!) It seems to me that if you continue reading food labels and calling companies, a dietitian wouldn't have any additional information for you. They may be able to help make sure you're getting...
  13. kbtoyssni
    I'd definitely replace wooden cutting boards and spoons. The plastic ones may be ok if they're not too scratched up.
  14. kbtoyssni
    If the blood test is positive, then he has celiac. There is no reason to do a biopsy unless there's something in addition to celiac that the doctor wants to look for. Many in the medical community consider a biopsy the "gold standard" of diagnosis, but you really don't need one if you have positive bloodwork. And a biopsy can often come back negative,...
  15. kbtoyssni
    It's too bad it's your family doing this, because it's a little harder to cut them out of your life than friends. Do you ever bring yummy gluten-free food to share at family events? I know this probably isn't going to work with people like this, but I like to show everyone how yummy and normal my food is. I make gluten-free cakes all the time and bring...
  16. kbtoyssni
    At first the diet will seem more expensive because you're trying to buy gluten free substitutes for all your old gluten food. Going gluten-free takes some thinking outside the box if you want it to be cheap. Know your mainstream brands and which ones are safe so you don't have to buy the stuff with the "gluten-free" label on the front. I'm a huge shopper...
  17. kbtoyssni
    That's funny - I like New Grist better!
  18. kbtoyssni
    It's very possible. This disease is full of false negatives. It also takes a while to develop villi damage so she may not be old enough for it to show up. Or the doctor might not have gotten a biopsy of the damaged area. I had a negative blood test so I'm diagnosed by dietary response. Try the diet - you'll know if she has it soon enough.
  19. kbtoyssni
    I didn't read the whole thread, but I agree that IBS is just a label for symptoms and not a treatment for a disease. Every health problem is caused by something, and an IBS diagnosis means you hasn't found the cause of your digestive problems yet. Eating on gluten-free meal probably won't make you feel all better. It's going to take days, or even a...
  20. kbtoyssni
    Sounds like you have celiac! And being mostly gluten-free isn't going to resolve your symptoms - you have to be 100% gluten-free. I was also diagnosed with fibromyalgia before celiac and all my FMS symtoms went away when I went gluten-free. I think it took me 2-3 weeks to realize that my muscles and joints didn't hurt as much as they used to and probably...
  21. kbtoyssni
    I'm also someone who is extremely positive about the diet. I never look at it as "my life is so much different now, I hate it." It's more of a "yay, I'm not sick, and gluten-free is just what I do." I've figured out the brands, I've got fantastically supportive family and friends, and I love the way my life is now!
  22. kbtoyssni
    Good point, Mistresslsis. Aren't you supposed to be washing hands in a medical environment? What if a patient was celiac? (Not to say that a patient's health is more important than yours, but a patient does have suing-power). Might be something to bring up to a supervisor - just a friendly reminder to wash the hands after eating...
  23. kbtoyssni
    I've also called Bob's and gotten the same response. This is why their soy flour does not have the gluten-free logo on it, even though it appears to be gluten-free based on the ingredients. I used to just buy BRM products without looking at the packaging too closely, so I made this mistake.
  24. kbtoyssni
    I don't see any reason to waste another 2+ weeks of your life just for a doctor. It sounds like you're perfectly convinced it's gluten and don't need another medical diagnosis to make you stop eating it. You do not need a doctor's permission to stay gluten-free.
  25. kbtoyssni
    About one week of stomach pain. Followed by one week of joint/muscle pain and brain fog. Followed by another week of depression.
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