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kbtoyssni

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Everything posted by kbtoyssni

  1. kbtoyssni
    Happy birthday! And sorry you didn't get any cake. Maybe you could talk directly to the person who orders the cake and offer to order banana splits for her or pick it up or something. It's possible she just forgot and since they always do cake, there's no reason to change. I now treat situations like this as more of a social thing rather than an eating...
  2. kbtoyssni

    ARCHIVED College Food

    kbtoyssni replied to CBM's topic in Coping with Celiac Disease

    My brother goes to the University of Wisconsin - LaCrosse and they have gluten free food for their students. I think there are five celiacs out of the 5000 or so students. There's a fridge in the back stocked with gluten-free food and they can use the microwave to cook it up. Everytime I've visited they've been very accomodating. I wanted scrambled eggs...
  3. kbtoyssni
    Weird. Something similar happened to me a few weeks ago. I started getting really weak and confused and could barely make it up the stairs to my apartment. Then I started shaking uncontrollably and was freezing cold even though it was in the 90s that day. I threw up and then pretty much passed out because I felt like I was going to die. The next day...
  4. kbtoyssni

    ARCHIVED Low Bone Density

    kbtoyssni replied to Lexis's topic in Sports and Fitness

    Lifting weights can also help. Maybe you can join a local fitness center and get a session or two with a personal trainer. He or she can show you some good exercises to do and how to do them with proper form, etc.
  5. kbtoyssni
    Yes, it's possible to not feel sick after eating gluten. A few weeks ago I ate something with gluten and didn't get sick at all. And sometimes I get very sick. But it doesn't matter how sick you feel, gluten is still doing damage to your intestines if you do have celiac. I'd go get tested. It certainly can't hurt anything.
  6. kbtoyssni
    Welcome! I'm glad you've finally found the answer to all your health problems. One day of being gluten free won't affect testing. Are you getting a biopsy done? Eating out at nicer restaurants is easiest I think because there's a chef who can make your food specially. Some places also have gluten-free menus like PF Changs and Outback. I've been...
  7. kbtoyssni
    It's very common for celiacs to have an irregular cycle. I didn't get a period at all until my doctor put me on the pill when I was 19. I'm 24 now. I've only been gluten-free for 10 months and haven't been off the pill for long enough to know how my body's going to respond. I've tried probably six or seven different brands to find the one that was best...
  8. kbtoyssni

    ARCHIVED Fast Food?

    kbtoyssni replied to Ronnie's topic in Gluten-Free Restaurants

    What about Buger King french fries? I've been to several BKs and all of them have told me that they have a dedicated frier for their fries. The last time I got fries, though, I found an onion ring halfway through! Which really made me mad because I love fries and I could smell them all afternoon and couldn't eat them. So, are BK fries gluten-free? Was...
  9. kbtoyssni
    I'm surprised your pharmacy didn't find this information for you. My pharmacy was great and called all the manufacturers of my meds for me.
  10. kbtoyssni
    Welcome! I'm 24 and have been gluten-free for 10 months. I had a lot more energy after a few weeks, but it took me probably eight months to feel like I was living my life 100% again. I had lost a lot of strength from being nearly bed-ridden for a year, so I think the eight months was a combination of recovering and getting my strength back. I was able...
  11. kbtoyssni
    It's very common. You most likely have an addition to gluten. I used to binge on gluten foods all the time. They were the only foods I craved. Now I never crave any food. Give it time, wait it out, it will go away.
  12. kbtoyssni
    By tired do you mean emotional or physical fatigue? If it's physical, maybe you still have some underlying health conditions that you haven't discovered yet. If it's emotional, I'd recommend seeing a therapist. Is your entire family gluten-free? I now live alone. My entire apartment contains no gluten so I don't have a daily struggle with the disease...
  13. kbtoyssni
    Oh man, that stinks. Sorry you have to deal with this. I don't have any good advise for you, but I think insurance companies are being stupid with celiac disease. Honestly, I am so much healthier now that I have a diagnosis than before. Do they want people like me to go back to weekly doctors visits and several prescription drugs? They are saving so...
  14. kbtoyssni
    I turn on my light. I think psycologically I know I'm not supposed to fall asleep with it on, and now that I'm not "allowed" to fall asleep I do. It's the pressure of having to fall asleep right now that makes me less able to sleep. To take some of that anxiety away I tell myself that I don't have to sleep, but I do have to lie in bed and rest. Resting...
  15. kbtoyssni
    I also suffer from extreme fatigue and joint pain when I eat gluten. It was so bad that I was diagnosed with fobromyalgia (which I now don't think I have). I couldn't even lift small things like a gallon of milk I was so tired. Since your girlfriend is so new to this, she's probably still "addicted" to gluten. I've read that gluten can be similar to...
  16. kbtoyssni
    I also meant to ask about intolerances to legumes, nightshades, etc. Can these be tested for or do you have to figure it out on your own through a food diary or elimination diets?
  17. kbtoyssni
    Thank you! I hate doing food diaries so much. I'd rather do almost anything else than have to write everything down... It looks like I should do both allergy testing and enterolab. I'll probably get the milk and the egg/yeast/soy panels. Speaking of allergies vs. intolerances - can this occur with things other than food like dust, too? I've been...
  18. kbtoyssni
    I know we just had a million threads about Enterolab, but I can't seem to find any of them. I'm thinking of getting the testing done, but I don't know which ones I need. I can do the gluten sensitivity/gene panel, but I'm already convinced I have celiac so it seems like a waste of money to do the test. Is there any info I'd get from the gluten panel that...
  19. kbtoyssni
    Shoot - I get balsamic vinagarette all the time. Maybe this is why I've been feeling yucky recently... Thanks for posting. I also heard somewhere that some charcoals are made from partical-board type woods, which contain glue, which in turn can contain gluten... I always use foil when BBQing. My mum says that some charcoals will say on the package...
  20. kbtoyssni
    I don't have any problems with touching gluten. I even like to smell my friend's gluten treats. I have no desire to eat them, but they do smell good I always assumed that touching gluten would only affect people with DH, but you've just proved me wrong.
  21. kbtoyssni

    ARCHIVED Writing To Old Doctors

    kbtoyssni replied to kbtoyssni's topic in Doctors

    Thanks for the feedback, everyone. I do want to use this as more of an educational thing. I don't really blame my doctors for not figuring it out (although there are two who I think should have figured it out). I never had any of the "classic" symptoms, or at least I never went to the doctor with them. I also went to the doctor with isolated symptoms...
  22. kbtoyssni

    ARCHIVED Writing To Old Doctors

    kbtoyssni replied to kbtoyssni's topic in Doctors

    Ok, maybe I'll do it. I have so many doctors that I'd have to write to: that GI doc, all the doctors that told me I had chronic mono, the ones who diagnosed me with chronic fatigue and fibromyalgia, my gynocologist who never could come up with a reason for me never getting a period. And several shrinks who never figured out the connection between depression...
  23. kbtoyssni

    ARCHIVED Writing To Old Doctors

    kbtoyssni posted a topic in Doctors

    Has anyone ever considered or actually written to an old doctor that misdiagnosed you? After eight months gluten-free, I'm starting to realize how sick I was. It came on gradually so I never noticed that I wasn't feeling right. My life has dramatically changed for the better in the last year. But then I think about all the times in the past that I...
  24. kbtoyssni
    I first noticed that my depression and fatigue were gone about eight months after going gluten-free. I suppose it was gradually getting better that whole time. One day I woke up and realized that my life was so much better!
  25. kbtoyssni
    It could be because your body is absorbing more of the drug. I know with a lot of oral drugs you can take a smaller dosage once going gluten-free because you absorb all of it. When your intestines are damaged you only partially absorb food and drugs. Not sure if it's the same with topical creams.
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