Nancym
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Latest Celiac Disease News & Research:
Everything posted by Nancym
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ARCHIVED Teen Won't Stop Glutening
Nancym replied to laurabelle's topic in Parents, Friends and Loved Ones of Celiacs
I think CarlaB is right on the money. So many kids have no consequences for their behavior. I'd start by taking away privileges and tell them they can earn them back by good behavior. I'm sure there's hard cases that it wouldn't work on but as a former kid, it worked on me. Are there professionals that can help parents with child-rearing techniques... -
Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something...
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ARCHIVED I Dont Have Celiac, But Its Ruining My Life!
Nancym replied to littleone's topic in Parents, Friends and Loved Ones of Celiacs
Maybe this is causing the rift? I personally have set down the rule that my house is gluten free. I don't want to be cross-contaminated by other people. I think with your BF as sick as he is, he's going to need that sort of dedication to staying gluten-free. Accidental glutenings do happen by people being careless, rushed or just forgetting. If you... -
ARCHIVED New To All This, I Think I'm In Denial.
Nancym replied to TortleLisa's topic in Coping with Celiac Disease
Being gluten-free means your tests are going to come back negative. Gosh, you say you have no trouble with food but I'd call that sort of osteoperosis trouble, with a capital T! Your doctor sounds terrible. He should be hopping up and down trying to discover why you have such awful osteoperosis at your young age not telling you that you should... -
Vitamin D in a dry form is virtually worthless. If you're going to supplement it be sure to get the sort that is oily and says cholecaliferol. For the fatigue I'd start suspecting an autoimmune disease. Talk to your Dr. about it. It might be thyroid, or something else, most of them make you fatigued.
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I'd say it's due to something else. For me I'm sensitive to other foods: diary, seeds, corn and probably other things. Or it might be something like small bowel overgrowth. Google that term and see if it makes sense.
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ARCHIVED Intolerance To All Grains?
Nancym replied to alamaz's topic in Food Intolerance & Leaky Gut
I was having that too, intolerance to all starches basically. Anyway it seemed to be getting worse all the time and a light clicked on with me: "Small Bowel Bacterial Overgrowth". I looked it up on the internet and it kind of fit my symptoms. I talked to my doctor and got a prescription for rifimaxin and it seemed to help a lot. I haven't tried to down... -
ARCHIVED Redbridge Vs. New Grist
Nancym replied to GeoffCJ's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't had New Grist but I have had Bards Tale and Redbridge. I preferred Bards Tale, it was one of the best beers I remember having. I really liked it. Redbridge is ok, kind of reminds me of others beers I've had that were "different" but didn't really thrill me. -
I've been following the Paleo diet about 85%. I participate in a Paleo forum for support, recipes and ideas. Basically you get rid of all grains, dairy and new world veggies like potatoes. The concept is to eat as close to how people ate 10,000+ years ago, which is the diet we're best evolved to eat. Neolithic (i.e. farming) is relatively new to man...
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I've had about a week post rifamaxin and my bowels are doing quite well! I had a lot of rice two days this week and I'm rock steady. The real test is to see if I can down a couple of vending machine bags of chips, that always seemed to make me sick before. I gain weight at the drop of a hat though so I'm trying to be good about the carbs.
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ARCHIVED How Did My Husband Get Better?
Nancym replied to moonlight's topic in Parents, Friends and Loved Ones of Celiacs
Do you eat a lot of fruit? That could be why, you're still probably have lots of glucose and glycogen. -
ARCHIVED How Did My Husband Get Better?
Nancym replied to moonlight's topic in Parents, Friends and Loved Ones of Celiacs
You might also want to read up on Small Intestine Bacterial Overgrowth (SIBO) or Small Bowel Overgrowth (SBO). Basically what it leads to is carbohydrate intolerance, sometimes fructose intolerance too, and lots of nasty, nasty side effects. I just had a course of an antibiotic especially made to treat that call rifamaxin and I'm hoping it'll help. Although... -
ARCHIVED Unsure
Nancym replied to natalie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yeah, they can see indications of celiac in "scalloping" in a particular area. So hey, interesting comparison with the Enterolab results! About a 1/3 of celiacs are overweight so you just can't tell by someone's weight. -
ARCHIVED Biopsy Results
Nancym replied to rebz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I believe this is recognized as a pre-celiac changes I think Dr. Lewey, and others, write about this. You might want to google it up. Here's one: Open Original Shared Link -
ARCHIVED Celiac Disease A Possible Cause Of Migraines
Nancym posted a topic in Publications & Publicity
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ARCHIVED Need To Go Gluten Free?
Nancym replied to person011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you're gluten sensitive then your thyroid disease may well have been caused by eating gluten. I've heard that something like 30% of people with early thyroid disease will go into remission if they adopt a strict gluten-free diet. And another thing, this gluten sensitivity seems to come with the tendency to develop new autoimmune diseases easily. Having... -
I have a new theory about this and am currently testing it out on myself. I'm thinking that when we were sick from eating gluten/dairy we got a bacterial overgrowth in the small bowel. I broached that with my doctor and he was amenable to putting me on a specific antibiotic called rifamixin, which stays local to the bowel and isn't absorbed into the blood...
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ARCHIVED Enterolab Test Results...what Do They Mean?
Nancym replied to New Mama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow! Those are some of the highest scores I've ever seen! You should ask Enterolab about the fecal fat score, that doesn't look right. -
ARCHIVED Please Help!
Nancym replied to sillyactsue's topic in Parents, Friends and Loved Ones of Celiacs
macadamia nuts, highest fat nut there is and very easy to digest. Coconut milk smoothies? Hopefully she is ok with coconut. I could gain oodles of weight having Thai sticky rice with coconut milk, man it is good! Starches pack fat on me like mad but I have issues with grains except rice. How about potatoes? -
ARCHIVED Baking With Coconut Flour
Nancym replied to Mango04's topic in Gluten-Free Recipes & Cooking Tips
I make up my own recipes with coconut flour. Sometimes I cut the coconut flour with rice bran, that works really nicely too. I make a thing called a "Bowl Muffin" which is a muffin you microwave in a bowl and also I've been making coffee cake with coconut flour and rice bran. I can get you the links if you want them. I've found the dough has to be pretty... -
Not unless you get one of those new fangled microwave/teleportation devices.
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ARCHIVED When Will I Start To Lose Weight?
Nancym replied to Babygirl6915's topic in Related Issues & Disorders
You won't necessarily automatically lose weight just by cutting out gluten. I didn't but my tummy area sure flattened out without all that bloating all the time. In fact... some people start to gain weight because they're replacing the gluten with substitutes that are higher in carbs and calories and they're finally absorbing their food better. What's... -
ARCHIVED Celiac Disease Vs. Gluten Intolerance
Nancym replied to candi1008's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Odd, wonder why they say it isn't autoimmune related, it most assuredly is. That's what Dr. Fine's (Enterlab) test looks for, antibodies to gliadin and intestinal ttg, both of which are autoimmune responses. -
ARCHIVED How Did My Husband Get Better?
Nancym replied to moonlight's topic in Parents, Friends and Loved Ones of Celiacs
Horray! Glad to hear you're doing so much better. My health deteriorates a lot when I eat carbohydrates. I'm beginning to think I might have a bacterial overgrowth in my small intestines. Well, I think the diet humans were evolved to eat didn't involve all that much carbohydrates until relatively recently, when farming was "discovered", so to speak...