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Nancym

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Everything posted by Nancym

  1. Nancym
    Patience young grasshopper! You should hear very soon.
  2. Nancym
    Wow! That's excellent you made a backup of it. And you did such a beautiful job. It really is beautifully formated. I just read your story about the gluten sensitivity self-diagnosis, it was wonderful!
  3. Nancym
    Someone from Braintalk saved the gluten file, and formatted it gorgeously. Read through this, you might find some familiar stories: Open Original Shared Link
  4. Nancym
    I have a friend who sweats when he eats certain foods, like vinegar or spicey things.
  5. Nancym
    Well, there's this one and there used to be Braintalk but it crashed a month ago. However, there is a member from there who saved all the wonderful research that was compiled there: Open Original Shared Link
  6. Nancym
    Oops! Posted to the wrong thread!
  7. Nancym
    The blood tests usually only show positive if you've got severe intestinal damage from gluten sensitivity. If you want to figure out whether gluten causes you problems and nip it in the bud before your intestines are a managled wreck, then you can either try a gluten free diet for a few weeks or you can get tested by Enterolab. Or you can do both, that...
  8. Nancym
    It's an individual thing but the testing is only needed for one thing. To help you go gluten free or not. And if you've figured it out via diet, then I'd think the test is optional.
  9. Nancym
    Hello! I was a brain talker too. I miss the forum so much! Has anyone heard any updates from the admins? So sad to think the wonderful Gluten File is gone!
  10. Nancym
    I think the CF helped too. I know when I start eating dairy I start to feel fuzzy again. Yeah, I hope Brain Talk comes back! I miss that site. Lots of neurologically challenged folks swear by taking B vitamin supplements. I'm taking a b-complex and B-12 sublingual. I think it might have helped too.
  11. Nancym
    I found taking B vitamins helped (I think, maybe it was just lack of gluten that helped). I take a B complex and then sublingual B-12.
  12. Nancym
    Dr. Fine just addressed the question in a Q&A about someone who works with bread in his job. He said he thought it was a bad idea. The skin is a permeable thing. That's why drug medicated patches work. With those of us having gluten reactions it tends to open up zonulin controlled barriers more (at least in the gut), and the skin has one of those...
  13. Nancym
    No! He came to San Diego a couple of weeks ago to speak to the celiac group here. He's got about a one hour lecture with slides and he talks about how he stumbled into finding antibodies in the intestines and how that changed his career. I really wish they'd post where he's going next because it was a really fascinating lecture. He had about 30 minutes...
  14. Nancym
    Well, I don't know if it'll work, probably not. But you might let him know that the damage caused by gluten can lead to all sorts of incurable things like autoimmune diseases and so on. Wouldn't it be better to err on the side of caution and prevent her from getting these than to look at it in retrospect 20 years from now and be sorry you ignored the evidence...
  15. Nancym
    You might want to get in to see a rheumatologist. I was diagnosed with AS 6 months ago. It is pretty mild in my case but it can be quite, quite painful. It is hard to find a good AS doctor, if you have AS, especially if you're a woman. We present completely different symptoms than men.
  16. Nancym
    Has your husband see Dr. Fine's CV? He's going to be publishing at the end of the year, maybe that'll help. Argh! So frustrating. If you can you might check to see where Dr. Fine will be speaking. His lecture is very compelling. I just saw him in San Diego at our celiac meeting here.
  17. Nancym
    I know that some autoimmune diseases respond positively to gluten free diets, for instance quite a few people get a remission of Hashimoto's if they catch it and treat it with gluten-free diet, and the longer you have undiagnosed gluten sensitivity, the higher your risk of autoimmune diseases. So, I don't know if it is possible or not, but perhaps getting...
  18. Nancym
    Yum, Thai food! I go to the same Thai restaurant all the time, so they usually know about my issues with wheat. I usually get Panang curry. In fact, I bought some pre-made paste from an online import store and it doesn't contain wheat. I've never seen a fish sauce that contains wheat. I also like Tom Ka Kai (or sometimes I see it called Tom...
  19. Nancym
    Enterolab is on the cutting edge for detecting gluten sensitivity. Everyone else is still futzing around with tests that don't detect it until the damage is very severe. I just attended a lecture with Dr. Fine speaking and it was fascinating. Just about every one of the people who went gluten free, even a few without a positive, had improvement in...
  20. Nancym
    Sometimes people with thyroid issues have a funny feeling in their throat or difficulty swallowing. Get your thyroid checked!
  21. Nancym

    ARCHIVED Yikes!

    Nancym replied to penguin's topic in Publications & Publicity

    It doesn't show up in your blood until quite late in the progression of the disease. So unless they were checking her intestines for antibodies they probably don't have an accurate reading.
  22. Nancym
    I've been making my own gluten free buns with egg, almond meal, flax meal and little coconut flour (optional), baking powder, xanthan gum. I mix it until it is about like pancake batter in consistency then I pour a little bit into a lid of a very small casserole dish (about the right size for a bun) and microwave it for 30 seconds or so. It puffs up and...
  23. Nancym
    Yes! I talk to someone on another message forum who had a positive biopsy with negative blood work. She had completely flattened villi. Dr. Fine's work has also found people with negative blood and positive biopsy. That's why he thinks testing stool is so much better than blood.
  24. Nancym
    I just heard Dr. Fine lecturing at the celiac group in San Diego. I think he's bloody brilliant and very brave. It takes medical practices a long time to change, and Dr. Fine's findings are going to cause some painful reevaluation of what people are eating every day and assuming to be healthy. I don't know if you remember the hoopla surrounding the discovery...
  25. Nancym
    Gluten causes you to produce antibodies to gluten which stick around in your system (intestines) at detectable levels for 2 years after going gluten free. Dr. Fine discussed this during his lecture. There's a lot of research going on about gluten and intestinal permeability (gluten causes the tight junctures to open in the intestines letting stuff in/out...
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