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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Trents... that's really interesting. It first struck Tuesday after a walk, then I've had pain every day since but today's was far the worst. The one thing that makes me wonder if it is PF is that according to Dr Google it seems it commonly hits at night and wakes people. Mine is daytime. Do you remember getting it at night only?
  2. cristiana
    Hello experts, I wonder if anyone on this forum has ever experienced either PF or PN? I was diagnosed with the latter about three years ago. I am now suffering similar pain, sort of a brief painful electric shock sensation in the rectum, but the difference this time is the pain seems to go when I've been to the loo (BM). I have read that this...
  3. cristiana
    Hello again, If these figures are pre-diabetic it would be good to look up how to reverse the situation through diet and lifestyle changes, which I gather is eminently possible. I would imagine a large carbohydrate "hit" is something to be avoided for a while. Maybe your body is trying to tell you something. 😊 Hopefully others will chime in...
  4. cristiana
    Hi Mari My weight went down about 15lbs in the months around my diagnosis, because of malabsorption caused by diarrhea. It continued to go down a little when first on the gluten-free diet as I was being ultra cautious about what I was eating. As soon as I began to master the diet and the gastro symptoms improved vastly, and I discovered the sadly...
  5. cristiana
    I hope your doctor will be able to help - and others from this forum, too. Just to say, I can "temper" these side effects somewhat if I eat the sweet potato with something with a high fat or protein content. But I tend to avoid sweet potato altogether, given half the chance. Incidentally, you eat these carbs, are you eating them alongside fat...
  6. cristiana
    Hello there, and welcome to the forum! I'm so sorry you are experiencing this. I have one foodstuff that really makes me feel like this and it's those red fleshed sweet potatoes. (I'm in the UK, they may be called something else where you are posting from - not sure where that is?) But it's almost like this extraordinary rush that makes me feel incredibly...
  7. cristiana
    Thanks for posting this. That makes sense. Hopefully your endoscopist (if there is such a term!) will have taken enough samples and you will soon be able to put this behind you. Do let us know when you hear, hopefully it won't be long now PALS is involved.
  8. cristiana
    Yes, this was a new one on me, too. I wonder why they said that? It almost sounds as if they knew something was up with the lab that was doing the screening and they thought you'd be called back - hope I'm wrong! For any UK residents who are reading this thread, here's a really good summary of the UK route to diagnosis. Hospitals are working really...
  9. cristiana
    Thanks for posting this... I'm interested in this because I've recently been diagnosed with adult onset eczema and I've just googled it and it seems that there is a body of evidence to suggest it could be autoimmune too. I had no idea.
  10. cristiana
    Yes... I heard this too. Certainly a good (coeliac) friend of mine kept suffering miscarriages. Once she was diagnosed, all her pregnancies went to term. My neuro coeliac symptoms were only just becoming apparent when I had my first child and she was born ten days late; however, my second child was seven weeks premature. I remember feeling very run down...
  11. cristiana
    Hi Rykroeh Welcome to the forum. I hope someone will be able to help you with this, but in the meantime I have done a bit of reading about faint test results and I found this article which I think is helpful. https://flo.health/getting-pregnant/trying-to-conceive/pregnancy-tests/faint-line-pregnancy-test Sorry to not be of much help, but...
  12. cristiana
    Hi Checks I'm fine - I actually have a fantastic NHS gastroenterologist and as I have another health issue I thought it best to see him privately, which put me back about £90. Well worth it though otherwise I think I'd be really concerned (being a professional hypochondriac!) Cristiana
  13. cristiana
    Hi Checks I'm British and whilst I haven't had the same experience relating to a coeliac disease diagnosis (I was diagnosed in 2013) I have experienced a few other issues with the NHS since Covid started and yes, the poor NHS really is struggling in various areas, some more than others. For example, normally I get an annual NHS coeliac review including...
  14. cristiana
    Hi Nicole Welcome to the forum! Can I ask, have you discussed your symptoms yet with your midwife, GP, obstetrician or whoever is looking after you during your pregnancy? I think it is important that you touch base with your care provider when this sort of thing crops up in pregnancy. But in answer to your question, I was only diagnosed a...
  15. cristiana
    Hello again Aaron The journey of trying to track down food intolerances can be a long one. I think it is really good you are on your way to finding out if you are a coeliac or have NCGI because at least you will have one important answer, one way or another. (Although you are quite correcting in stating that the treatment for NCGI and coeliac disease...
  16. cristiana
    Hello Aaron, and welcome to the forum! People's responses can vary enormously. Depending on the gluten "hit", my own experience is my symptoms can vary from slight queasiness and a slightly sore stomach to extreme chills and being unable to stand up. I experienced the latter a few months ago when I ate a slice of cake that turned out to contain normal...
  17. cristiana
    Also... it is important to have been consuming enough gluten prior to an endoscopy for the same reason. Do keep this in mind before booking yours. You may wish to clarify this with your gastroenterologist.
  18. cristiana
    Hello there Aaron, and welcome to the forum! Well... it certainly sounds as if you have been experiencing a lot of celiac-type symptoms there but having read and re-read your account I am still not sure if you did what is known as a "gluten trial" before you had the blood tests. I'm from the UK and here it is usually recommended that someone needs to...
  19. cristiana
    Hello Casey and welcome to the forum! Trying to find out whether we have intolerances to various foodstuffs is quite a science. If you aren't already, I would suggest you might like to try keeping a food diary to record what you eat at each meal and as snacks and any symptoms the food triggers and see if a pattern emerges. But re: gluten...
  20. cristiana
    Thanks for posting those. I guess the difficulty which we face in this sort of situation is that is possible to have negative blood tests and still be a coeliac - either because one hasn't been consuming enough gluten to generate a sufficiently strong reaction, or despite gluten consumption, a small minority of coeliacs have negative blood tests but...
  21. cristiana
    Hello Lenzipam and welcome to the forum You are right in stating that 6 weeks seems to be the minimum recommended time period for the trial. Here in the UK it's usually recommended that one consumes at least two slices of glutenous bread per day through that period. Out of interest, were you totally gluten free before the trial? Also,...
  22. cristiana
    I'm not sure if the original poster has seen this. But with regard to B12 injections, I wasn't offered any by the doctor that diagnosed coeliac disease but my nutritionalist who saw my blood tests said she was surprised that I hadn't been offered them as my levels were only borderline normal. This is a useful thread from the National Health Service...
  23. cristiana
    Hi Trish I am in the UK and see these are for sale here, also marked gluten free (they look good!) I have never tried them but I just wanted to say to you that occasionally certain products are recalled because gluten sneaks in somehow. It can be worth contacting the manufacturer with the batch number and point out that you are having issues and...
  24. cristiana
    I'd really like to try this. I shall look out for it. However, I wonder if it would taste like or even "act" like Lyles as the only ingredient in Lyles is partially inverted refiners syrup which is made from either cane or beet sugar, and there is nothing else in it. I guess the message for flapjack purists would be to track down Lyles first, make...
  25. cristiana
    You are more than welcome, do feel free to come back to us if you need any further support. ☺️ Glad you had a better night's sleep.
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