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HavaneseMom

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Everything posted by HavaneseMom

  1. HavaneseMom
    Hi Everyone, I just wanted to follow up on my original post with the great news I received today that my TTG IGA is now 17. It took almost 8 months, but all of my Celiac numbers are now below the normal reference range of less than 20! I thought I would share my excitement with the only other people in the world that could relate to being happy about this...
  2. HavaneseMom
    I see dairy has been mentioned a few times. Nothing gives me "C" like cheese! I love cheese and even a small amount will back things up and bloat me. I just gave it up again a couple of days ago. If you don't want to give up all of your dairy, maybe try cheese first. It takes me about a 1 1/2 to 2 weeks after I quit eating cheese for things to start working...
  3. HavaneseMom
    My colonoscopy prep was all OTC stuff. Milk of Magnesia first. Then 2 jugs of Gatorade mixed with a bottle of Miralax. Good luck with your procedure!
  4. HavaneseMom
    To me it sounds like you are having a stress/anxiety response. I have this too and joke with my husband that I am a "nervous pooper". I have Celiac and while my anxiety related issues have slightly improved on a gluten free diet, I still do often have this problem in similar situations you described. I am constipated most of the time, so it is a real change...
  5. HavaneseMom
    I had all of your symptoms, except for the nail problem. My doctor wouldn't test me either because I didn't have diarrhea. When I finally gave up on him and went to a Gastro doctor I was tested right away. I'm guessing you are in Canada based on your name. Can you go to a Gastro doctor easily with your health care system? I really think for the most part...
  6. HavaneseMom
    Mine was 19 at diagnosis, and was up to 29 at my 6 month follow up. My doctor said I should try to get it up to somewhere between 50-60 for optimal benefits. I had been taking 3000-5000 IU a day for 6 months, and it only went up 10 points. It must be a slow one to rise for some people. I am in Michigan and get very little sun too.
  7. HavaneseMom
    I have a shared kitchen and a great tip I saw on this forum was to designate one counter only in the kitchen for gluten food use. My husband has his toaster on that counter and pours his cereal on that counter, makes his sandwiches there, etc. This way I don't have to worry so much about random crumbs ending up in the rest of the kitchen and in my food. ...
  8. HavaneseMom
    I have heard this too FruitE. I used to use Shaklee multivitamins and my sales rep had told me that their supplements were not "Golden Bullets". I had no idea what she was talking about. She said some of the supplements out there didn't dissolve and just ended up in the toilet whole, and since they are expensive, they were referred to as Golden Bullets.
  9. HavaneseMom
    Hello, I use Thorne Research brand. I use their Meta-Fem and take 3 a day, one with each meal. They don't bother my very sensitive stomach.
  10. HavaneseMom
    I'm glad to hear they ran all of those test. If the problem continues and your doctor can't figure out the what is causing it, you may want to take a closer look at your lab results. Some of the iron test have very large reference ranges that are considered "normal" results. For example, Ferritin at my lab has a reference range of 11-306. If your Ferritin...
  11. HavaneseMom
    Hello, From what I have read and experienced, a gluten free diet could help her psychological symptoms. It might take a little time to see a difference. Here is a great story I came across about a child who's behavior drastically changed on a gluten free diet. It is a bit of a read, but if you get through it, you will see the difference was pretty amazing...
  12. HavaneseMom
    Have you had your iron tested? Celiac can lead to anemia, which can cause shortness of breath and labored breathing. My shortness of breath was pretty bad by diagnosis, but would vary day to day. Do you notice it more when you are physically active? I don't mean running, but just little things like walking down the hall? Even walking up a flight of stairs...
  13. HavaneseMom
    The hunger can be normal. One of my least favorite symptoms before my diagnosis was the excessive hunger. Then when I was diagnosed, it went to a whole new level. I was painfully so hungry for quite a while... maybe 3 or 4 months straight. No matter what I ate, I was still so hungry that my stomach would hurt. I would have to get up in the middle of the night...
  14. HavaneseMom
    Hi coffngrl, You have already received some excellent advice, but I thought I would chime in with my experience. I have seen a psychologist at a couple of point in my life, and went for just a couple of visits both times. Once when I was about 19 to help me deal with my parents divorce and once when I was about 23 when terrible panic attacks set in (which...
  15. HavaneseMom
    I see you have squash on your can't eat list. Is it all squash? I can't tolerate the bigger orange type squashes (can't think of their names), but zucchini and yellow squash are my friends. I find them pretty soothing and they help keep things moving too :-). If you are in the Midwest like me, I'm sure you have already tested them. Lots of it around in the...
  16. HavaneseMom
    I would really avoid baking with regular flour if at all possible as someone with Celiac. Just imagine the little dust clouds of flour when your pour it in to the measuring cup and then again when pouring it in to the mixing bowl and again when mixing the ingredients. It's very possible particles could land on your lip and be ingested, or if your were talking...
  17. HavaneseMom
    Thanks so much for sharing this! I can finally stomach supplements and am going to start a regimen soon. I will be sure to include Magnesium since I have the big C and bloating too. I hope it works as well for me as it does for you.
  18. HavaneseMom
    Sorry to hear this. I sure do hope your colitis calms down soon. I mostly have "C" and I feel so bad for people with "D". Yours sounds like a really bad case of it that has lasted a very long time. Hope you feel better soon.
  19. HavaneseMom
    Thanks everyone for the great advice and tips! I am in Michigan, so we don't have some of the places that were mentioned, but the self serve frozen yogurt trend has finally made it's way up here and I am seeing them all over now. One local chain in particular claims all of their yogurt is gluten free and I have asked about it several times and am always...
  20. HavaneseMom
    Hi Kareng. I'm glad to hear you get TCBY and Dairy Queen soft serve. If you eat it, I feel safe eating it . I'm guessing TCBY has a good procedure to clean between flavors, but I will ask at my location just to make sure, in case a flavor with gluten was in the machine before a gluten free flavor. I see McDonalds soft serve vanilla is gluten free too...
  21. HavaneseMom
    Hi Everyone, I am just wondering if there is anything you know of that we can safely eat from Ice Cream or Frozen Yogurt Shops? When I was first diagnosed, I ordered some hand scooped frozen yogurt that I was told was gluten free, and then my husband pointed out that the scoops they use to get the frozen yogurt out are used in all of the tubs, so there...
  22. HavaneseMom
    Hi Again, Sorry the quote function doesn't work for me on this computer. To answer your question about if I know what caused the blip, I don't know for sure what caused that 2 month blip. Some of the foods that were bothering me were certified gluten free corn based cereals, corn pasta, tea, broccoli, tomato, anything spicy, chocolate, dairy and I know...
  23. HavaneseMom
    Hi icelandgirl, I'm still pretty new to this too, and I had a bad "blip" at 3 1/2 months that lasted about 2 months. It was sooo frustrating and I was pretty upset about it. Then one Sunday morning I woke up and miraculously felt better and now at 7 months, I am still feeling pretty darn good. The vets here told me similar things they are telling you, and...
  24. HavaneseMom
    Hi luvrdeo, I'm glad to hear your blood test came back fine, but sorry to hear your endoscopy didn't turn out as well. I just wanted to mention that I tried the low FODMAP diet for a couple of weeks after my GI Dr. suggested it and it really helped my system to calm down. I think my symptoms are different from yours, but I was struggling to feel better...
  25. HavaneseMom
    Thanks Mamaw! I will be purchasing one of these soon. It sound like they are worth it in the long run. I don't hate to bake and cook, but honestly never have much. It could be a nice hobby to take up now that I am over 40 and life is slowing down a bit.
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