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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED What Sweets Do You Eat When You Can't Eat Any Of The Things You Love?
tarnalberry replied to Sweetfudge's topic in Gluten-Free Recipes & Cooking Tips
dark chocolate - the ones w/o soy lecithin if necessary -
I have an unstable sacroiliac joint, and have thrown my back out in that area before - it sucks. The chiro recommendation is a good idea (though a structurally based one would be best, that can get both time and money intesive), but seeing a doctor of some variety to find out what the issue is would be good. (It's not necessarily cartilage damage (arthritis...
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ARCHIVED Corn Tortillas
tarnalberry replied to KayKay's topic in Gluten-Free Foods, Products, Shopping & Medications
You might try asking next time you're at the store - they're often on an aisle end in the stores I've been at in a number of states. -
ARCHIVED Testing For Casein Intolerance
tarnalberry replied to Joyous's topic in Food Intolerance & Leaky Gut
Other than enterolab's test, the most you'll get from a 'regular' doctor is an elimination diet. There is no serologic test for it researched, reviewed, and accepted by western medicine. -
ARCHIVED Need Help With Gluten Free And Dairy Free Foods
tarnalberry replied to JustMe75's topic in Gluten-Free Recipes & Cooking Tips
She can still have dark chocolate! There are a lot of companies that make dark chocolate without any dairy at all (hershey's does though ). My favorite is Endangered Species and Vosges. -
ARCHIVED Need Help With Gluten Free And Dairy Free Foods
tarnalberry replied to JustMe75's topic in Gluten-Free Recipes & Cooking Tips
No, I probably worded my response wrong - you do sound like you're being supportive. You may well be totally right that it's a fad - heavens knows we've all gone through (and will still go through, even as adults) plenty of our own. Mostly, I meant involve her in planning out how it'll work - including meal planning, snack availability, and nutrient content... -
ARCHIVED Need Help With Gluten Free And Dairy Free Foods
tarnalberry replied to JustMe75's topic in Gluten-Free Recipes & Cooking Tips
meat, fruit, veggies, eggs, gluten free grains, nuts, seeds, and legumes. really, it's lots of foods. fast snacks range from fruit (like a banana, or an apple with peanut butter) to eggs (scrambled is fast, served w/ or w/o rice cakes) to leftovers. and, of course, there's still lots and lots of regular things she can eat for regular meals. (here... -
ARCHIVED Celiacs In Seattle
tarnalberry replied to gluten free guy's topic in Introduce Yourself / Share Stuff
We do have a number of members in Seattle. (I happen to be on the east side.) Seattle's a pretty gluten-free-friendly place. Welcome -
ARCHIVED Celiac In The Family Tree
tarnalberry replied to CMCM's topic in Coping with Celiac Disease
the odds that are quoted aren't that you pass down the gene, but rather that you develop celiac. as there are many more people with the gene than activated celiac disease, at this point, we can't really correlate the two. -
ARCHIVED Nasty, Horrible Headache -- Help!
tarnalberry replied to Sailing Girl's topic in Coping with Celiac Disease
Better than that! You can test it! Make sure to eat foods that you *know* you're fine with for at least two or three days, then try corn, and plenty of it. (That's a quick and dirty way to test one item, anyway.) -
ARCHIVED New Member- Supplements
tarnalberry replied to Robyn G's topic in Coping with Celiac Disease
a good source of calcium, magnesium, and vit D3 is important (with a 2:1 ratio of Ca to Mg), as well as a B vit (like a B-50) and a good multi (with or without iron, depending on whether you tend to have enough, or not enough, and whether or not you're a frequent blood donor). regular exercise, ironically enough, at a moderate intensity, has been show to... -
ARCHIVED Oats?
tarnalberry replied to trishh's topic in Gluten-Free Foods, Products, Shopping & Medications
I got that out of my own meta study - around 10% of patients either having actual findings or dropping out of the study due to symptoms (about which I made my own conclusions), but have seen it quoted by real ceilac researchers. A lot of studies are showing no damage, or only small changes or symptoms, but generally no statistically significant change in... -
ARCHIVED Nasty, Horrible Headache -- Help!
tarnalberry replied to Sailing Girl's topic in Coping with Celiac Disease
I would also get the multi-day, sometimes incapacitating migraines. I was getting them often enough - at least once a week, often multiple times a week (which is a problem when they last 2-4 days) - that I ended up going on Topomax as a preventative. It's been quite effective, and I now get migraines on the order of a handful a year. (I developed migraines... -
ARCHIVED Oats?
tarnalberry replied to trishh's topic in Gluten-Free Foods, Products, Shopping & Medications
I have a box of that stuff, but haven't tried it yet. It is really just oats, there's no other ingredient. The reason they call it "Only Oats" is because it's produced in a dedicated field (not crop rotated with wheat, barley, or rye), and processed on dedicated lines. Hence, if you are one of the 90% or of celiacs who do not react to avenin, the oat... -
ARCHIVED What Do You Do When You Realize You Are Eating Something Bad?
tarnalberry replied to colorado's topic in Coping with Celiac Disease
I say, it's chemistry. If you give your intestines more catalyst, you'll have more reaction. (I'm speaking chemical reaction, not necessarily "manifested physical symptom".) Is it one-to-one? Sure doesn't seem that way. Is it some other variety of linear or geometric? Hard to say. But I can't fathom, physiologically, how it would be unrelated. So... -
ARCHIVED New gluten-free Bakery In Kent, Wa
tarnalberry replied to cruelshoes's topic in Gluten-Free Restaurants
I went there with three friends from work, and we got two pizzas and I got a day-old focaccia. I got a veggie pizza (with roasted garlic instead of green peppers) with no cheese with one friend, and the other two got a sausage and cheese pizza. The tomato sauce on the pizza was *quite* good, and the crust, thin-style, was good as well. The others liked... -
ARCHIVED Menu Recommendations For Pf Chang's?
tarnalberry replied to Molecular Dude's topic in Gluten-Free Restaurants
when my husband and I go together (just us, not as a bigger group), we share off the gluten-free menu (though he's not gluten-free). we *always* get the gluten-free lettuce wraps and the garlic snap peas. for an entree, we often switch between chang's spicy chicken, ginger chicken with broccoli, lemon chicken. we tried the dali chicken (which is new) recently... -
ARCHIVED New gluten-free Bakery In Kent, Wa
tarnalberry replied to cruelshoes's topic in Gluten-Free Restaurants
I may try heading there for lunch tomorrow. (I work in the area.) Perhaps I can drag a few coworkers with me too and we can have a cheese free pizza. -
ARCHIVED Elimination Diet Gone Wrong?
tarnalberry replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
bobbi, I know it seems like you're "messing up", but honestly, you're doing a great job. you're going with the flow, making adjustments, and taking it all in stride. keep up the good work! -
ARCHIVED Elimination Diet Gone Wrong?
tarnalberry replied to misdiagnosed6yrs's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would skip the onions and peppers, and go with the buckwheat and sweet potatoes. I'd add the onions back in before the peppers, but peppers can make *anyone* gassy in large quantities. -
ARCHIVED New gluten-free Bakery In Kent, Wa
tarnalberry replied to cruelshoes's topic in Gluten-Free Restaurants
unfortunately, there are only a few "approved" websites, that can be "allowed" in a post, so we can't share finds like these any other ways than the way you have done it. -
casein is the dairy protein - it is present in all types of dairy, from all animals, though different levels of subtypes. I've never found a cheese (or any other non-milk substitute) that was acceptable, and mostly do without). I use a raw cashew sub for ranch dip, but that's about it. I also miss cheese, but you adjust.
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ARCHIVED My Husband Just Doesn't Understand
tarnalberry replied to kali-mist's topic in Coping with Celiac Disease
What you describe is a husband who isn't concerned about working with you, but it's hard to tell from just one little incident. If he is the sort of person who will work with you, and makes a team effort of issues - regardless of whether they are yours, his, or both of yours - then do that now. Tell him you need his help, like some other problems you may... -
ARCHIVED Gluten In Other Grains/plants?
tarnalberry replied to Blondie's topic in Coping with Celiac Disease
Scientifically, "gluten" is a term for the plant protein in all grains. So, yes, there is technically corn gluten, rice gluten, etc. But those glutens are structurally (chemically) very different from wheat, barley, rye, and oat gluten, and do not cause the autoimmune reaction in celiacs that wheat, rye, barley, and oat glutens cause. -
ARCHIVED Question About Birth Control
tarnalberry replied to Ashley's topic in Gluten-Free Foods, Products, Shopping & Medications
besides lactose and gluten, though, taking three pills at once can be an awful lot on your system - that's a very high dose of hormones. that may well have played a roll in the symptoms you saw.