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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED New Diagnosis - Frustrated, Angy, Sad... Will It Pass?
tarnalberry replied to disneymom62's topic in Coping with Celiac Disease
I'm on my sixth year doing this - it gets easier. There may always be rougher patches than others, and I don't want to imply that a restriction is as easy as not having a restriction, but practice makes it easier, and a month isn't much time to get a *breadth* of experience/practice. Kudos! to doing so well on your first month! Kudos! to being honest about... -
ARCHIVED Tooth Whitening Gel And Anti-sensitivity Toothpaste
tarnalberry replied to Laurad-'s topic in Gluten-Free Foods, Products, Shopping & Medications
you'll want to call both companies. it *could* be hiding in the ingredients (albeit unlikely). -
ARCHIVED Eas Myoplex Beware
tarnalberry replied to Jeremiah's topic in Gluten-Free Foods, Products, Shopping & Medications
Oat gluten - avenin - is similar enough to wheat, rye, and barley gluten that 90% of celiacs do not react to it. 10% of celiacs do react to it, however. So, it's not exactly a black or white answer that can be had. -
ARCHIVED So Many Problems, Yet No Doctor Will Listen!
tarnalberry replied to ptkds's topic in Introduce Yourself / Share Stuff
btw, you can have asthma and never wheeze. it's a (frustrating) myth that you have to wheeze to have asthma. -
ARCHIVED Eas Myoplex Beware
tarnalberry replied to Jeremiah's topic in Gluten-Free Foods, Products, Shopping & Medications
The reason I disagree with this - specifically putting oats in a product labeled gluten free - is because it is GLUTEN (of the variety that celiacs react to) that is potentially a problem in the food item. MSG, corn, and other intolerances are all different issues - issues that may be related, but are not THE SAME IMMUNE RESPONSE, on a chemical level. ... -
ARCHIVED Anti-anxiety...short Term Medication- Suggestions?
tarnalberry replied to wschmucks's topic in Coping with Celiac Disease
be aware that it is contraindicated to be on 5htp and an antidepressant at the same time. (not saying anyone here is - I was on 5htp before starting an antidepressant (cymbalta, for fibromyalgia), and had to discontinue the 5htp. good to know about these things ahead of time.) -
ARCHIVED Acute Allergic Reaction
tarnalberry replied to Mother of Jibril's topic in Coping with Celiac Disease
if you were in a coffee shop that sells baked goods, it's not impossible that there could have been just about *anything* in your cup or on the table. it might not have been in the tea bag itself. -
ARCHIVED Eas Myoplex Beware
tarnalberry replied to Jeremiah's topic in Gluten-Free Foods, Products, Shopping & Medications
actually, it's not even quite true to say that it's only cross contamination that makes oats gluten free. oats are a more complicated question than just that. gluten - *technically* - is the protein in a grain. period. celiacs have somewhat usurped the world to refer to only specific glutens, rather than all of them, but technically speaking, all grains... -
ARCHIVED Hip/low Back Pain
tarnalberry replied to silk's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
a "frozen" SI joint *can* cause that much pain. I am prone to that problem due to hypermobility. quite honestly, I'd either call the dr. back and say "write me a script for PT right now" or get another dr. a good PT - along with the chiro, depending on the type of chiropractic - should be able to help you manage and strengthen the appropriate muscles in... -
ARCHIVED Tingling In Legs
tarnalberry replied to jasonD2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
tingling in the legs can be caused by all kinds of things. it can be neurologic, physiological (spinal or in the hip or leg), nutritional, etc. the symptom is probably related to a nerve, but the underlying cause can be many things. I would think that a workup with your doctor would be a good idea. (really, what I am getting at, is to rule out spinal... -
ARCHIVED Getting Frustrated With Daughter!
tarnalberry replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
oh my! Julie, I should have mentioned that I mostly meant that for your daughter - your husband is old enough to voluntarily work with you on these things. You are already far more generous than I am with my husband - I'll make something I know he doesn't dislike, and that's it. If he wants something that I tend not to buy, he has to buy it. As you say... -
ARCHIVED Getting Frustrated With Daughter!
tarnalberry replied to Juliebove's topic in Parents, Friends and Loved Ones of Celiacs
my husband did this as a kid. still is very picky. but he's not doing it to "punish" or "manipulate". not even (mostly) when he was a kid. he's a super taster. it's vital to remember that taste is a sense, and we all taste things differently. to him, a fresh, juicy tomato tastes *bitter*. yup, you heard me. (I love the things.) he is also very sensitive... -
ARCHIVED When Were You Diagnosed? As A Child?
tarnalberry replied to livingglutenfree's topic in Coping with Celiac Disease
Not sure when symptoms started, but I'm pretty sure it was adult onset, probably around 23. I was diagnosed at 25, and have been gluten free since. -
ARCHIVED Del Monte Canned Corn + Gluten-free Cocoa
tarnalberry replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
A good pet store will have good dog food and dog treats which will be gluten free (they don't need grains in their diets). We have SOOOO many different kinds of treats, none of which contain gluten, that you absolutely do *not* need to have gluten in your house just because of a dog. -
ARCHIVED Gluten In Sushi.
tarnalberry replied to OneScrewLoose's topic in Gluten-Free Foods, Products, Shopping & Medications
wheat is used in imitation crab to help it hold together and give it the texture of crab, rather than pollack. there are a few kinds of imitation crab that don't have wheat (I've seen them at an asian grocery store nearby), but unless you get to see the ingredient list on the imitation crab, I would assume that it has wheat. "glutinous" rice is just a... -
ARCHIVED Mustard Gluten Free?
tarnalberry replied to codyb87's topic in Gluten-Free Foods, Products, Shopping & Medications
I came across a couple fancy mustards this weekend with wheat, but it's clearly listed. ALWAYS read the ingredient labels, but there are many mustards without wheat. If it could have an ingredient label, but you can't read it... well... that's a risk I won't take unless it's a label I have memorized. -
ARCHIVED Whistler Restaurants
tarnalberry replied to fisharefriendsnotfood's topic in Gluten-Free Restaurants
the sushi place on the second floor of the section closest to the gondola - great sushi, and some gluten free options in there. (can't remember the name.) I've never had a problem eating gluten free when I've been there! -
ARCHIVED Feel Like We Are Back To Square One
tarnalberry replied to theclutterhouse's topic in Coping with Celiac Disease
Holy crap?! Have you seen the ingredient list for that dog food? "Brewers rice, corn meal, corn gluten meal, chicken by-product meal, dried egg product, animal fat (preserved with mixed tocopherols), flaxseed, vegetable oil, natural flavor, dl-methionine, l-lysine, l-tryptophan, preserved with mixed tocopherols, citric acid and rosemary extract, beta-carotene... -
ARCHIVED Need Ideas--is There A List?
tarnalberry replied to susiequsie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let's see... We tend to eat stir-fries, soups, stews, casseroles, chilis, and salads. Of course, I'm lazy, or the list would be longer. Here's the thread I have with most of my recipes (I haven't added much recently, but there are still something like 80 recipes on there...). All of them are gluten free. Virtually all are dairy free. Many are soy... -
I love sushi and have it often, but there aren't a whole lot of kinds of sushi that you're going to get that you can be certain you can have, particularly at a supermarket that's trying to see the ones with the most appeal to the common crowd. Go to a sushi restaurant (and many of them do takeout ).
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ARCHIVED Feel Like We Are Back To Square One
tarnalberry replied to theclutterhouse's topic in Coping with Celiac Disease
There are actually quite a few gluten free dog foods, but you won't find them in most grocery stores. Of course, you won't find a dog food that's *GOOD* for your dog in most grocery stores... And grains are not something that the majority of dogs need. (Caveat: every dog is individual. But, by nature, wild dogs/wolves don't eat grains, unless it's in... -
ARCHIVED Omg, gluten-free For 4 Years And I Think Family Is Allergic To Rice
tarnalberry replied to Merika's topic in Food Intolerance & Leaky Gut
lasagna- use avocado instead of cheeses and large, thin cut zucchini for the "noodles" spaghetti - use spaghetti squash for the noodles and whatever sauce you want to make creamy vegetable soups - use coconut milk (in small quantities) in combination with almond milk (or water) come on! give me some of the harder stuff you're having trouble making... -
ARCHIVED Dental Problems
tarnalberry replied to Megan6516's topic in Parents, Friends and Loved Ones of Celiacs
yes, severe dental problems are a strong indicator of celiac, due to malnutrition (not getting the vitamins/minerals he needs to properly form and maintain tooth mineral). good for your dentist for identifying possible nutritional deficiency. please continue on the testing! (though, it should be fairly straightforward, right? blood test and biopsy? is... -
ARCHIVED Anti-anxiety...short Term Medication- Suggestions?
tarnalberry replied to wschmucks's topic in Coping with Celiac Disease
Work with your doctor, obviously. Medication is there as just one tool available to us. Obviously, I'm biased (check my sig), but yoga can help - particularly if you take a pranayama class in addition to a regular class. It's not going to help now, or probably even next month, but a regular practice can help set you up to better deal with those stresses... -
ARCHIVED Omg, gluten-free For 4 Years And I Think Family Is Allergic To Rice
tarnalberry replied to Merika's topic in Food Intolerance & Leaky Gut
I'm enjoying WA, when I'm not griping about the cold, short days of winter (despite loving skiing/snowshoeing). (How's that for confused. ) How's LA? Honestly, grains are overrated. Potatoes or sweet potatoes, and other starchy vegetables, can pretty much entirely take their place in regular dishes. (I mean, spaghetti sauce over potatoes? Yum...