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Latest Celiac Disease News & Research:
Everything posted by MGR
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ARCHIVED Struggling To Get Better After Diagnosis.
MGR replied to Huxleberry's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'll be thinking of you!! -
I am still new at this gluten free life, I also have UC and have found that gluten triggers it and the D is severe. The last time I was travelling and being new at this, I got glutened several times in restaurants who said ,that my food was gluten free... At the end of my trip I not only had horrendous D but also blood! I've been back on strict gluten-free...
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ARCHIVED Gluten Free 5 Weeks Some Symptoms Getting Worse
MGR replied to motheroftwins2010's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'll be thinking of you.... -
ARCHIVED Given Up Gluten And Dairy..still Having Symptoms
MGR replied to ButtercupSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am glad! -
ARCHIVED Given Up Gluten And Dairy..still Having Symptoms
MGR replied to ButtercupSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi ButtercupSarah, I am not sure... I am not a doctor , maybe someone else will be able to chip in with this? Or you might want to ask your doctor more specific questions about this test. Hope you get to the bottom of this soon!! Cheers -
ARCHIVED Given Up Gluten And Dairy..still Having Symptoms
MGR replied to ButtercupSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again, here is a link to an article on IgA deficiency and ulcerative colitis- it is a bit specialised but jut go to page 8 and you will read how patients with this deficiency are very likely to develop celiac, colitis, etc... Open Original Shared Link -
ARCHIVED Given Up Gluten And Dairy..still Having Symptoms
MGR replied to ButtercupSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am glad I could help! With me it happened the other way round ... I have had severe joint problems all my life and i have always been trying to keep a reasonable weight to protect my knees- always on a low carb diet, not eating bread, restricting pasta, no cakes, etc. I even went on a ridiculously strict high protein diet called DUCAN and wondered why... -
ARCHIVED Just Spent 8 Days In Hospital
MGR replied to Lee uk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am really sorry you are not feeling well- hope you recover soon! Cheers -
ARCHIVED Need Some Dairy Free Pasta Or Rice Sauce Ideas Please
MGR replied to HavaneseMom's topic in Gluten-Free Recipes & Cooking Tips
OH, the mushroom powder... fabulous idea to flavour stews, soups, etc.!! -
ARCHIVED Given Up Gluten And Dairy..still Having Symptoms
MGR replied to ButtercupSarah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there, the symptoms you describe: extreme bowel urgency, almost constant diarrhea for years, blood in stool, gas, worst is the few accidents I have experienced (ONE IN AN AIRPORT!!). I have been hospitalized twice once with extreme pain, vomiting, diarrhea (no diagnosis, just pain killers)] ... sound like you have ulcerative colitis. I have had this... -
ARCHIVED Gluten Free 5 Weeks Some Symptoms Getting Worse
MGR replied to motheroftwins2010's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You said you had blood in your stool? Please don't forget to mention this to your GI when you meet him next!! I have ulcerative colitis as well as celiac and this is one of the first signs of a flare up- you really have to watch what you eat to minimise your D , because if it develops further the D will get so bad that you will not be able to hold anything... -
Dear moosemalibu, did you not mention in some post you also have some kind of colitis? This will give you D... And you are still healing... But my sentiments are with you, always this wretched D!! BIG HUGS!
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ARCHIVED Blood Blisters In Mouth?
MGR replied to melreis's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Usually, the first sign I have been glutened is that I get mouth sores, inside and outside.... The last time I got glutened my lip swelled up so much it looked like I had had Botox treatment!! Explosion of blisters afterwards- canker sores, blisters on my scull, forehead, legs, etc. not too many- Next day D which last for a few days... Nausea, Extremely painful... -
IThe last time I was in Spain, I even bought gluten free snacks and sweeties in motorway service station shops... I was really impressed!
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ARCHIVED Can Dh Be Strictly On Lips?
MGR replied to OHtummytroubles's topic in Dermatitis Herpetiformis
Hi there, I do get the blisters around and inside my mouth as soon as I ingest the tyniest amount of gluten.... First, intense tingling, like electric currents flowing around my mouth.. FIRE and an explosion of watery blisters around my mouth ( I generally get them on my top lip),, on the inside part of my lip inside the mouth, ion the palate and around the... -
Hi there, I think it is absolutely fab that you have decided to grab this opportunity of a lifetime- I also travel a lot for work and I am already crapping myself with worry about the ins and outs of international travel- I do feel your worry, especially if you happen to be among non celiacs, it is tricky. However, I am also in Europe - well, live in...
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Congratulations, my dear... I am soo pleased for you!
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Mmmmmm nice, I had friends over and I tried this last night!
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I can completely sympathise with your story .... Some weeks ago we we re visiting some Friends in The countryside and suddenly an hour visit turned into the whole afternoon and a barbecue and sausages came out, hamburgers, buns, salad and dressing, before I could even lift my hand and say .... But iiiiii aaammmm GGGFFF.....! And not even my husband thought...
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ARCHIVED Just Diagnosed...need Advice/moral Support
MGR replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm in Scotland, in Edinburgh - I came here 25 years ago to improve my English after uni ... And married a Scotsman.. We are very high up into the North and sometimes even get to see the Northern Lights on a clear night .... -
ARCHIVED Shopped But Feel Like I Failed!
MGR replied to GFAnnie's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree with BARTFUL here, I don't take any chances her anymore- I have learned this the hard way.... I have been gluten-free only for two months now and I keep glutening myself precisely in these situations... Foods that should be naturally gluten free but are produced in shared facilities ( for example arepas with corn flour), gummy bears from my daughter... -
Gluten Ataxia?
MGR replied to Krystal K.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am reading these stories and I just want to cry....! I have felt like a space cadette all my life, I am now old and have just been diagnosed- I also never went to the doctor for these issues as I thought they were part of my personality. I am an academic and sometimes I go to talks where I am I specialist in and just cannot make head nor tails of what they... -
ARCHIVED Just Diagnosed...need Advice/moral Support
MGR replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi again, just back from work.. For my waffles I usually use gluten-free self-raising flower. I am in UK and use a brand called Dove,s Farm which is great, they have all sorts of flowers (gram flower, rice flower, gluten-free bread, buckwheat, etc.) which I use for different things I make. I just make the mixture up - and on it goes onto the waffle maker... -
ARCHIVED Just Diagnosed...need Advice/moral Support
MGR replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am not great at eating in the morning- but I absolutely need to have my cup of coffee... Then I have fruit, usually a mixture- melon, apple blueberries. A bowl of natural yoghourt and maple syrup- on weekends I often make waffles or drop scones for breakfast, again with maple syrup. Eggs and bacon. .... Cooking gluten-free is the easy part, CC and eating...