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RMJ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RMJ

  1. RMJ
    It might, since barley is one type of cereal grain. In the US it would say what types of cereal, meat and seeds so I’m guessing you’re not in the US. I don’t know what the labeling rules are for pet food in other countries.
  2. RMJ
    I agree. I used to be responsible for production of antibodies in rabbits. The antibodies are used in medical diagnostic tests. We’d give the exact same dose of an antigen to a number of highly inbred rabbits and they’d produce widely varying amounts of antibodies.
  3. RMJ
    Does it contain barley? I’ve noticed that a lot of pet food contains barley and barley contains gluten. If no wheat or barley it should be ok.
  4. RMJ
    The rate of decline (which is calculated as a “half-life”) will be the same so if the antibody level after glutening is lower than your original level when diagnosed it will take less time to get back down to normal.
  5. RMJ
    Normal mucosa viewed visually during an endoscopy doesn’t rule out celiac. Whether or not celiac damage can be seen during endoscopy depends on the magnification of the endoscope used.
  6. RMJ
    I will second what @trents said. Eating gluten right before a test will not affect the antibody levels. Antibodies aren’t created that quickly. I also thought I was a silent celiac. Once I went gluten free I just generally felt better.
  7. RMJ
    Allergist definitely wrong. The 261 is not celiac antibodies.
  8. RMJ
    When I was diagnosed I didn’t think I had any symptoms. Turns out I did, and I feel better gluten free.
  9. RMJ
    Labs vary a bit in what they call normal for total IgA. According to Mayo Clinic your daughter’s value would be normal (scroll down to Reference Values). Mayo Clinic Total IgA testing
  10. RMJ
    OK! That tells me that the <1.0 result is definitely the TTG test, and the 261 is total IgA, which is in the normal range. Total IgA is often run with the celiac tests because if the total IgA is low the other IgA tests may not be accurate. It is possible that the allergist was confused and thought that the 261 was a celiac test. The GI is correct...
  11. RMJ
    Do any of the numbers have units after them? This would help to figure out which number goes with which test. For example is it 261 mg/dL? Is it <1.0 u/mL?
  12. RMJ
    It seems like some doctors really don’t like to give a diagnosis of celiac disease! You have positive biopsy and some positive bloodwork. One doesn’t have to have all the antibodies positive to have celiac disease. Sometimes when doctors want to do more testing it helps to ask: “ What difference will the results make to your recommendations for treat...
  13. RMJ
    I can certainly see why you’re confused. Something doesn’t make sense. I don’t see a positive test for celiac antibodies that the allergist could have used for diagnosis. What is shown isn’t a comprehensive panel. Is there a result for the Gliadin IgA or IgG? Sometimes a “reflex” test means they may do more testing, depending on the original results. ...
  14. RMJ
    As Trents said, it is not clear which tests your daughter had. TTG could be TTG-IgA or TTG-IgG. IgA could be TTG-IgA, DGP-IgA or total IgA. Could you post a photo of the actual results?
  15. RMJ
    I have not run into either of these situations. There aren’t many prescription medications that contain wheat (for example, as wheat starch) as an ingredient. Some manufacturers may not be willing to claim a medication is gluten free, even though based on the ingredients it shouldn’t have any, so any gluten would be contamination. In that case I w...
  16. RMJ
    There is this list, although it hasn’t been updated since 2019. Gluten Free Drugs You can also search for the drug on this NIH website: Daily Med Enter the name or NDC# of the drug, click the search symbol (magnifying glass), then scroll down to Ingredients and Appearance. If you have the drug already the container should have the NDC# ...
  17. RMJ
    It looks like you have two tests that indicate celiac disease. One does not need to have all of the tests positive in order to have it.
  18. RMJ
    How great that you want your friend to have a healthy living environment! To answer your specific questions: Oven: I’m assuming this oven does NOT have a fan in it. Unless there is dry wheat or rye flour loose in the oven it should not be a problem sharing at separate times. If cooking at the same time it should even be ok if the gluten free i...
  19. RMJ
    I don’t know anything about My Spice Sage, but spices at Spicely.com are certified gluten free and you can order online from them or via Amazon.
  20. RMJ
    I wouldn’t always call it a pattern of negligence. I had trouble with flours from a very well respected company that is frequently recommended by those with celiac disease.
  21. RMJ
    I know you said it wasn’t a question, but as an asymptomatic celiac I can give an answer. I don’t know if I’ve been glutened unless it is a prolonged exposure that shows up in increased antibody levels at my yearly checkup. Therefore I have to be extra careful.
  22. RMJ
    That sounds like a biopsy of the stomach. Are there any biopsy results for the duodenum?
  23. RMJ
    King Arthur’s gluten free flours (Measure for Measure and All Purpose) are fortified with iron and some B vitamins.
  24. RMJ
    You can eat while others are eating as long as they’re not distributing crumbs all over the table. My husband is not gluten free and often eats meals containing gluten at the same table where I’m eating my gluten free meal. A simple brush down of crumbs and hand wash should be fine as long as your food is on a plate or similar and not touching the act...
  25. RMJ
    My Ttg level normalized in a year but took me 6 years to get my DGP IgA level down to the normal range. I thought I was eating gluten free but to be in the normal range, if I eat processed foods they have to be certified gluten free. If your result was reported as >250, who knows how high it really was! You’ve gotten it down a lot and your symptoms h...
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