Jmg
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Latest Celiac Disease News & Research:
Everything posted by Jmg
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ARCHIVED Taking the lactose intolerance seriously
Jmg replied to SueMD's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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Fun fact my optician shared with me today. The glasses used in the Phantom Menace podrace scene: Were opticians glasses with the outer frame removed. Amazing but true!
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Yes it was warm, close, and I started to feel hot and nauseous. If I'd not gone outside I may have been sick. I had some gluten-free muesli, fruit and yogurt for breakfast which I dont have often. So maybe that was enough. I'm not going to worry about it anyway and just enjoy the good news on the eye front
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He had a machine I'd not seen before, it was rather good. It showed me a light and blew air in my eyes, which I think was about pressure, worked out my eye capacity by showing me a blurry balloon and then making it sharp and if I'd continued long enough I expect it would've told me what I had for breakfast! i had the old school focus stick thing which...
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Just lett the optician, looks like I'm a ok, he says he can't see anything amiss. The symptoms are neurological so nothing for him to see really. He leans towards the ophthalmic migraines rather than neuritis as I have no associated pain. My vision is pretty good, no need for glasses just yet. i was a bit embarrassed, halfway through the exam...
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Fingers crossed you get the answers you need. The site CyclingLady linked to above is really good if you want to get further information on the diagnostic process and / or celiac in general. Best of luck!
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ARCHIVED Now it's my turn
Jmg replied to Feeneyja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No it's a natural response and I share it too. It's nearly 3 years since I had my negative result and I still wonder about whether its NCGS or Celiac that slipped through the net or something else or its all in my head and I need to see a shrink It gets easier in time but I will always wish I'd had the certainty of a definitive diagnosis. -
It's good but this will arrive in the inbox of a doubtless overworked customer service operative. Their first impulse will be to send you a standard generic boilerplate text copied and pasted from the website.Your objective is to get the best most comprehensive possible answer. Ideally by getting them to reach out to the production staff. So my suggestion...
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ARCHIVED Celiac Night Vision
Jmg replied to PCB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In which case you've done them a good service with such a thorough and fascinating account of your own symptoms and efforts to resolve them. I've really enjoyed reading this thread and hopefully it will prove useful to others. Thanks PCB! -
G'day and welcome Going gluten free helped but it didn't get rid of the SD. The best shampoo was Nizoral due to the Ketonacazole active ingredient. I also find dairy, especially milk is really not good for my skin. Check this thread out too: https://www.celiac.com/forums/topic/75943-seborrheic-dermatitis/#comment-977173
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ARCHIVED Only Day 7 of Gluten Free
Jmg replied to MrsPeterson17's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I discovered omelettes for breakfast after I went on the diet. It gave me a chance to incorporate more vegetables by stirfrying them first and using them as a filling. A 2 egg omelette with spinach, peppers and mushroom filling sets me up for the day and because of the protein in the eggs I didn't 'crash' at 11am and start snacking. I switch the fillings... -
It does thank you That sounds much like what I experience. I like that idea a lot more than MS... No I've been spared migraines thankfully. The blood sugar link is interesting. On gluten my blood sugar often spiked and crashed. The other day I just seemed to crave sugar and alas I gave in. I'm wondering whether that, or some cross contamination...
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The GP has sent me to the opticians for an eye test. My blood pressure is ok and my last diabetes test a year ago was absolutely fine. She doesn't think it sounds like MS although she admitted she wasn't sure about what else it could be. Unfortunately I don't have much faith in my local doctors surgery. I've seen 7 different doctors the last 7 times...
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ARCHIVED Only Day 7 of Gluten Free
Jmg replied to MrsPeterson17's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You're most welcome Everyone here was once in your position and remembers just how confusing and sometimes scary it could be. The good news is that as you get more experienced in the diet that feeling lifts. The noisy tummy quietens down. You may get unexpected health bonuses, I had chronic lower back pain for 20 years which suddenly resolved, who would... -
Yes! I'm one of the first people to import bag balm to the uk and can attest to its wonderful moisturising power. I use it often and haven't detected any side effects at all. In fact, moost of the time I forget it's on. Moore and Moore people are using it over here and moo moo mooo the moo of moo. When moo the mooo moo. Moo moo juicy grass, moo moo moo moo...
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That's very interesting thank you we don't get much sunshine here in the uk so vitamin d could be an explanation. I do have some calcium & vitamin d supplements which I haven't been taking, so that could be an option. I'll see whether the gp has any ideas first.
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My heart has been checked out more than once. I've had the 24 hour trace, several ecgs and an echocardiogram due to the chest pains I get, luckily something else which has largely resolved on the diet.
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ARCHIVED Waiting on Results/ Still Sick
Jmg replied to mnburis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
From a quick google I think the band cell result is indicative of infection or inflammation, which supports your feeling that something is amiss. Hopefully the celiac result will supply more info. -
Thanks for your reply I don't get a headache afterwards, aside from the worrying which I try and quickly suppress! My vision is pretty good. Last time I had an eye test I did have a slight decline but not sufficient to warrant a prescription for glasses. I am due for another test though, that's something else I need to address...
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Yesterday morning I found my vision greying out on my right eye. It didn't last long, maybe a couple of minutes. The best way I can describe it is as if I'm looking out for a grey cover which is partially blocking my vision. Sometimes it's almost completely blocked, on this occasion it was just partial across the top of my vision. I've had this before for...
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ARCHIVED Waiting on Results/ Still Sick
Jmg replied to mnburis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hopefully they will be able to see you soon. Ignore my last comment about a b vitamin, if your getting shots it shouldn't be required obviously... I didn't understand your statement about your blood band %? Maybe if you can expand on that one of our more knowledgable users can help? -
ARCHIVED Waiting on Results/ Still Sick
Jmg replied to mnburis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
OK, that's good news, not the milk in the cabinet, that you've not cut gluten! Stick with it and wait for the test results. If they're positive then it will be another endoscopy, but this time with the biopsies. If negative, don't despair. Your GP may still refer you but if not you can try the gluten free diet for yourself. Keep a food diary and follow... -
ARCHIVED Waiting on Results/ Still Sick
Jmg replied to mnburis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello and welcome Its good that your doctor has ordered the celiac test, not sure why your GI didn't, as you say perhaps he was presupposing IBS... You mention cutting out food, you haven't tried cutting gluten yet have you? That can throw the results of any testing. You are best to stay on it for now at least, once testing is done it would be worth... -
ARCHIVED Possible coeliac.. help explain numbers?
Jmg replied to Kez90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey Kez and a belated welcome to the forum Sorry your post didn't get an answer, sometimes one slips through. Re your results. The number prefixed with the H is the level of antibodies detected. The second figure should be the range beyond which the test is considered positive. Usually that's in the form of a range like this: So for the... -
ARCHIVED PLEASE does this look like DH
Jmg replied to danielle.f's topic in Dermatitis Herpetiformis
This may sound weird as celiac is a serious auto immune disease... but... If you're diagnosed with celiac and follow the gluten free diet you could look forward to all of this: going away, without taking a pill or doing anything other than changing the way you eat. So don't be afraid of pursuing a diagnosis! Stay eating gluten, go to your doctors...
