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Jmg

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Everything posted by Jmg

  1. Hi James, I make my own broth/stock from both chicken and beef. I can't answer the technical questions but on this: I think the concept is sound. A lot of people who are interested in the health benefits of broths and stocks lack the time or inclination to prepare them themselves. I could see people being interested providing that they were reassured...
  2. Hi Lily, I'm NCGS. I solve murders loosely related to the US Navy in a variety of sunny locations with the help of a bunch of wisecracking workmates. It's a tough job, a typical case takes 48 minutes to crack. Oh who am I kidding, that's NCIS. I'm living gluten free without a diagnosis. Keep this between ourselves but I've been here for a couple of...
  3. Hi This site almost always has the goods! Check this thread out: It was first noted by an English Gastroenterologist and is known as Bralys sign!
  4. Jmg

    ARCHIVED Please help!

    I don't have anything to add but my sincere best wishes. It's an awful story. I wish you both the very best of luck.
  5. I understand, I did go through testing and biopsy but the result was negative and given the gluten challenge was very unpleasant it was almost worse to be told it was negative than to have an explanatory diagnosis. It did however provide me with something more important, my own proof that gluten was a problem for me. I live my life now as if the diagnosis...
  6. Hello and welcome The good news is you've found an excellent site for info and support. The even better news is that with a positive attitude like yours you should find adjusting much easier than most. I wish I'd been so optimistic when I first put two and two together! This by the way: Is actually not unusual. Everyone thinks that the classic...
  7. It's possible they were just ignorant about the dangers of cross contamination from shared fryers. There's a lot of people on here who were given no guidance whatsoever by their doctors after diagnosis, just told to avoid gluten. As Ennis says above that's actually harder than it sounds and if you're serious about it requires a level of commitment and some...
  8. I'm sorry this has happened the first time you've gone out It is a shock once you've been off gluten for awhile and find yourself reacting much more to what was probably a tiny amount than you ever seemed to before you went on the diet... Hopefully you can take some consolation in that at least now you know the cause and what to do and because of that you...
  9. Hi and welcome You don't mention the symptoms that have led you to food testing but CyclingLady's point is really important, if you've not excluded Celiac that should be your first move before embarking on a diet that excludes gluten. It's a lot easier to get tested now than remove it and then go back on it for tests. I also agree with Whitepaw...
  10. I wonder if they assigned that particular journalist by chance or if someone in the editors office has a wicked sense of humour?
  11. I know some with NCGS are more relaxed about their diets like Jen's friend above. If you test negative for celiac and find that you can do this then you will doubtless find the diet a lot easier and various social situations more accessible. Sadly I don't find that works for me, I wish it did! I seem to be quite sensitive to small amounts of cc and...
  12. I was at my local pharmacy a month or so ago and chatting to the pharmacist. She said she was doing 35-40 omneprazole prescriptions per day - this in a tiny pharmacy serving quite a small area. I think there's an epidemic of prescribing this drug here in the UK at present. The worrying aspect is that a lot of people who go in it for that 4-6 week period...
  13. Because coffee manufacturers are rational actors looking to make a long term profit. Whatever temporary savings are made from bulking out their product with potential allergens would be dwarfed from the destruction of that brand once people started being sick and the authorities, media and retailers started testing the product. Just think about it, it doesn...
  14. The issue is not the accuracy of the test but that a percentage of coeliac positive patients test negative to this test. See IronicTruth's post further up this thread for the other tests you need to request. My suggestion is to write down what you want to say before you next visit a doctor. Put some questions in there in bullet point form to make sure...
  15. I've had some ill effects this week which I'm 90% certain link to a bag of 'gluten-free' muesli which I recently bought from a UK supermarket. The oats within it are labelled gluten-free, but I'm either getting cross contamination or reacting to these oats in themselves. Just wish I knew which!
  16. As Tessa says, you run the risk of a false negative. Most doctors will insist you do a full challenge to ensure an accurate result. It could be worth it however as you're struggling to stay 'honest' on the diet at the moment. A diagnosis may help you with that? This is besides the other benefits, certainty, easier to get follow up checks on nutrient...
  17. Hi and welcome You've posted on quite an old thread so most of the users above may no longer be active. You mention you're new to being gluten-free. Have you had any testing for celiac? That may be something you want to consider before you go fully gluten free? Either way this is a good site for info and support. Hope you enjoy your time here...
  18. I think Jen above has the right idea. However well you communicate it they won't develop the kind of reflex responses, at least soon enough to keep you well. Your current level of glutening is putting your long term health at risk so you need to act now and Jen's approach offers the best chance of swift results without ending the relationship. I do...
  19. Have you seen this? Open Original Shared Link
  20. That's an interesting list. I've rationalised having the odd ice cream on the basis that there's not a lot of dairy in them these days, Open Original Shared Link Although I don't know if my problem is with lactose or at least solely, I think it's maybe the casein. Reason being is that I don't get major GI symptoms, other than some bloating, its more...
  21. Jmg

    ARCHIVED POTS

    Ye...es... ! I don't have a complete answer. I do have the occasional reminder of it, but its nothing like what it was before. My blood pressure is ok. I've had high bp in past but that was when I was all over the show. I went through many years very messed up without properly understanding what was happening to me. So now since I'm gluten free I've had to...
  22. Can you have soy Cristiana? I've developed a taste for soy latte's now. At first I wasn't keen but I persisted and now I quite enjoy them. They're only an occasional treat but its nice to sit in a Costa or Starbucks and have a similarly ludicrous sized drink to everyone else once in a while I also have the Alpro or Koyo coconut milk for cereals. I much...
  23. Sorry if that's how it appeared that wasn't my intention. I just thought it was a funny video and reading Ennis's post about dog milk reminded me of it. Anyway, apologies! This is about where I'm at. I've never been a big dairy eater anyway. In fact I think I subconciously knew it didnt agree with me and that made refuse it as a child. I did gradually...
  24. Jmg

    ARCHIVED Pre diagnosis

    Stay on gluten. Keep pushing for answers. Get as comprehensive testing as you possibly can. If celiac is finally excluded do not discount the possibility that gluten is a problem for you nonetheless: Open Original Shared Link At that point you have nothing to lose and potentially much to gain from trialling the gluten free diet. Best of luck...
  25. Jmg

    ARCHIVED POTS

    Yes I had it when on gluten. It's largely resolved now, very occasionally I'll get a slight recurrence. I never know whether to put that down to a cross contamination glutening or something else, but its not happened enough to force me to go through the hassle of seeing a doctor about it...
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