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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Hello and welcome You've come to a good place. Obviously you can't get a diagnosis but I'm constantly amazed by the breadth of knowledge and experience here as well as the gems hidden away in past conversations. It's helped me considerably. I think it's possible (if unusual) for caramel colour to have gluten and for Modified Food starch to...
  2. Jmg
    Hello I had a similar experience to you, a 'Eureka moment' a big improvement after removing gluten then a diagnostic journey that ended in an unexpected negative celiac test. After my scope I went gluten free for good and I'm never going back. I saw you were going to do the same then this: I think your Doctor seems smart, I've met a few...
  3. Jmg
    Good luck, hope you get the answers and certainty you seek. Remember if tests are negative there's nothing to stop you returning to the gluten-free diet, you already know it can resolve your symptoms.
  4. Jmg
    Sara, well done for getting through the testing process. It's not easy and I'll bet you're relieved its over. Having said that I can't reiterate the following point more strongly: I share so many symptoms with you and I tested negative, blood and scope. However I'd gone gluten free enjoyed symptom relief then saw them return on the challenge...
  5. Jmg
    Hello and welcome Obviously no-one here can diagnose you but much of what you say is strongly suggestive of celiac or gluten sensitivity. As you doubtless know celiac testing process is often not straightforward. Your 12 week challenge is the usual timescale doctors recommend, I think I managed 8 and didn't get a positive result. But that doesn't mean...
  6. Jmg
    Ah shucks
  7. Jmg
    Yes that would be awesome! I guess if the blisters are forming the reaction is ongoing and the antibodies should be there. It certainly seems logical. I like that your dermatologist is prepared to go back 4 times to establish, sounds like she understands its a difficult one to pin down. I hope you update us on how you go on. The last time I ate gluten...
  8. Jmg
    That's very interesting. I've improved markedly since I went gluten free, but its not entirely resolved. I do get the itching scalp for instance. I'd thought fasts and juice cleanses were a bit unsupported by evidence but maybe I should take another look...
  9. Jmg
    I just think he hates potatoes. If he's not whipping them he's beating them.
  10. Jmg
    The endoscopy is the 'gold standard' for diagnosis, most doctors won't diagnose without it. Although you may find if your tests are very high on the range and your past medical history that a doctor may diagnose without it. It's unlikely, but this is a difficult disease to diagnose. Some people heal very quickly on the diet. Damage to the intestines...
  11. Jmg
    Hi Dave and welcome I tested negative but have big problems with gluten so I'll answer and maybe others will follow suit. This seems back to front. Most people have the blood test then the endoscopy. So it's unusual to see other way round. If you've only just had the scope the biopsy results may still be to come? I take a B complex...
  12. Jmg
    Yes this is not uncommon They screen for this, or at least they should (see below). You need a full celiac panel: Anti-Gliadin (AGA) IgAAnti-Gliadin (AGA) IgGAnti-Endomysial (EMA) IgAAnti-Tissue Transglutaminase (tTG) IgADeamidated Gliadin Peptide (DGP) IgA and IgGTotal Serum IgA Some more info and links here I don't have celiac...
  13. Jmg
    Can you post the name of the lab where you had this test? Maybe a quick google will reveal what their criteria is and what level of hard science is underpinning those suggestions?
  14. Jmg
    I never thought I'd see the day! Who are you and what have you done with Ennis?
  15. Jmg
    You're welcome I'm glad it was of some help. I had a look and found the product I was thinking of, it's called GliadinX and it's discussed here There's also an account from another forum member of a similar sounding product here: As above I haven't used either product so I can't speak for their effectiveness, but next time I travel I am...
  16. Jmg
    My mind is boggling at wtf he's actually doing to the potatoes in question. Dr Freud would have a field day. I think I'd stay away regardless of gluten...
  17. Jmg
    What is your objective? If it's a diagnosis then you should prepare for a gluten challenge, you could also ask about a celiac blood test to improve your chances of a diagnosis. It can be rough going, but it's the only way to get accurate test results. Be warned however, some people with a gluten problem won't test positive and there's no treatment at the...
  18. Jmg
    As pikakegirl says above a food diary is a good place to start. Just carry a small notebook, or use a smartphone note app to jot down what you eat, when, and how you feel. You can try simplifying yr diet and then gradually adding foods one at a time and monitoring yr body's reactions. Maybe you will identify some trigger foods which disagree with...
  19. Jmg
    Hello and welcome back I'm not sure where you had your test but my understanding is that the main Celiac centres don't recognise the fecal test. eg Open Original Shared Link As for the genetic testing, it can't be used to diagnose celiac but it can help to exclude it. The standard testing procedure is a blood test, ideally including...
  20. Jmg
    Hi and welcome You sound like you've found your issue and I understand you can't wait to cut gluten, but you do need to be eating it for an accurate diagnosis. It's a lot easier to stay on it now than go back on it after a gap, a 'gluten challenge'. When you get your referraal for the endoscopy you can call the clinic and ask them if they can let you...
  21. Jmg
    Yes I felt the same way when I discovered a fish and chip shop on Anglessey that had gone completely gluten-free. I could just order and eat, no explanations, no worries... Seeing the Isle of Wight on that link has sent me right back to childhood memories, Shanklin, The Needles, Blackang Chine, Coloured sand from Alum bay! Happy days!
  22. Jmg
    Before I cut gluten I knew I had 'issues with bread' and I knew some foods made me bloated etc. I'd switched from lager to bitter ale because that seemed to give me less bloating for instance. I knew I had to keep an eye on too much sugar. My answer to digestive issues was to hit my system every morning with a massive bowl of porridge and milk with a generous...
  23. Jmg
    Is that the chunky one? I really like it. Like you say it's really tasty. I often have it with an egg as a quick meal, but I could well see it as a pasta sauce or pizza spread base.
  24. Jmg
    Here's an interesting article my sister sent me about gluten free items being cheaper in the 'normal' aisles than in the free from section: http://www.moneysavingexpert.com/deals/deals-hunter/2017/05/23/gluten-or-wheat-free-find-hidden-bargains-instead/?utm_source=MSE_Newsletter&utm_medium=email&utm_term=31-May-17-16788361&utm_campaign=nt...
  25. Jmg
    Symptoms can last for months, I think our own CyclingLady said that effects from her last glutening lasted 6 months. They will go eventually however. In very rare cases of refractory celiac they don't, but this is, extremely, rare. Try and take heart that at least you know the cause of the anxiety. I find it a lot easier to cope with now because I know there...
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