Rusla

Thanks for the soda bread recipe. There isn't enough of me this week.

I have never had stollen so I must be missing something. I am looking for a good melt in your mouth shortbread cookie and Irish soda bread recipe. I have to do them for a wedding and I love shortbread anyway.

It is not so many are getting it all of a sudden but so many have had it for such a long time. The thing is many doctors did and still do go by the old ideals that Celiacs have to be rail thin etc., etc. The thing is with the research more information is getting out and with younger doctors coming in or some who are trained differently are now finding it where others have messed up. Not only that but we are now taking matters into our own hands and doing more research and pushing the doctors.

I personally had to practically abuse them into doing it and I had to tell them how to do the tests because they were totally clueless. This is why more of it is coming to the surface because they are now dealing with us, who are better educated and do not think that doctors are gods and everything they say is gold.

Because doctors can't think outside of the gluten box.

No, there is no stool test for this disease.

While I am at it the reason doctors hate Enterolab is because they declare there is a test they do with stool to prove Celiac Disease. Many of the leading researchers in this disease have asked them to reveal the means they use so, they could duplicate it in their labs to see if it is accurate. Enterolab refuses to tell them how they do it or even show where they say their proof comes from, most of the time they refuse to answer the letters and calls from the researchers.

The doctors are also leary of Enterolab because everyone Enterolab tests they say have Celiac Disease which would make almost 100% of the population Celiac.

I was at a Celiac Conference where the Canadian authorities on this disease were there and they work in conjunction with the researchers in Maryland. They brought up Enterolab without mentioning their name. All they said was the lab in Texas. We all knew which one they were talking about.

Holland America not only knows what Celiac disease is but they will definitely accomodate.

I would be compelled to sign said person up to bring a large rat poison lasagne. Then I would tell her that gluten and her pasta salad has the same effect on you as that rat poison lasagne would have on everyone else.

As for nail polish even that I check for gluten. If even a minute amount of it flakes off into something I am eating and it has gluten in it I am sick. For me a minute amount of crumbs that may get on my hand then if I eat something I am sick. It takes such a small amount to make me very ill and have my DH break out.

Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

There are far too many bumps here, no wonder my headaches.

Anyway Armetta and Happygirl I have sent you the letter, let me know if you got it.

I use Harvest Sun I believe it is, they are organic and list glute-free etc. on the package.

i am sick today and no i was not glutened. probably not the flu either, but some ongoing problems that i am seeing a doctor about on tuesday. the awful thing about being sick is we were finally having some friends and their kids to dinner today. i had set the table yesterday and made the rolls and put them in the freezer to bake before dinner. i had to cancel. that is such a bummer.

if anyone has any questions, please PM momma goose (lisa).

if you are sending in a letter, please send it direct to happy girl (laura) as she is a computer expert and is putting everything into the right form. PM her to get her email address.

carla and rachel, i have not received your letter. if you decided not to do it, please let me know. it is really OK if someone does not want to write a letter, because they just don't know what to say.

i am now off to the shower, clean pj's, my teddy bear and back to bed.

Armetta,

I am so sorry you are not feeling well. Believe me I know what it is like. I am still sick, I have used six boxes of kleenes and have bronchitis and worried about pneumonia at this stage. So, be careful and if you don't have to go out to work, like myself. Then, by all means don't.

Hugs,

Lynne, my dear friend,

When I came on here a year ago, yes a year ago hard to believe it has been that long. You and many others were the ones who helped me and many other newbies make it through the muck and mire of this disease. You were and are always there to help others. As we are like a family that most of us have never met each other in person, families are supposed to help each other. As you helped us it is our turn to help you back.

There is not much we can depend on in life with this disease but we know we can depend on being able to lean on each other. The Celiac community seems to bind together more than most I have seen. For such a solitary disease because of it's underlying issues, it is what binds us together. I hope that these letters help you with what you need.

Hogs and gluten-free Quiches,

Rusla

Theater's have not used real butter for decades. Maybe the staff says that is what it is but it isn't. Their buttered popcorn always made me sick. They refer to it as a butter topping meaning it is not butter. If by some fluke of fate it is real butter you could be reacting to the casein in the butter which, for many Celiacs causes the same reaction as gluten.

I considered eating at Denny's a big mistake before I was Dx'd, I would consider it a bigger one now. Food poisoning is for everyone.

I have lost more than 10 teeth in less than 5 years and my teeth that are left, break and crumble constantly.

I don't know about your bear claws but our bears have sharp claws. But the edible type up here are like a cookie with whipping cream in between the two pieces and chocolate on the outside over the tips. So, I bet we can use a gluten-free shortbread recipe for them or any other type of gluten-free cookie recipe.

Well, how I handle it is I say, "I am sorry but I have a very severe deadly allergy to that wheat glutens which include, rye, oats, barley and malt."

I also have a deadly allergy to wasps, hornets and bee's and would most certainly not put myself in a postion where I would have to enter a room full of them so, to me wheat is no different.

i don't know about acrylics but I do know the OPI strengtheners are not gluten-free. I too would like to know about the acrylics.

I am so thrilled about this as it is a step to making our lives easier.

Now for more good news the After Eight Chocolates including the new Baily's Irish Creams are wheat/gluten-free and Ganongs Chocolates in Canada are also that way. I talked to the head of QC in Canada, whose mother is Celiac and he says there is absolutely no wheat, rye, oats, barley, malt or gluten in anything and after every flavor the machines are heavy duty sprayed a minimum of seven times. They take the allergies very serious and especially him because of his mother's Celiac problems.

Here is a story on nodules. Mine were inconclusive and I killed them with synthroid. However, a friend of mine had them and before they got them out one broke and spread down into her uterus and she had to have a hysterectomy at 28.

I suggest you get them out.

First; you need to know how low her B-12 is, if it is pernicious anemia it is very dangerous. She could be in the stages where she does not remember phone numbers etc. She may have prickles in her feet and hands that without B-12 will get considerably worse. She can be come paralyed with Pernicious anemia, I was two points away from that. After paralysis is irreversible brain damage which also starts on the way to paralysis.

There are still things I can't remember and I know when it is dropping because I get prickles in hands and feet and can't remember much.

She should be on shots to start with, if it is very bad then she may need iron infusions. As I did not want to take shots for the rest of my life because mine was that bad I would have to we tried normal pills but I could not absorb normal B-12 (should have been a clue to the dope GI I had at that time). I take sublingual B-12, they will go right into the blood stream, no swallowing they dissolve under the tongue, they taste good.

Unfortunately, they do not manufacture their own food. So the whole thing is they have to go with what their supplier of said merchandise had on the packaging or told them. The fault lies in the manufactures of the food not the company that sells it.

I do not eat anything that is even made in the same facility as wheat products. So for me the same machine is an even bigger no no. Snickers is totally off my list now as was my rude awakening with Mars, which made me sick.

Anyone on here remember when this big kafufel started with MCD's on here? I believe that is the same people who came on here and wanted us to support them for their feeding their child french fries all the time. While still seeing how the child was sick they kept it up and wanted all of us to back them.

Once again here they go not accepting responsibility for their own actions and setting things back for us for another fifteen years. Yes, why would someone feed their children french fries everyday? What a charmingly healthy diet. They cannot blame MCD's for giving the child Celiac and they were the ones who fed it to her. I would have worried about cross contamination in that place as I do in most fast food places. They have under trained minimum wage staff, who don't care or know anything. It is up to the parents of Children with this disease and us as Celiacs to watch our backs with this stuff because no one else will.