Rusla

MY hernia does not bother me all the time. But, the one position I cannot do is watching TV from a semi sitting position in bed. I did think about having it fixed as it has gotten worse since I lost all that weight before diagnosis. Then when my food allergies went through the roof, I decided no way am I having any operation (if I have a choice) that makes me a patient in the hospital. But, if yours is that large, then I think you should seriously consider having it done. Make an appointment with the hospital dieticition and see what she says about feeding you. In our hospitals in this area they all speak Spanish and can't feed the diabetics safely, let alone me

Hi Rusla! Have not seen you for awhile. Has the beautiful Godess been at her cauldron. And NO people, I am not being nasty. Rusla knows I am kidding as I have nothing but respect for her religion. As you can see Rusla, that I am paranoid about joking on this forum. But, really, how have you been? Have I just missed the threads you have been on?

Hey there, it looks like you've been having a bad hair day...lol. Yes, I have been eating children perhaps that is why I have an extreme kidney infection. I have also been looking for some place to move to which is difficult when there is nothing to move to. I also had some stories to get out and I am lagging behind in my book which has to be done for Feb 28, So, I was just on a hiatus then, I come back and find lots of us oldies are missing. Perhaps they are just on hiatus.

Shoot. I was outside on the deck painting trim. I'll watch it tonight at work. Good thing I have connections. I see in the script it doesn't have you quoted as saying you get DH. I am pleased it mentions creams, shampoos and soy sauce.

Yeah that was a pretty fast and dirty cut. They never mentioned oats or malt either, they didn't have me saying I get horrible pain, dh , pernicious anemia, etc. They also never put in the fact that I said there needs to be awareness on all levels.

It needs to be a bigger spot hopefully some day. At least they got the association, split and some of our foods on there. My sister has a friend who always had back problems, his very astute doctor figured out it was Celiac.

Well, what are you doing living in Calgary, then, of all places?!

I am trying to find a way to escape here.

They are doing the piece right now and boy do I look horrible.

I had prozac once and I almost jumped off a bridge, which is something for someone who is afraid of heights. It made me very suicidal but then I don't react to drugs the way most people would.

First off osteoporosis in the spine is a major contributor to stature shrinkage. Caltrate chews have vitamin D in them and taste okay.

The white heads like pimples sounds like DH to me. I get those in the corner of my mouth below the bottom lip, around my nose and below my left eye and on the eyelid. When I get that much of an outbreak I have been into serious contact with gluten. Unfortunately it has all been accidental. That means that she must be ingesting gluten accidently.

The question is, are you sure those are gluten-free worms?

I live in Canmore, and always go to Nutters. It's really good. They're doing renovations now to open up in a bigger store (which hopefully means more stuff), so their supply might be somewhat limited for the next while, but they still have quite a bit.

If you're in town, and want to go somewhere good for dinner, go to the Quarry downtown. I've eaten there quite a few times and haven't had any problems. They don't have a specific gluten free menu, but the chefs are really good and know quite a bit about it.

That is great to know about the Quarry, I will remember that name. Is that the restaurant that is in an old gray and white house building on the corner?

Now, is anyone going to the Convention on October 28th here in Calgary?

I'll have to watch for you Rusla!

rinne, I live in the NW. There is a Chianti's at Crowfoot Crossing mall, as well as an Outback, Tony Roma's and Joey Tomato's. I'm asymptomatic, so I really can't comment on CC at any of these places, but they are the places I go to around here. I really need to get over to Hi-Ball, do they do a gluten-free ginger beef?

Unfortunately their ginger beef/chicken is not gluten-free. There is another restaurant in the NW on about 4 st and 20 Ave. NW. I believe, the Silver Inn and they make their ginger/beef chicken with cornstarch. I have yet to go eat there since being gluten-free.

Hi Kate,

Well by gluten-free that means everything including hair, makeup, hand cream etc. Think about how many years of gluten you have in your system. Some people feel better in some ways within the first week and some in a few months or a year or so. Each person is different therefore it depends on how fast your system dumps the gluten and how much you are ingesting through hidden means.

Better you guys than me getting snow. I loath snow, I hate the cold I want to see green grass and pretty flowers all year.

Blatantly stolen I'm afraid..

Not only do I like your avatar, looked like you were having a bad hair and beak day. I love your sig about the ex-allergist.

And once againg on the being a pain issue. The thing to remember is at a restaurant you are paying good money to get what you need, they should be willing to give it to you.

Cool, that would be great.

When I was in Canmore last weekend they had a store there called Nutter's, it had the biggest gluten-free section I had ever seen and they had some frozen Entree's called "Seeds of Change" I cannot find those here.

I am hoping that when they air the show that it will get more restaurants out there to get on the bandwagon and start coming up with gluten-free foods. They eliminate many of us by not being gluten-free.

I am in Canada and I get Kinnickinick all the time and I am fine. The man who started the company is a German who lives in Edmonton and he is Celiac. Unfortunately he just sold the company, let's hope it doesn't change the quality.

Perhaps you need to look at what other things you are eating with the products.

Thanks for recommending me Linda. I hope it helps others and wakes up the government and the doctors. If one person finds out sooner and without as much agony as what some of us have gone through.

Rinne:

Prepare for culture shock. There is a chinese restaurant in the NW across from the Foothills Hospital if you tell him you can't have wheat, soy sauce etc, everything has to be clean he will recommend things you can eat and I have never been glutened there.

The Split restaurant is the gluten-free restaurant and it is on Elbow Dr. If you need to find out how to get there if you Pm me and tell me where you will be staying I will tell you how to get there.

Well any of Amy's food I saw here always said "made in a facility that manufactures wheat products." So, I would never take the chance.

I react to such minute amounts of gluten it is not worth it. I even worry about putting my food down on a conveyor at the supermarket for feat that they guy in front his copious amount of bread crumbs are on my food.

I thought I should post it on here for any in and around the Calgary area. CTV news is doing a piece on Celiac Awareness month. They interviewed "The Split" restaurant, "Earth's Oven" bakery and a few other places and people including myself for this. I am not sure when it is being aired it could be any night from 5 PM till 6:45 PM.

Unfortunately I was in the throws of a minor DH outbreak during the filming. So, I will look charming on tv.

Sometimes you have no choice but to eat out. However, at a restuarant I tell them exactly what I need and ask if they can do it, I tell them I have an extreme allergy.Telling people it is an allergy is pretty well the only way they get it the seriousness of it. Now, when I am at a friends place I feel like I am putting them out. If we are doing pot luck I make sure I bring my gluten-free meal because then at least I have something to eat. I put a separate spoon in it.

I guess that is one thing about eating raw is there is no way to get glutened by ingredients.

Oh Wow, I always wondered what the circumstances and qualifications were in Canada regarding seeing the dr's...since we have health insurance circumstances here i can see how things are very different now. I would definitely just start the diet then...that IS THE BEST TEST available anyway, i bet he'll start feeling better within a couple weeks...but for his situation i would say it may definitely take one to two years of dollowing the diet. Good Luck and please let us know hoe things turn out for him

Not only is the health care system different from province to province here but so is costs and seeing doctors. Alberta and BC are the only two provinces where we have to pay health care premiums.

I am looking into going raw, maybe not totally raw all the time but I have been to some raw foodings. some people go mostly raw with a few cooked things thrown in off and on. I am trying to find out if chicken jerky is considered raw or not as it is put in a dehydrator.

Even though my Thanksgiving was gluten-free and I know Smitty's in Canmore tried to make it gluten-free, I still got glutened. As that day at the restaurant I had to run for the bathroom, it wasn't total D but it was soft enough. Well, on the way home I started to get DH. Now in time for my Tv interview on Celiac disease today, they got a chance to see a very mild form of DH on me, meaning my whole face is not consumed by it but below my bottom lip is. How nice to look scary on tv.

Rolos are safe in Canada.

We had a successful Thanksgiving, too. My SIL hosted it, and everything was gluten free except for buns (Ty had his own crescent rolls) and dessert (Ty had his own mini-pumpkin pie).

Well the only things that weren't gluten-free were the buns and we had two types of pumpkin pies gluten-free and regular. It is nice when things come together nicely.

Just to add to that and being quite impressed with Smitty's restaurant in Canmore. We had our tukey day on Sunday after I drove up there from work. Yesterday morning before we left to drive back to Calgary we stopped at Smitty's restaurant. In Calgary they will not accomodate and nor would I trust them. So, I flirted with death and talked to the manager at Smitty's there and he made sure my meal was done with all clean everythings and even on the bill it said "gluten allergy." I ate my meal and did not get sick...yay! I found the same with Swiss Chalet on McKnight in Calgary the girl made sure she told them it was a gluten allergy, put it on the bill and made sure they did not have it near any bread. I think things are looking up.

Oh, and in Canmore there is a store called Nutter's they have copious amounts of gluten-free food. One I saw was a frozen entree called Seeds of Change and they are gluten-free tv dinner things. Dumb me did not buy some to bring home because I have not seen those in Calgary at all.

Hi Rusla--I'm happy to hear that you had a nice holiday, too! That soup sounds good

I am not much of a squash girl but the soup was very hearty and good . He baked the squash then mashed it adding assorted vegetables like onion, mushroom, garlic, carrots I think celery, a bit of indian curry, a bit of cinnamon and I can't remember what else. It was totally filling and gluten-free. I will have to get the recipe from him as he just made it up as he went.