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Latest Celiac Disease News & Research:
Everything posted by elye
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ARCHIVED Any Phd Chemists Out There?
elye replied to Canadian Karen's topic in Related Issues & Disorders
Wow, that's good info to have... Does selenium have a smell? Trying to bring both ends of the thread together... -
ARCHIVED Any Phd Chemists Out There?
elye replied to Canadian Karen's topic in Related Issues & Disorders
Funny, I've also always LOVED the smell of gasoline, and wondered why. I suspected happy memory jogging, like gfp, but then my son, at the time six, said one day from the back of the car while I was filling up, "I LOVE that smell"! So it can't always be associative...he's inherited some weird thing, I suppose. Karen, I remember a couple of years ago... -
This is so great...you cannot imagine the number of people who have come up to me today and said, "Wow! Saw your article...great stuff! So, you have this illness. You know, I'm suspecting that (fill in "I", or "my daughter", or "my mother", as they varied from person to person) may have this, too." And that's the only in I needed. It will be interesting...
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Okay! Almost a week later, but it's finally appeared: Open Original Shared Link
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Hear, hear, Fiddle-Faddle. I know two people who in past years were diagnosed with this bogus "illness", and after I became celiac and started doing my research, enlightened them and urged them to give up gluten. Guess what? They're fine now. Off the expensive meds that did nothing (and that the docs may have been getting kickbacks from)...Sadly, my brother...
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Yep, I believe so...re-shaping the eyeball, not cutting a flap.
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ARCHIVED Scientists Making Fibers (fabric) Out Of Wheat Gluten
elye replied to Nantzie's topic in Coping with Celiac Disease
I just read an article in our paper yesterday about the trials that are being conducted using marijuanna as a fuel, along the lines of ethanol. Fascinating...could drive my car, take deep breaths and feel my migraine disappearing... Not too long ago someone who was quite scientifically in the know posted about the study of wheat as a fuel, as well. Would... -
ARCHIVED Not Sure What To Do
elye replied to Swthrtpookie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep, you need a new doctor. The one problem is this: the celiac panel can yield false negatives...and even the biopsy, the gold standard for diagnosis, can come up falsely negative by missing damaged areas of the small intestine. For many people, the only true diagnostic tool is the gluten-free diet. I'd be curious to know how many posters have had negative... -
I had PRK surgery (where they reshape the eyeball back to its regular shape by carving it with a laser...whether that's the same as excimer surgery, I'm not sure), six years ago, and it was the best 2,000 dollars I've EVER spent. My eyes are still 20-15. I chose PRK instead of Lasik because with the latter there is a chance of the flap that is cut in your...
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Wow, Deb, that is fantastic...I'm on it!
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Yep, sure thing. Should be tomorrow, which is great because Saturday is their BIG distribution day. I'm hoping there will in turn be written responses to my letter, and one big snowball....
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How exciting... I have written the Globe and Mail (the big Canadian national newspaper) health editor, twice, and our local paper, twice, about celiac disease and all the compelling things that we all know: the surprising incidence of the disease, the myriad of symptoms, the eventual scary consequences if it is not addressed, etc. I also have written to...
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ARCHIVED Good Example Of A Little Bit Of Knowlege Being Dangerous
elye replied to mamatide's topic in Publications & Publicity
Sad, but true...we can be rather dumb up here. Lookit all the WHEAT we grow! -
ARCHIVED Anyone Have Experience With Going Off The Pill?
elye replied to jesscarmel's topic in Related Issues & Disorders
Finding this thread has been so timely for me...I am going off the pill soon, as my DH is heading in for the big snip. I've been on it (barring my two pregnancies) for almost twenty years, and now that I've entered my forties I figure its time to go off. What really made me decide this was the reports that came out recently on the incredible decrease in... -
Boy, I'm late jumping in...another Ottawan here. Land of the silly servants....
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ARCHIVED How About A New Reality Show?
elye replied to lonewolf's topic in Introduce Yourself / Share Stuff
Fantastic...I would watch a show like this. I, too, would also love to buy a bowel. A brand spankin' new, undamaged, pristine lower intestine. Too bad we can't spin the wheel for one of those. -
ARCHIVED How About A New Reality Show?
elye replied to lonewolf's topic in Introduce Yourself / Share Stuff
...Or sitting in a restaurant, trying to explain what "gluten-free" REALLY means to your eye-rolling waiter, and then watching the platters of pizza, fettuccine alfredo and breaded finger foods drift past to other tables. ....talk about challenges! -
ARCHIVED How About A New Reality Show?
elye replied to lonewolf's topic in Introduce Yourself / Share Stuff
Then there could suddenly be a couple of tribes. The initial Gluten Intolerants, and then the vote-offs form a mystery-intolerant group who gradually, through gastrointestinal trial and error which we get to see every moment of, form the No-Caseins, the Deadly Nightshades, the Stay-Away-From-Soys... All the while forming alliances. I can see it all now... -
ARCHIVED How About A New Reality Show?
elye replied to lonewolf's topic in Introduce Yourself / Share Stuff
This is fantastic...but there must be a celiac voted off each week. The gassiest, perhaps. And how can each contestant acquire immunity? I would say the bloke who makes it through a day completely gluten-free--no cross contamination. Perhaps there would have to be a lab tech there, busily testing every contestant's stool samples at day's end for traces... -
That is fabulous info, Susan, thanks! I appreciate the time you took. I'm in Ottawa, and have gotten the name of a plastic surgeon here. I have my checkup with my GP in a month, so I will feel him out. I will get on that forum for sure.
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We recently came into a bit of money, and I am toying with the idea of exploring something I've been dreaming about for years. Yes, liposuction. Kind of embarrassing even saying the word, let alone admitting I think about it, but I have had enormously huge upper arms for many, many years. They are, I believe, deformed looking, because I am slim everywhere...
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ARCHIVED Should I See A Doctor?
elye replied to GlutenWrangler's topic in Coping with Celiac Disease
It's funny...as I mentioned, I didn't have any classic symptoms before being diagnosed, and I really have always felt well. So no, I don't really feel any different...I'm still feeling well. However, I now DO react when I get glutened! I have the abdominal cramping, the bloating, the diahrrea...NOW I know what everybody was talking about! Makes sense... -
ARCHIVED Should I See A Doctor?
elye replied to GlutenWrangler's topic in Coping with Celiac Disease
Boy, this is a tough one. I always want to put great faith in our own bodies and the messages they give us as to how we're feeling, but mine certainly hasn't told me about some crucial things that fortunately were discovered almost by accident, and by my great family doctor. I had no symptoms, gastrointestinal or otherwise, of gluten intolerance, with... -
ARCHIVED Close Family Member...dealing With A Tragedy
elye replied to elye's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I tried one of the Canadian numbers, but their offices are closed over the holidays and will reopen on Thursday. So I wait... If only John were able to eat just chicken and rice for a week! Too late for that now, I'm afraid... -
ARCHIVED Close Family Member...dealing With A Tragedy
elye replied to elye's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah, "MAY BE SUITABLE FOR A GLUTEN-FREE DIET"...not very reassuring. I did read that, and thought it was pretty ridiculous. I mean, is it gluten-free or not? Thank you for all those numbers, Jessica. I will call them up. Actually, I will search for a Canadian number. I forget which country has questionable maltodextrin...is it the States or the UK...