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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Mer123, You may have vitamin and mineral deficiencies. Gluten containing products are required to be enriched with vitamins and minerals to replace those lost in processing. The gluten free counterparts are not required to be enriched. Since you've been off gluten containing products for a month, you are probably not absorbing sufficient vitamins...
  2. knitty kitty
    It's thiamine deficiency. Thiamine Deficiency Promotes T Cell Infiltration in Experimental Autoimmune Encephalomyelitis: the Involvement of CCL2 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4135011/#!po=28.2258 Thiamine deficiency causes a more severe reaction to antigens than seen in the thiamine sufficient.
  3. knitty kitty
    @Gloria L, Look for a B Complex with the "activated" forms of the B vitamins, like this one.... https://www.elitelifenutrition.com/products/super-active-b-complex-pure-b-50-complex-vitamins And.... 5 Benefits of Vitamin B100 Complex https://www.livestrong.com/article/401283-benefits-of-vitamin-b100-complex/ If you get...
  4. knitty kitty
    @Graves_Mistakes, Ouch! Those crazy cramps are from your thiamine being too low! "The Effects of Vitamin B1 on Ameliorating the Premenstrual Syndrome Symptoms" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4825494/ Thiamine is needed to turn the food you eat into energy and enzymes! If you're low in thiamine, your body conserves...
  5. knitty kitty
    @VictoriaC, Black tea, like Lipton's, is a histamine releaser. So is caffeine. Many Celiacs have a problem with high histamine. Mast cells release histamine as part of the immune response. By avoiding foods and drinks containing high histamine and ones that trigger mast cells to release histamine, gradually our immune system calms down. Try...
  6. knitty kitty
    Indubitably! 😸
  7. knitty kitty
    It's a no go on the Oreos. 😿 I've broken out in a rash... Blasted corn starch.
  8. knitty kitty
    I really think that if the chromium (in the multivitamin and shake) is stopped, then the iron will come up with continued iron supplementation. Discuss with your physician or nutritionist.
  9. knitty kitty
    @Gloria L and @tessa25, You poor things! Have you tried the Autoimmune Paleo diet? Dr. Sarah Ballantyne, a Celiac herself, has written a book that is very helpful called "the Paleo Approach." This diet has been scientifically shown to promote healing. I like this book because it's easy to read with pictures and diagrams and lists. https...
  10. knitty kitty
    Eventually, I got a genetic test done which says I've got HLA DBQ 2 and 8 genes. One codes for Dermatitis Herpetiformis on the outside and the other for the gastrointestinal rollercoaster ride on the inside. 😺 Several times, I had asked for the Celiac panels, antibody blood tests, which came back negative, surprisingly, considering my symptoms. ...
  11. knitty kitty
    You keep asking questions, MadMom! I love questions because I love learning. In my culture, sharing knowledge is equivalent to giving a gift. Sharing what I've learned so others can experience a better life is my gift to all readers.
  12. knitty kitty
    Once I went on the AIP diet, I felt so much better within days. Removing inflammatory foods was like going on a vacation for my poor intestines! I had suffered with Celiac symptoms for as long as I can remember, but because the whole family (it's genetic!) had similar symptoms, they were brushed off as "normal." By midlife, I had developed a cascade...
  13. knitty kitty
    Once I went on the AIP diet, I felt so much better within days. Removing inflammatory foods was like going on a vacation for my poor intestines! I had suffered with Celiac symptoms for as long as I can remember, but because the whole family (it's genetic!) had similar symptoms, they were brushed off as "normal." By midlife, I had developed a cascade...
  14. knitty kitty
    Once I got the stumbling blocks out of the way and started the Autoimmune Paleo Diet, I felt better within weeks. It's hard to compare because some people don't have active Celiac Disease very long before it's identified. Others have spent years with active undiagnosed Celiac Disease draining their health for decades. I'm one of those oldies...
  15. knitty kitty
    You're very welcome. I'm well blessed and thankful I can share what I've learned on my Celiac journey. Keep us posted on your progress!
  16. knitty kitty
    The Autoimmune Paleo Diet is stricter than the Paleo diet. I look at the difference between the Autoimmune Paleo Diet and a Paleo diet similar to the difference between a Gluten Free diet for Celiacs and the fashion trend of a gluten free diet. Just like some people adopt a gluten free diet because they want to drop a few pounds or their friends...
  17. knitty kitty
    You're not alone in this. We've all been beginners at some point. And it can be confusing and overwhelming, but we're here for you. I'm so thankful for Scott's forum.
  18. knitty kitty
    Your doctor will have to test your iron levels to determine if you're absorbing iron. I took an enterically coated iron supplement that didn't turn my poop green like previously taken iron supplements. So, maybe it's working. I also took copper. There's a delicate balance between copper and iron. But taking copper on alternating days with...
  19. knitty kitty
    You could get the rash tested for dermatitis herpetiformis which only occurs with Celiac Disease. If your rash is DH, then you have Celiac. False negatives from improperly taken biopsy samples are possible. Or genetic testing can spot if you've got any of the most common, known genes for Celiac. The caveat here is not all Celiac genes are known...
  20. knitty kitty
    Gluten containing products are required by law to be enriched with minimal amounts of B vitamins and minerals to replace those lost during processing. Since you have switched to a gluten free diet, you have lost that source of vitamins. Poor digestion and absorption can cause nutritional deficiencies quickly. Deficiencies in Thiamine, niacin, pyridoxine...
  21. knitty kitty
    Oy! The colonoscopy prep will wash out some of the bacteria in your intestines. So you went from looking six months gone to only four. Small Intestinal Bacterial Overgrowth (SIBO) is often associated with bloating. It's more likely your intestinal bacteria are partying and raising a ruckus when you consume fructose and sucrose than you having a fructose...
  22. knitty kitty
    Read this article.... Lactose (milk sugar) and casein (milk protein) can both cause problems. Like the study says, casein can keep your tTg levels high. No dairy at all would be best.
  23. knitty kitty
  24. knitty kitty
    MadMom, Try the Autoimmune Paleo Protocol diet. Dr. Sarah Ballantyne, a Celiac herself, has written a wonderful book.... https://www.thepaleomom.com/books/the-paleo-approach/ This book has lots of helpful information. Even if gluten free, the inflammation of Celiac lingers. It explains what's happening to your body during inflammation and...
  25. knitty kitty
    I take Lysine for my herpetic virus friends. I've had shingles in the past and it's not fun. And I have had problems with cold sores, especially after getting glutened. I also get Bell's Palsy, one side of my face becomes paralyzed when the virus becomes active. So I take 1000 mg of lysine daily and during herpetic flares, I double or triple the dose...
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