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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    MadMom, Try the Autoimmune Paleo Protocol diet. Dr. Sarah Ballantyne, a Celiac herself, has written a wonderful book.... https://www.thepaleomom.com/books/the-paleo-approach/ This book has lots of helpful information. Even if gluten free, the inflammation of Celiac lingers. It explains what's happening to your body during inflammation and...
  2. knitty kitty
    I take Lysine for my herpetic virus friends. I've had shingles in the past and it's not fun. And I have had problems with cold sores, especially after getting glutened. I also get Bell's Palsy, one side of my face becomes paralyzed when the virus becomes active. So I take 1000 mg of lysine daily and during herpetic flares, I double or triple the dose...
  3. knitty kitty
    Charks, I understand how disconcerting not having your body function properly. I've experienced the same. How much thiamine are you taking? I had to take 300mg before I really started feeling better. Niacin, riboflavin, and B6 pyridoxine help, too. The B vitamins are water soluble. You might try taking the B complex twice a...
  4. knitty kitty
    JenniK, Thiamine deficiency will cause vertigo and panic attacks/anxiety. Thiamine deficiency will cause tachycardia. Thiamine deficiency is seen in alcoholism, but it also occurs in malabsorption diseases like Celiac Disease. Doctors don't recognize the symptoms of thiamine deficiency outside of alcoholism. Please discuss thiamine deficiency with...
  5. knitty kitty
    Nancy D, Try high dose thiamine. Clostridium bacteria make thiaminases, enzymes that destroy thiamine (Vitamin B1). High dose Thiamine can help get rid of these undesirable pests. See this article... Infant botulism: is there an association with thiamine deficiency? https://pubmed.ncbi.nlm.nih.gov/25311602/ Thiamine is water...
  6. knitty kitty
    I have a hypersensitivity to iodine based contrast dyes. They make me very ill. Yes, it feels just like a gluten effect because it upsets your stomach and intestines and they react the only way they can. You need to call your doctor's attention to the fact you are reacting to the iodine. Iodine can rev up your thyroid causing overproduction...
  7. knitty kitty
    SSRI's can cause continuing villi damage. If the body is given the building blocks it needs, the body will heal itself. You are sick because you are vitamin deficient. You are not sick because you are pharmaceutical deficient. This attitude of "take a pill" is akin to "it's all in your head". You get depressed because...
  8. knitty kitty
    charks, There are EIGHT B vitamins. They all work together. Supplementing just one of the eight B vitamins won't cut it. Vitamin B12 needs B6 pyridoxine and folate B9 to work properly. Excess levels of B12 on your tests shows me (not a doctor) that B12 is not being properly utilized. B6 pyridoxine needs help from riboflavin B2. Niacin...
  9. knitty kitty
    Thiamine needs magnesium to activate and work properly. Increasing magnesium consumption or correcting magnesium deficiency can allow thiamine to work properly.
  10. knitty kitty
    Have you checked with any colleges or universities? Celiac students might prefer a gluten free house to gluten filled dorms...
  11. knitty kitty
    Don't rule out a connection to Celiac Disease just yet. Celiac Disease causes malabsorption which results in malnutrition, aka vitamin and mineral deficiencies. I suffered severe nutritional deficiencies because the damage to my intestines prevented me from absorbing all the things I needed to make a healthy body. My doctors were clueless about...
  12. knitty kitty
    Rachel, You have symptoms of thiamine deficiency: Weight loss, muscle weakness, loss of appetite, nausea, anxiety, altered mental state. Doctors believe thiamine deficiency can not occur outside of alcoholism. That is not true! Thiamine deficiency can occur in malabsorption conditions like Celiac Disease. Thiamine is used...
  13. knitty kitty
    Costochondritis is the inflammation of the cartilage where your ribs connect together with your breast bone. This link explains more...And the treatment is high dose thiamine..... elimination of the problem was seen in three days.... https://www.google.com/url?q=https://austinpublishinggroup.com/nutritional-disorders/fulltext/download.php...
  14. knitty kitty
    MadMom, Costochondritis is the inflammation of the cartilage where your ribs connect together. Frequently occurs on left side, but right side, too, sometimes. This link explains more...And the treatment is high dose thiamine..... elimination of the problem was seen in three days.... https://www.google.com/url?q=https://austinpublishinggroup...
  15. knitty kitty
    High levels of histamine have been found in the brains of people with psychiatric disorders. High histamine and mast cell activation syndrome has been found in Celiac Disease. Vitamin and nutritional deficiencies have effects on the brain. Bread and Other Edible Agents of Mental Disease https://www.ncbi.nlm.nih.gov/pmc/articles...
  16. knitty kitty
    Fran4, Welcome to the forum! I'm a migraine sufferer, as well. I get ophthalmic migraines, with visual disturbances when exposed to triggers (foods like gluten, dairy, and computer screens). I found my chronic migraines respond well to high dose Thiamine. I also take a B Complex because all of the eight B vitamins need each other to...
  17. knitty kitty
    sboo, You might want to think about thiamine and vitamin C supplementation. Thiamine is needed to provide energy for your body to function properly. This article explains well.... "Hashimoto's Disease-Related Fatigue and Thiamine Levels" https://www.verywellhealth.com/hashimotos-disease-fatigue-thiamine-levels-3232754 One...
  18. knitty kitty
    Stirling, The point of contention is that the thymus produces zonulin. I've only read about zonulin being produced and released by cells in the gastrointestinal tract. "Zonulin, regulation of tight junctions, and autoimmune diseases" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3384703/#!po=14.6552 "We have generated evidence that...
  19. knitty kitty
    Love this one! Nutritional Neuropathies https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/
  20. knitty kitty
    Thought these might be of interest.... Nutritional Neuropathies https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/ And... Vitamin B1 Thiamine Deficiency https://www.ncbi.nlm.nih.gov/books/NBK537204/
  21. knitty kitty
    Within minutes of taking thiamine supplements, I noticed improvement. It was astounding how quickly and how dramatically the changes came. I had a chronic thiamine deficiency over a period of years. I got lower and lower in thiamine and acquired more and more symptoms. I would get headaches with pressure during physical activity, taking longer...
  22. knitty kitty
    Within minutes of taking thiamine supplements, I noticed improvement. It was astounding how quickly and how dramatically the changes came. I had a chronic thiamine deficiency over a period of years. I got lower and lower in thiamine and acquired more and more symptoms. I would get headaches with pressure during physical activity, taking longer...
  23. knitty kitty
    Noglu10pls, Welcome to the forum! You said your symptoms are getting worse.....do the eye swelling and sinus clogging happen right away after consuming gluten? If the facial edema occurs immediately after gluten ingestion, I would suspect you may have an allergy to wheat. An allergic reaction to wheat could case anaphylaxis (throat and sinuses...
  24. knitty kitty
    Glad to know it's the iron supplements! Make sure to take iron with Vitamin C supplement or foods for better absorption of iron. Happy to help😺
  25. knitty kitty
    SLPMom85, Welcome to the forum! We often recommend keeping a food/mood/poo'd journal. You may find changes in diet might have results like you describe. New healing intestines might not digest everything consistently. Have you added extra green veggies? Iron supplements can make bowel movements rather green or dark. Grape soda can do the...
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