knitty kitty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Thought this case study might be of interest.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7306676/
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@DemonKnight said.... "If any substantial saturated fats or high sugar content gets in there, it causes a reaction of some sort and shuts down my bowel habits completely the next day." If you have problems digesting sugars and fats, consider supplementing with thiamine. Thiamine deficiency can cause weight loss, Gastroparesis, and constipation...
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@dolson, I'm sorry to hear you're still having such problems. Benfotiamine, a form of thiamine, has been shown to help with diabetes. https://pubmed.ncbi.nlm.nih.gov/23379830/ And high dose thiamine (500 mg) helps with Gastroparesis.
- 16 comments
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- celaic disease
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Omeprazole causes B12 deficiency. -
Thiamine comes in different forms. Thiamine HCl is what I started taking at first. I started taking 100 mgs with each meal. Three hundred mgs a day was working, but I had read studies saying some people get better results at 500 mg. So, Celiac Guinea Pig that I am, I added more. I guess I was one of those people. Vast improvements! Later...
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Yes, thiamine is safe, even in high doses. There's no toxicity. I take a B Complex plus extra thiamine, Allithiamine. As someone who works out, you have a higher metabolic need for thiamine. Thiamine is necessary to provide energy for those muscles to work. Metabolic need for thiamine increases when you're an athlete, work out of doors and...
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I use Naturewise Organic Flaxseed oil.
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Fish oil caps are a problem for me, too. I switched to flax seed oil caps for the omega threes and separate vitamin D and vitamin A supplements. Skip fish for now and try it again in three to six months. This is the fun Celiac Guinea Pig part where you test foods, record the reaction in your food/mood/poo'd journal and try them again in a few months...
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I'm pleased to hear that you are making progress! You get to become a Celiac Guinea Pig now and experiment with chicken and fish and what YOUR system will tolerate. The book is available on Amazon.co.UK and on some used book seller sites (abebooks) and ebay. I hope you can find a copy. Keep us posted on your progress!
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Welcome to the forum! Happy to have you here! Wow! I agree with @trents! You need to pay more attention to what your daughter J is eating! Try keeping a food/mood/poo'd journal. Doing this will pinpoint problematic foods and possible glutenizing😸. The food journal will also allow you to see if your daughter is overeating carbohydrates. ...
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My suggestion would be to hold off on taking a probiotic for a while. Changing your diet to a Paleo diet like the Autoimmune Protocol will starve out the bacteria feeding on carbohydrates allowing beneficial bacteria to repopulate by themselves. Yes, take your multivitamin and also your B Complex both everyday. The B Complex vitamins are water soluble... -
Prescription drugs such as Omeprazole, Zantac, and Flonase will suppress your body's production of antibodies. When you test for Celiac Disease after taking any of these medications, you will get false negatives. Omeprazole is known to cause B12 deficiency. Omeprazole inhibits absorption of B12. Since you know you have one Celiac gene, and you...
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Having a mild case of Celiac is akin to being a little bit pregnant. You have Celiac. You have mild symptoms, but you are already experiencing malabsorption and vitamin and mineral deficiencies which are serious. Did you know wheat contains opioid compounds? Dairy does, too. You have opioid receptors in your brain and in your digestive tract... -
Look into the Autoimmune Paleo Diet.... this is the book I found most helpful, easy to read, lots of illustrations, charts, etc. for visual learners.... https://www.thepaleomom.com/books/the-paleo-approach/ Think easy to digest foods...soups or stews that's been simmering until very soft and mushy. Keep a food/mood/poo'd journal to...
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Different levels?
knitty kitty replied to RaeOze's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Would getting a genetic test be an option for you? Celiac is a genetic disease. If you have one of the common markers for Celiac Disease, you could assume the Celiac genes are turned on due to your reaction to gluten consumption. Removing gluten from your diet for three months gave your immune system time to calm down. Your body quit making... -
I had fatigue and shortness of breath like you describe when I was deficient in thiamine Vitamin B1. The shortness of breath is called sailors' asthma. Your body needs thiamine to "burn" oxygen and provide energy for your body to function. No thiamine, no energy, hence the fatigue and feeling like you can't get enough air (air hunger). The classic...
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Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies. The damage to the small intestine, villi blunting, diarrhea and constipation all affect your body's ability to absorb sufficient nutrients. Removal of gluten containing foods from the diet means the removal of a major source of vitamins. Wheat...
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When I have had trouble staying asleep or getting to sleep, I increase intake of certain vitamins that the body needs to make serotonin and melatonin. Tryptophan, pyridoxine (B6), and folate are needed to make serotonin. Tryptophan is needed to make melatonin, as well. Magnesium helps with relaxation, too. Vitamin D and sunshine are important, too...
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I'm so glad you found the toe wriggling a relief! Yes, thiamine needs to be increased to 300mg a day. I took 100mg of Thiamine HCl with each meal. I later added Benfotiamine to help with my Type Two Diabetes, and allithiamine (fat based so it crosses the blood brain barrier) to help with brain fog. Thiamine transporters that let thiamine...
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The fat soluble vitamins are A, D, E and K. The water soluble vitamins are the eight B vitamins and Vitamin C. If you have frequent diarrhea or constipation, the water soluble vitamins can be lost quickly. Most of the B vitamins and Vitamin C are absorbed in the small intestine. The small intestine gets damaged in Celiac Disease, so vitamins are...
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Vitamins and minerals are absorbed at different sections of the intestinal tract. Minerals can be stored longer than vitamins, so depletion might take longer to show up. Zinc and copper compete in the body for absorption. Does your daughter use a copper cup or take a supplement or nutritional shake with lots of copper in it? Is your daughter...
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Prescribed Vitamin D is often synthetic Vitamin D2. The more bioavailable form is Vitamin D3. Vitamin D3 can sometimes be derived from lanolin, so if you have a wool allergy, look for another kind. Vitamin D and Vitamin A can be found in cod liver oil. Be alert if you have a Fish allergy. The vitamins A, D, E, and K are fat soluble vitamins...
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@ellajones, Have you tried taking Thiamine Vitamin B1? Studies show thiamine can help with menstrual cramps. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4825494/ Thiamine and getting your Vitamin D level up will help. Also take a B Complex and magnesium. I had very bad cramps and prolonged periods. I developed a fondness for my...
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Blood tests for the B vitamins are not always accurate and don't reflect the amounts stored inside tissues. The eight B vitamins are water soluble. Any excess is excreted. Most can't be stored longer than a month. Supplementing with a B Complex may be helpful. Vitamin D can be stored in the liver for many months. When a blood test shows a...
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High dose Thiamine is a minimum of 300mg or more a day. I took 100mg thiamine HCl at each meal. Some people take more than a gram a day. I also tried Allithiamine and Benfotiamine. Allithiamine is fat based so it easily crosses the blood brain barrier. Very helpful in dispersing that brain fog. Benfotiamine is helpful with diabetes, improving...
