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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @SargeMaximus, Are you getting enough healthy fats? Avocado oil, coconut oil, flaxseed oil, extra virgin olive oil? Can you tolerate dairy? Someone used to put a stick of butter in their coffee in order to get fats. Healthy fats are in fatty fish like salmon. Single serving foil packets of salmon are available. Precooked...
  2. knitty kitty
    @Papafma, Young children need to be tested using the DGP test (Deaminated Gliadin Peptide test). Infants and small children's immune systems are not as developed as adults'. Children don't start making tTg antibodies until they are older. Some young adults only test positive on the DGP tests. You might want to consider doing genetic testing...
  3. knitty kitty
    Celiac Disease is genetic. A child gets one gene from the father and one gene from the mother. One gene is all that is necessary to develop Celiac Disease. Usually the Celiac gene is inactive until a stressor occurs. A stressor can be an emotional trauma or physical trauma. An illness like Chicken Pox, mononucleosis, the flu, Covid...
  4. knitty kitty
    Do be aware that Celiac Disease is hereditary. Lactose intolerance, urticaria, thyroid problems and increase in allergies can be symptoms of underlying Celiac Disease. Your children should be checked for Celiac Disease. Your husband should be glad your "illness" is improved by a change in diet. He should be thankful you don't need expensive...
  5. knitty kitty
    Leg cramps can be caused by Thiamine deficiency.
  6. knitty kitty
    Gout is a build up of uric acid. Thiamine helps the body process the uric acid out of the body. Try supplementing with Benfotiamine. It's cleared mine up. Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/
  7. knitty kitty
    @SargeMaximus, Have you tried meaty snacks like turkey or beef jerky for work snacks? Larabars are easy snacks, mostly dates and nuts. Sticking to gluten free alternatives are better than going back on gluten which will increase inflammation. Try increasing the amount of Thiamine. Some people don't get results until they take 500...
  8. knitty kitty
    @Valerie415, Was your son's Vitamin D level checked? Was it above 80 nmols/l? Impaired Height Growth Associated with Vitamin D Deficiency in Young Children https://pubmed.ncbi.nlm.nih.gov/36014831/ And... The Effects of Vitamin D on Immune System and Inflammatory Diseases https://pubmed.ncbi.nlm.nih.gov/34827621/ And...
  9. knitty kitty
    @Attanett, Thiamine Vitamin B 1 deficiency will cause leg cramps and neuropathy in the hands and feet. Thiamine deficiency symptoms can worsen in the summer, especially if active outdoors. I experienced severe leg cramps and tingly hands at night and in the daytime when I was Thiamine deficient. Thiamine is NOT one of the vitamins routinely...
  10. knitty kitty
    @Ginger38, Sorry it's taken so long to reply. We've had some connectivity issues. I started the AIP diet because I was having difficulty controlling my blood glucose levels. On Metformin, I had lows when it kicked in and then highs as it wore off. Add in Gastroparesis and I was a mess. I also started Vitamin D supplements. Vitamin D helps...
  11. knitty kitty
    @itarachiu, Have you increased your healthy fats? Avocado oil, flaxseed oil, coconut oil? Cod liver oil? Fatty fish like salmon? I take flaxseed oil supplements and evening primrose oil to get the healthy omega threes and omega sixes. Including healthy fats gives the body an alternative fuel to burn instead of carbohydrates. You have...
  12. knitty kitty
    @Ginger38, Gluten free facsimile foods are not allowed on the Autoimmune Protocol Diet (AIP), if you're going to do the AIP diet. Gluten free facsimile foods are not enriched with vitamins and minerals like their gluten containing counterparts. So you basically had a high carbohydrate meal after skipping a previous meal. Skipping meals...
  13. knitty kitty
    @SargeMaximus, Benfotiamine.
  14. knitty kitty
    @Ginger38, Are you keeping a food journal? Is there a food that might have been eaten prior to this reaction? Some people have been known to faint when exposed to gluten. Have you eaten a high carbohydrate load before these episodes? Are these episodes related to POTS? Were you physically active beforehand? What other medical...
  15. knitty kitty
    @SargeMaximus, That's Thiamine Hydrochloride. Yes, it will help with your symptoms. You may be thinking of Benfotiamine which has been shown to lower inflammation and help heal the intestines... Anti-Inflammatory Effects of Benfotiamine are Mediated Through the Regulation of Arachidonic Acid Pathway in Macrophages https://www.ncbi.nlm...
  16. knitty kitty
    Here's a link to the National institutes of Health information.... https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/ Use the search bar for other vitamins and minerals...
  17. knitty kitty
    @Ginger38, Have you checked your blood glucose levels during one of these episodes?
  18. knitty kitty
    @Liquid lunch, It can be if you take too much. If your stools do start getting loose, cut back on the magnesium citrate. The label should tell you how many to take daily. You do NOT need high doses of magnesium if taking high dose Thiamine. Milk of Magnesia has been used as a laxative for ages. It's magnesium oxide which the body doesn't really...
  19. knitty kitty
    @Ginger38, When recuperating, I would buy a Chuck roast, cut it into small chunks, and freeze it. I would throw a chunk in my small crock pot with carrots or frozen vegetables like okra and let it cook on low all night. By morning, it's very tender and mushy. (Don't use potatoes or corn.) I would eat small amounts throughout the day....
  20. knitty kitty
    @Katie255, Welcome to the forum! Since Celiac Disease is inherited, you could get genetic tests for your family. The level of antibodies does not correlate with the amount of damage in the intestines. High levels are indicative of a strong immune response early on in the development of Celiac. Antibody levels can become lower as the body...
  21. knitty kitty
    Free published peer reviewed papers are here... https://pubmed.ncbi.nlm.nih.gov
  22. knitty kitty
    @Liquid lunch, I take Benfotiamine (or Allithiamine) first thing in the morning. It's better than coffee to get my brain going in the morning. Spread the Thiamine HCL three hours apart afterwards throughout the day. Our bodies can absorb about 300 mg in about three hours. Caffeine, coffee, chocolate and black tea can inactivate thiamine...
  23. knitty kitty
    Thiamine Hydrochloride (HCL) can be used in large doses from 500 to 2000 mg per day. Be sure to increase the dose slowly. Spread smaller doses throughout the day, about every three hours, take with food. Don't take after 5pm or so if insomnia occurs. Sometimes while increasing the dose of Thiamine, a person can experience flu like symptoms, but these...
  24. knitty kitty
    @Marianne82, I would get too sick to complete a gluten challenge, so I asked my doctor for a genetic test. It was a simple blood test. Genetic testing for Celiac Disease does NOT require gluten consumption. Celiac Disease is inherited. You have to have the Celiac genes in order to develop Celiac Disease. The most common Celiac genes...
  25. knitty kitty
    @SargeMaximus, Have you tried wild rice "manoomin" raised by Native Americans according to traditional methods? Manoomin is NOT related to Asian rice. Manoomin is native to North America. This has been one of the best things I've found to eat. It's gluten free with NO risk of cross contamination if traditional methods are used. https...
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