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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    She's asking about the paleness of her face.
  2. knitty kitty
    Have you been checked for vitamin and mineral deficiencies? Low Vitamin D and/or deficiencies in the eight B vitamins can cause similar symptoms! Celiac Disease causes malabsorption of nutrients. Correction of essential vitamins and minerals will help alleviate those symptoms!
  3. knitty kitty
    https://www.frontiersin.org/articles/10.3389/fnut.2019.00048/full Previously, we examined B cell immunometabolism in the intestine. In the intestine, naïve immunoglobulin (Ig) M+ B cells differentiate into IgA+ B cells in Peyer's patches (PPs) by class switching, and then IgA+ B cells differentiate into IgA-producing plasma cells in the intestinal lamina ...
  4. knitty kitty
    I found some interesting articles that describe Copper deficiency as having a role in pale skin. Copper is needed to make melanin (the pigment in skin, hair and eyes)! Pale skin and other symptoms could be a sign of insufficient copper. See if your symptoms match... https://www.healthline.com/nutrition/copper-deficiency-symptoms ...
  5. knitty kitty
    Along those lines that @ravenwoodglass mentioned, getting a baseline endoscopy now without the gluten challenge and another in the future for comparison might be an option.
  6. knitty kitty
    @bostonceliacer, Welcome to the forum! We'd love to help! Have you been checked for vitamin and mineral deficiencies as proper follow up care? Damage to the small intestine from Celiac can make absorption of nutrients difficult. Deficiencies in some of the eight essential B vitamins can cause fatigue. The eight B vitamins are called essential...
  7. knitty kitty
    HLA is a type of genetic test that will identify Celiac genes as well. Doctors are clueless about how badly we react to gluten. "Lick a cracker" ???? !!!!!! Find another doctor who will do the genetic test. (Or threaten your current doctor you will change doctors if he doesn't do a genetic test. A written request to the doctor and the overseeing...
  8. knitty kitty
    @DutchCeliac, Welcome to the forum! Have you had your Vitamin D level checked? I found an interesting article about Vitamin D and pigmentation... A Dermatologist's Perspective on Vitamin D https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3498088/ And... https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/ Getting...
  9. knitty kitty
    @Myki, Have you looked into Small Intestinal Bacterial Overgrowth (SIBO)? Besides dairy and PPI's, SIBO can cause continuing symptoms. I adopted the AutoImmune Protocol Diet (AIP diet), and after a few days my symptoms began to improve. I also lost weight which was water weight from bloated intestines. Do get checked for vitamin and...
  10. knitty kitty
    Welcome to the forum, @Nickkk! Yes, yes, and yes. Genetic testing can determine whether you carry any of the genes that code for Celiac Disease. Your genes don't change, so no gluten challenge is needed. The most common genes for Celiac are DQ 2 and DQ 8, although there are other less common ones out there. Swollen lymph nodes in the neck...
  11. knitty kitty
    The high iron levels could be connected to hemachromatosis. Perhaps discuss this possibility with your doctor. Here's an article... Hope this helps.
  12. knitty kitty
    @Meghan255, Welcome to the forum! Could you please tell us what you include in your diet? Do you include dairy? Do you eat Gluten free facsimile foods (cookies, bread, processed packaged foods)? Do you eat nightshades (tomatoes, potatoes, eggplant, and peppers)? Are you vegetarian? Thanks!
  13. knitty kitty
    Get a genetic test. You can't have Celiac Disease without having the genes. Genes don't change and you don't have to eat gluten. The most common Celiac genes are DQ 2 and DQ 8. There are others that occur less frequently. I've often wondered what happened to that part of the Hippocratic oath that says "first do no harm."
  14. knitty kitty
    @Conniem, Welcome to the forum! The rash may flare again if gluten is consumed. Iodine (as in salt, dairy, and shellfish) can cause DH flares. Yes, the DH can fade and flare for weeks after an exposure to gluten. Genetic testing for Celiac genes might be more conclusive. People who have DH can test negative on Celiac blood tests...
  15. knitty kitty
    @Gillianannpansan, Welcome to the forum! Our bodies make antibodies against gluten (and casein the protein in dairy) as long as we are consuming it. Where we stop consuming gluten, our bodies stop making the antibodies. So having a blood test for gluten antibodies after you stopped eating gluten will more than likely be negative. You...
  16. knitty kitty
    @Tracy414, Welcome! I have DH and I've had serionegative test results. I found this article in my researching and thought you would be interested. It's from 2019. Dermatitis Herpetiformis: Novel Perspectives https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6579917/ "...recent evidence suggested that DH is changing. Firstly, some studies...
  17. knitty kitty
    @Brook-lyn, I decided to use unscented laundry detergent, no dryer sheets or fabric softeners that leave scents on clothes, no perfumed body washes or hand soap. I used to get so sick to my stomach (and a migraine) walking by the perfume and cosmetics counters in stores. Some people's homes I've visited have been intolerable because the air ...
  18. knitty kitty
    @Brook-lyn, Welcome to the forum! Do any of these homes visited use automatic scent dispensers? I have gotten sick from plug in air fresheners, heavy perfumes, some deodorants, scented candles, etc. It has to do with a hypersensitivity to Sulfites which are used in perfumes and scents, and some medications. Some Celiacs develop this hypersensitivity...
  19. knitty kitty
    Not eating enough gluten prior to antibody testing will not give accurate results. Hyperplasia is found in Celiac Disease. Autoimmune gastritis is a common finding in Celiac Disease.
  20. knitty kitty
    Just wanted to add for future reference that anemia, like pernicious anemia, iron deficiency anemia, B12 deficiency anemia, affects not only red blood cell production but also affects white blood cell production. White blood cells include antibodies like antibodies against gluten. So having anemia can result in false negatives on blood tests for Celiac...
  21. knitty kitty
    It's recommended that gluten be included in the diet for a minimum of two weeks before endoscopy, and eight weeks before blood antibody tests for Celiac Disease. Yes, a few weeks off of gluten can cause false negatives on testing.
  22. knitty kitty
    This is a site for Celiac Disease and related problems. We are trying to educate others about how Celiac can overlap and affect other autoimmune diseases and overall health. If you want to close your mind to the facts, that's your choice and you get to deal with the consequences. Name calling is not necessary.
  23. knitty kitty
    Blood tests can be false negatives if not enough gluten was eaten for a long enough duration prior to testing. Damage typically seen in Celiac Disease can easily be missed due to the size of the small intestine (the size of a tennis court if laid out flat) and the patchiness of the damage. Some damage is out of the reach of endoscope. Some damage can...
  24. knitty kitty
    I have had my gallbladder removed. I have autoimmune gastritis. I have Type Two Diabetes. I have hashimotos thyroiditis. I lost sixty pounds in six weeks due to my GI issues. I'm not harassing. I'm educating. Show us the results of your tests for Celiac Disease testing.
  25. knitty kitty
    I had genetic testing for Celiac Disease because I got so ill consuming gluten. Many doctors are capable of doing genetic testing. There's genetic test kits done through the mail. I do have brain health issues. I was so deficient in certain vitamins and minerals I developed ataxia and Wernicke's Encephalopathy. Yes, my vitamin deficiency...
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