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shayesmom

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Everything posted by shayesmom

  1. shayesmom
    While I would tend to agree that a parent can't expect to change the whole theme of the day, in this instance, I think that the teacher needs to re-examine what exactly the theme is. Since when is Thanksgiving about excluding one student over cereal? Especially when there are viable options available? I can understand the teacher not wanting to add fruit...
  2. shayesmom
    Playdoh is made with wheat flour, so both allergic and Celiac children shouldn't play with it. And if it's of any consolation....my daughter also cannot be in a room where other kids are playing with Playdoh. For some reason, the teacher had to be convinced of that (she was warned at the beginning of the school year). Wasn't she surprised when I made a...
  3. shayesmom
    I second that one! My dd absolutely LOVES Tings and so does the rest of the family. Plus, they aren't as messy as Cheetos and I have to support companies who use 5 or less ingredients to make a product. lol! Easy to read labels earn extra points in my book!
  4. shayesmom
  5. shayesmom
    Besides all of the gluten, why on earth does there need to be so much sugar and assorted junk food involved??? Even as a "treat", this sundae bar is a bit over the top and I doubt there's a kid there that can eat all of the stuff being contemplated....nor should they! Sadly, I'm sure that the other mom's suggestion of waffle bowls is based solely on her...
  6. shayesmom
    Oh boy is this eerily similar to our story. We also had to "prove" that gluten was our dd's issue (luckily, the at least the blood tests proved other food allergies). Pretty much every piece of advice our pedi gave us was DEAD WRONG for our dd. So when we managed to escape them, I was relieved (the pedi used CPS threats to keep us in her practice and prevent...
  7. shayesmom
    To be honest, I have no idea what the motivation was behind denying the 504. Several things were "off" when it came to that meeting. For instance, I had intended on going without dd and bringing my mother along so she could be a witness to it. The school staff insisted that it would be better if I also brought dd with me so she could familiarize herself...
  8. shayesmom
    I'm not even sure what to tell you to help you get through this. We struggled with much of the same last year and the year before (in pre-school). But at least kindergarten is currently going much more smoothly (though it hasn't been perfect). If it's at all feasible, ask to be a volunteer parent in your child's classroom. This may give you the insight...
  9. shayesmom
    Pediasure was definitely a huge trigger for my dd. But for her, it was both the dairy and soy in it. Dd did test positive for a whey allergy, but tested negative for soy. Sorry, but I now KNOW that my dd doesn't do well with soy, especially in those amounts. Bottom line, the CAPRAST and the skin prick test MAY find SOME of your allergies. They will...
  10. shayesmom
    I actually have a kidney deformity where one kidney is much lower than the other and is much smaller (estimated at 30% function). I was on antibiotics most of my school years because I constantly would get severe kidney infections that quite often ended up in a hospital stay. This went on until I was in my late 20's. I would still be having those infections...
  11. shayesmom
    Gluten is not usually present in breastmilk. However, it has been well-established that gliadin is. And although breastfeeding can provide wonderful benefits and may help prevent celiac disease in infants to an extent, it is not a good idea for a mother to continue eating gluten while breastfeeding an already celiac infant. (If celiac disease is already...
  12. shayesmom
    The good thing about D-Mannose is that you can put it in juice, water...ANY drink and it can be taken daily. It won't cost much to try it and the results should be fairly obvious. If for some reason it doesn't work, she can always fall back on the prescription for the antibiotics. But I would definitely give the D-Mannose a shot as there will be no negative...
  13. shayesmom
    Great minds must think alike!
  14. shayesmom
    I second this suggestion whole-heartedly. You can even look up the medical studies done on this supplement in peer-reviewed publications. It is BETTER than antibiotics in preventing AND treating UTIs. Plus, if you already have an infection....you start getting pain relief within about 20 minutes. I've used this on dd, myself and now my whole extended...
  15. shayesmom
    1. Milk replacements? This highly depends on what I'm making. For baking and as a cream substitute in liquid recipes (coffees, soups, smoothies), coconut milk has worked best (it gives GREAT moisture to gluten-free baked goods). We've also been okay with rice milk and Vance's Dari-Free (which FYI, makes for some great fudgesicles). 2. Butter replacements...
  16. shayesmom
    Yes, my dh and I felt the same way with our dd. After months of struggling, it was like night and day...and it began turning around in the first 24 hours. Dealing with my dd's issues gave me a lot more confidence in trusting my own instincts. Once my dd began recovering, a lot of well-meaning people tried to undermine that by blowing the initial...
  17. shayesmom
    If your doctor has "never" had a child test positive for celiac than either he's "new", has never ordered the tests, or he is entirely ignorant of the symptoms...or all of the above. Sounds to me like he's the one who is stupid, not you. All those years of formal medical training and an amateur managed to heal a child more effectively than the MD. Hmmm...
  18. shayesmom
    The inherent problem with drawing titres is that it can be expensive, insurance companies may not cover it and ultimately, they may not be accurate. A childhood friend of mine recently started working at a local hospital as a phlebotomist (sp?). He had chicken pox as a child but no official dx from his pediatrician. He was told he needed to get the vaccine...
  19. shayesmom
    Honestly, guilt and anger are natural things to feel when we've seen our kids struggle for years and recently discover that there's been a serious problem at work. Hindsight is always 20/20. But you do need to realize that hindsight isn't available while living in the moment. It sounds to me like you really did try to find answers all along. You did...
  20. shayesmom
    The past 3 celiac seminars I have attended, the guest lecturer (always a GI) have stated that it is possible for celiac to be triggered by vaccines. One could argue that you can avoid all the vaccines, have your child get the flu and the disease would still be triggered. It basically boils down to researching the options and taking a difficult, and calculated...
  21. shayesmom
    Peanut oil was used as an adjuvant as well. It was quietly removed over the past couple of years because many doctors and scientists felt that this may have contributed to the epidemic of peanut-allergic children. It's almost amusing how women were being told to not eat peanuts to prevent sensitization in their children and yet infants were being injected...
  22. shayesmom
    Another interesting side note to vaccination and side effects. Is anyone aware of how scientists make animal models allergic to certain foods so that they can research food allergies? They VACCINATE them. The same toxins and pathogens that are found in human vaccines will make animal models food allergic so that scientists can further study how to "treat...
  23. shayesmom
    This is so true! And it brings up what will most likely be the doctor's next statement (should biopsy miss any damage)...."Well, we can rule out celiac for sure". Celiac can NEVER be ruled out by tests, it can only be ruled in. Yet, most GI doctors will rely solely on the biopsy result and for the next 15 years when your son continues having problems....
  24. shayesmom
    I can relate to having to prepare meals on a fixed budget while juggling a busy schedule and not having local stores which carry gluten-free products. It can be a challenge, but it's not impossible. One thing that you may want to consider as you start to earn more money is a checking account. From there you can get a debit card that acts as a credit...
  25. shayesmom
    Anna, First off, congratulations on finding answers for you and your son. It takes a lot of courage to go beyond the doctor's diagnosis (or non-diagnosis) and forge ahead with this diet anyway. For your courage, you will be rewarded. I am sorry for the years you spent suffering. But it is good that you did get answers relatively quickly compared...
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