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Latest Celiac Disease News & Research:
Everything posted by CMCM
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I'm thinking the rice (multi-weird ingredient) baked things just do not agree with me, period. I've been mildly bothered by everything I tried, but I was thinking it was that I over-indulged with the cookies, or perhaps it's the rice? I don't know, but today was the worst. As for soy, I just KNOW that I react to it. I got tested at Enterolab for soy...
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ARCHIVED Anyone Doing Scd?
CMCM replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Has anyone read anything about why you would peel fruit (like apples) and not eat the peel? I love to make applesauce....I usually just whap an apple corer/slicer thru an apple, cut the pieces into chunks, and throw them into a slow cooker. It will be a lot more time consuming to peel the apples, and besides, the applesauce tastes so good with the peel... -
I have been so careful, so I know I have not had gluten or dairy. But I've felt awful all day so far, with several episodes of nausea, cramping and D (including one at the market where I had to almost run for the bathroom!). So all I ate yesterday besides my usual grapefruit, eggs, tea, veggies, was: 1. Thai Kitchen noodles w/green onions....nothing...
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ARCHIVED Background Heritage Question
CMCM replied to CMCM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Since the theory is that those areas most recently exposed to gluten/wheat would have the HIGHEST rates of celiac disease, and those areas which have eaten gluten the longest have the lowest rates (because natural selection over several thousand years has been eliminating the celiacs!!!), I would expect the very highest rates to be in Native Americans!!!... -
Jen....do you buy any other products from that company where you buy the psyllium? And is the membership thing worth it? Or do you find this psyllium in regular health food stores??
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ARCHIVED Background Heritage Question
CMCM posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After reading all my celiac realted books, they keep stressing that celiac disease has a higher prevalence in people with Northern European/Irish/Italian heritage. I'm curious about that....what are your backgrounds on both parents' sides? I'll start....for me, Swedish on my Dad's side, and on my mom's side Germanic/Russian/English. So I definitely fit... -
ARCHIVED Anyone Doing Scd?
CMCM replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I made my coconut yogurt tonight, so now it's got to percolate for a day. I only had some left-over packets of Yogourmet starter, which apparently has some sort of dairy in it, so I guess I need to find a non-dairy starter somewhere. Anyone know of one? The coconut milk smelled good, and definitely had a coconut smell to it...which is great because... -
ARCHIVED Philosoophy Face/eye Creams
CMCM posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Philosophy makes some fabulous face and eye creams. For every product on their website, you can read all the ingredients. These don't list gluten or wheat, and I really love them. I'm a real product junkie, and I like these better than just about anything I've tried. Hope in a Jar (regular) Hope in a Jar for sensitive skin (a bit thicker, nice if... -
ARCHIVED Dr. Green's New Book
CMCM replied to CMCM's topic in Gluten-Free Foods, Products, Shopping & Medications
The product discussion starts on p. 239. His (as I took it) snooty comment is at the bottom of p. 240. Actually, now that I look at it again, I'm not sure what he's saying. First he says that lotions etc. are not absorbed into the skin and are therefore safe for us to use, and then he says this: "Many patients with celiac disease feel that they come to... -
ARCHIVED Kinnikinnick Animal Crackers
CMCM replied to CMCM's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't know whether the animal crackers are new or not....I had gone to their site and bought a few things to test....and so far, every single thing has been quite good: bagels, choco dipped donuts, K-Toos (Oreo clones) and the animal crackers. I just put in another order, and this time I'm trying the pizza crust, hamburger buns, English muffins, and angel... -
ARCHIVED Kinnikinnick Animal Crackers
CMCM posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I just tried the animal crackers I got from Kinnikinnick....these are FABULOUS and every bit as good as the "real" ones (in the little zoo boxes). I've always loved those, and these are just as good, taste the same if not better, are nice and crunchy and fresh tasting. I'm really impressed they could do this! So for animal cracker fans, get these! Unfortunately... -
ARCHIVED Anyone Doing Scd?
CMCM replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I found the book about a week ago when I was in Barnes & Noble, so I bought it. It was so fascinating I read thru the whole thing in one evening. It just makes so much sense to me! Now I'm going to go back through it and figure out how to plan my eating, especially how to eliminate the dairy and still get what I need food-wise. I think one reason... -
ARCHIVED What Was You Iga #
CMCM replied to Moongirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I also did the stool test via Enterolab, after about 6 weeks gluten free, and mine was 24 where less than 10 is considered "normal." -
ARCHIVED Is This A Gluten Problem?
CMCM replied to WHYNOT's topic in Parents, Friends and Loved Ones of Celiacs
Here's what I think: With all the growing knowlege about celiac disease and its prevalence in the general population (perhaps as high as 1 in 100 people), for any sort of digestive problem it is a wise and good idea to test for celiac or gluten sensitivity (same spectrum of reaction, but gluten sensitivity is designated as celiac disease when, thru a biopsy... -
GO NINI! I agree 100%!! It really puzzles me why so many people just think a doctor must know EVERYTHING, when it is obvious they do NOT. In their defense, how could they? But what I take issue with is a lack of desire to FIND OUT when they are faced with a puzzling patient with symptoms they can't figure out. And if ALL OF US can figure out so much...
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Your doctor obviously knows next to nothing, and I'm a huge believer in self knowledge....so my suggestion is for you to take control of all this by thoroughly educating yourself.....very easy to do because there are some GREAT books out there, and this forum is also a HUGE resource. I've put together a list of 5 books which I myself just read over the...
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From www.kinnikinnick.com. I've tried a bunch of their stuff...the donuts w/chocolate icing were GREAT. The plain bagels were pretty good...my son even liked them. I got the animal crackers but haven't opened them yet so I can't comment on them yet. I also got some rice krispy type cereal for making krispie treats. Next time I'm going to order some...
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ARCHIVED Dr. Green's New Book
CMCM replied to CMCM's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, I was kind of surprised to read that too. I just threw out a huge bottle of my favorite shampoo because it had TWO wheat ingredients in it. When I've had my hair done (coloring) several times I had some weird kind of scalp reaction....I could feel it, and it was there for a few days and my scalp was itchy. I don't think it was the coloring....but... -
ARCHIVED Anyone Doing Scd?
CMCM replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think I'm going to do the SCD as well, I'm just having too many problems with all sorts of things, including rice (which I thought was supposed to be so benign to the system). Since I can't have dairy either, I'm going to try the coconut milk yogurt...I've got to locate the post here somewhere that tells how to do it. I think it was 2 cans of coconut... -
Same thing used to happen to me sporadically....thank goodness it wasn't daily! And often the attacks would strike in the middle of the night, too! I'd have D but also be feeling like I was going to throw up, so I'd be sitting there with a garbage can nearby cuz I sure couldn't get up from where I was sitting! What I can't believe now that I look back...
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Jen...what kind of psyllium do you use, and how much? I had always heard that psyllium was such a small amount it wasn't all that useful, but I've never tried it.
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ARCHIVED Weight Loss Then Gain/depression/help
CMCM replied to bknutson's topic in Coping with Celiac Disease
Barb....you don't mention what you are currrently eating, but here's what I found with myself: Feeling depressed and deprived about the whole thing (and I not only have to eliminate gluten, but dairy as well....not much fun stuff left to eat for me!!), I started checking out all the gluten free goodies out there...the cookies, crackers, chips, cakes....... -
Outback is great, although you have to read the menu carefully. It has a lot of the regular items on it, except you have them remove certain things, such as sauce on the veggies, etc. Our waitress was very nice, but apparently hadn't dealt with this before so she didn't know much. I had the brownie dessert and it was great, except the ice cream messed...
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I just found this celiacsociety.com site, and they have a bunch of restaurant lists showing what is gluten free and what isn't. Oddly enough, Burger king seems to have more for us to eat than Mickey D! Here's the link: Open Original Shared Link
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ARCHIVED Gluten-free "newbie" Package
CMCM replied to shellbean's topic in Coping with Celiac Disease
I think your advice about NOT trying the gluten free substitutes for awhile is very very GOOD. I've been trying the subs and having some problems, and the things I try, despite being both gluten and dairy free, have seemingly caused some upsets. Since everything else I eat is just plain meat, veggies, fruit, I have to assume it's the specialty foods I'm...