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Latest Celiac Disease News & Research:
Everything posted by lonewolf
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	  ARCHIVED Friend's Child Is Sickly - Celiac Symptomslonewolf posted a topic in Parents, Friends and Loved Ones of Celiacs A casual friend (more like a friendly aquaintance) has an adorable little girl who has been having some health problems. She's extremely small (negative 5th percentile), has had anemia (cause unknown) and her hair has been falling out. She's clingy and barely talks. I asked if she had been tested for Celiac, since my friend said the doctor didn't know...
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	  ARCHIVED Gingerbread Houselonewolf replied to hstevens's topic in Parents, Friends and Loved Ones of Celiacs You can make a gluten-free gingerbread house too - we do every year. I can't get the link to work - will try later, since I'm at work.
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	  ARCHIVED Christmas Goodieslonewolf replied to corinne's topic in Gluten-Free Recipes & Cooking Tips Here's a recipe for divinity. You could leave out the nuts. Maple Divinity 2 cups maple syrup (REAL Maple Syrup - NOT Aunt Jemimah's) 2 egg whites 1/4 teaspoon salt 1 teaspoon vanilla 1/2 cup coarsely chopped pecans PREPARATION: Butter sides of heavy 2-quart saucepan. Add maple syrup; cook rapidly over high heat to hard ball stage (250°) without ...
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	  ARCHIVED All Christmas Cookies: Your Best Receipeslonewolf replied to coronalime's topic in Gluten-Free Recipes & Cooking Tips Here's my favorite easy recipe. Be careful when you roll in the powdered sugar or they'll be Russian Tea "Bombs" Russian Tea Cakes (Adapted from Betty Crocker's Cookbook) 1 C Butter or margarine, softened (but not melted) 1/2 C Powdered sugar 1 tsp. Vanilla 2 C + 2 Tbs. gluten-free flour 1 Tbs. xanthan gum 1 tsp. Ener-G egg replacer 1/4 tsp...
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	  ARCHIVED I Ordered My Enterolab Test....lonewolf replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Not to be too graphic, but you have to be careful. It can only weigh a pound. My son overdid it a bit and I had to remove some You do NOT want to have to do this. (Especially if it is already frozen )
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	  ARCHIVED Devastated! Everything's Fine With Me?lonewolf replied to sonja69's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms A year and a half ago ago my naturopath told me that "you are the healthiest sick person I've ever seen". (She actually did believe that I didn't feel that great, but couldn't figure out what it was.) Right after that I discovered that I was totally gluten intolerant (not by diagnosis, but by trial and error), not just "allergic to wheat". I've felt much...
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	  ARCHIVED Spending The Holiday In Seattle!lonewolf replied to eleep's topic in Traveling with Celiac Disease Go to <www.rei.com> and check their calendar. Sometimes they have some cool stuff (like guided snow shoe trips) around Christmas.
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	  ARCHIVED Another "why Don't They Get It" Threadlonewolf replied to lonewolf's topic in Coping with Celiac Disease Thanks for the supportive posts everyone. I saw my good friend again last night and she made another comment about how I'm overboard on the "gluten free thing" and how she doesn't think my daughter is any better off gluten. I just shrugged it off and said that my DD feels better and that's the most important thing. The interesting thing is that yesterday...
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	  ARCHIVED Stool Test For Celiaclonewolf replied to SanteeBay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms My son tested negative from Enterolab. They test for gluten intolerance, not Celiac Disease. They clearly say that they don't or can't diagnose Celiac.
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	  ARCHIVED What Are The Best And I Mean The Best gluten-free Flourslonewolf replied to zachsmom's topic in Gluten-Free Recipes & Cooking Tips I use the same mix that Patti (Jerseyangel) uses, but use brown rice flour (I guess like Annaliese Roberts) and sift in xanthan gum. I mix my flour like this: 3 C Brown rice flour 1 C Potato starch 1/2 C Tapioca starch 2-1/2 tsp. xanthan gum Sift together 3 times and store in the fridge. I make all my cookies with this - chocolate chip, sugar...
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	  ARCHIVED Are Enterolab Tests Ever False Positive?lonewolf replied to dennymel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms Thanks - we think our pup is pretty cute too. He gets mostly raw meat and we only have gluten-free dry food, so I don't have to worry. I think it's a good idea to get gluten-free pet food because their digestive systems aren't really designed to digest wheat anyway - and it's an unneccessary risk for people who are gluten intolerant. Like Carla, I went...
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	  ARCHIVED Are Enterolab Tests Ever False Positive?lonewolf replied to dennymel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms My son tested negative through Enterolab for gluten sensitivity, so I know they don't tell everyone that they're positive. Funny thing is, my son is doing better on the gluten-free diet, so I don't know what's up. He did show two copies of the same gluten sensitive gene.
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	  ARCHIVED Another "why Don't They Get It" Threadlonewolf replied to lonewolf's topic in Coping with Celiac Disease Thanks Patti, I just can't figure some people out. I'm like you - not confrontational. I keep trying to get up the courage to say something like, "Have I ever told you what to eat or question what you feed your kids? Please do me the same courtesy." What is so bad about not eating gluten? I feel like I'm on trial for child abuse sometimes. It...
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	  ARCHIVED Another "why Don't They Get It" Threadlonewolf posted a topic in Coping with Celiac Disease My 15 year old daughter discovered, during past year, that she is gluten intolerant. She did a project on Celiac Disease and decided to try gluten-free for herself. She was amazed at how much better she felt, and she wasn't sick to start with. She's slimmed down a bit - she's at a very healthy weight- her periods are much easier to deal with and she just...
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	  ARCHIVED I Know What Alivia's Biopsy Result Is Nowlonewolf replied to Nikki2003's topic in Parents, Friends and Loved Ones of Celiacs I'm sorry she has the damage, but happy that you have an answer.
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	  ARCHIVED So What Is Every One Eating...?lonewolf replied to zachsmom's topic in Parents, Friends and Loved Ones of Celiacs It really isn't that hard to switch to gluten-free. I make gluten-free cakes and pies and have for several years. Lots of people here like the G F Pantry pie crust mix - it's probably easier than from scratch, but I make it from scratch and don't think it's hard. There are several good cake recipes here on this site (go to the "Site Index" and then scroll...
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	  ARCHIVED Constipation With Celiac?lonewolf replied to Electra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms I had the same thing for most of my life before going gluten-free. I have never tested positive for Celiac though, so maybe I can't help. (The only Celiac testing my doctor did was after I'd been off wheat and had almost no gluten for almost 10 years - no surprise that everything was normal.) All I know is that everything is running "regular" since I got...
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	  ARCHIVED My Cousin Doesn't Get Itlonewolf replied to schuyler's topic in Parents, Friends and Loved Ones of Celiacs Hi Danielle, I remember praying for you and the boys and then rejoicing when they started doing so well. It is a big committment for anyone to keep their kids on the diet, but it's not as "restrictive" as it seems. I hope she reconsiders for the good of those 3 little boys. It's easy to attribute bad behavior to all kinds of things, but if the kids behaved...
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	  ARCHIVED Help Me Substitute For Wheat Flour In My Christmas Fruitcake!lonewolf replied to mamatide's topic in Gluten-Free Recipes & Cooking Tips Try mixing up 3 C Sorghum or Brown Rice flour, 1 C Potato starch and 1/2 C Tapioca starch with 2 tsp. of Xanthan gum. Sift it 3 times. I use Br. Rice, Potato and Tapioca, but have used Sorghum too. I use this in all my baking and it turns out great - I'm sure it would work for fruitcake.
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	  ARCHIVED Before Going gluten-free Was Anyone Else Always Hungry?lonewolf replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease The whole time I was growing up and well into adulthood I was always hungry. It's a lot better now, but I still have a few extra pounds.
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	  ARCHIVED Have To Share This....lonewolf replied to TinkerbellSwt's topic in Introduce Yourself / Share Stuff Yay for Colin! What great news! He's an adorable little boy - you should be proud of him!
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	  ARCHIVED A "gluten-free" Product Which May No Longer Be Gluten-freelonewolf replied to Number Cruncher's topic in Gluten-Free Foods, Products, Shopping & Medications Yikes! I have several cartons of Imagine Tomato Soup (it's the only tomato soup I've found that doesn't have milk) and they all say "Gluten Free" on the container. I haven't had any reactions. I think I will stock up now before the gluten-free cartons are replaced.
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	  ARCHIVED Enterolab Gene Testlonewolf posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms My son had his gene test a few months ago and I thought I understood what it meant. I was just looking at it again, trying to explain it to someone and realized that I don't have a clue. Can someone here help me out? HLA-DQB1 Molecular analysis, Allele 1 0301 HLA-DQB1 Molecular analysis, Allele 2 0301 Serologic equivalent: HLA-DQ3,3 (Subtype 7,7...
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	  ARCHIVED Your Personal Celiac/gluten Intolerance Storylonewolf replied to emcmaster's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease When I was growing up my mom took us to a "church" that didn't believe in doctors. I never had vaccinations, never missed a day of school for illness and went to the doctor once when I was 12 for an x-ray and the second time for a physical for my college basketball team at age 18. I did get sick occasionally, but since it was "against my religion" it was...
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	  ARCHIVED Gluten & Egg Free Meatloaflonewolf replied to AmyTopolski's topic in Gluten-Free Recipes & Cooking Tips I think it's Lea and Perrin's. I'm out, but need to get more for Christmas time "Chex Mix". Probably should have thought to save the bottle or wrapper so I could get the same brand. I don't think mine had soy in it - I'm allergic to soy. I'll be so bummed if they've changed the recipe.
