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Latest Celiac Disease News & Research:
Everything posted by lonewolf
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ARCHIVED Joint Pain/ Aches
lonewolf replied to covsooze's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was almost crippled with arthritis about 10 years ago. I eliminated gluten, dairy, eggs, soy, beans, beef, nightshade vegetable, peanut butter and more. Actually, all I ate for a year was fish, rice, some vegetables, some fruits and sunflower seeds. I'm really not kidding. I started to get better almost immediately, but it took almost a year to get... -
ARCHIVED How Long After Going On A Gluten-free Diet Do Symptoms Lessen
lonewolf replied to UzairH's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you tried acipdophilus or another type of pro-biotics? You might also have a problem with the balance of bacteria in your intestinal tract or a yeast overgrowth. It's one of those things that can't possibly hurt to try. Liz -
ARCHIVED Could I Be Anymore Pathetic
lonewolf replied to Firegirl43's topic in Coping with Celiac Disease
I can so totally relate to being "dumbfounded". I found out one day (almost 10 years ago now) that I couldn't have wheat, as well as several other foods and literally had nothing in my house that I could eat for dinner. I cried. It took a while to figure it all out and I didn't have any resources - no internet or anyone I knew that had any food restrictions... -
ARCHIVED Rice Crispy Treats
lonewolf replied to ebrbetty's topic in Gluten-Free Recipes & Cooking Tips
If you can't have butter or margarine, try coconut oil. It's available at health food stores. Liz -
ARCHIVED Seattle Area Anyone?
lonewolf replied to pborschowa's topic in Introduce Yourself / Share Stuff
I'm in Federal Way. One of my children is gluten-free too. Just went to Kaili's kitchen in Edmonds today. It was a little, let's say, informal, but sure was nice to have fish and chips for the first time in 10 years. Liz -
I love "Doc"! I was so sad when they cancelled it. I'll be sure to watch all the reruns (again) to catch that one. Liz
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ARCHIVED Could I Be Anymore Pathetic
lonewolf replied to Firegirl43's topic in Coping with Celiac Disease
Why didn't you eat your delicious sauce on gluten-free pasta? Do you have a way to get it? If not, it's pretty easy to make. Gluten Free Pantry makes a good Country French Bread mix that's easy to make and tastes great. If you'd like help converting some of your favorite recipes to gluten-free, let us help you! I'm sure you could enjoy meatballs, sausage... -
My family is going on a mission trip to Mazatlan in April. (I'm sure we'll enjoy the beach too, but we're going to help with a feeding program that helps people who live off the dump.) We won't be going to any fancy restaurants with well-trained chefs. I'm wondering if anyone has any tips for travelling in Mexico. Aside from the "normal" things I will...
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ARCHIVED Why Does The Dang Bread Fall After Coming Out Of Oven?
lonewolf replied to jenvan's topic in Gluten-Free Recipes & Cooking Tips
I just baked bread today and it didn't fall. I have had more bread baking disasters in the past 10 years than I want to admit, but I've learned quite a few things from all my mistakes. Baking at a lower temperature for a longer time is very good advice. The "dough" has to be moist. It really is more like batter. This doesn't seem right if you're used... -
ARCHIVED Confused About Testing For My Kids....
lonewolf replied to wolfie's topic in Parents, Friends and Loved Ones of Celiacs
My son would have eaten an entire package of the Kinnikinnick K-Too's - for $3.99 a pack I DON'T THINK SO! I did let him start eating a few when he went gluten-free, but now they're gone. My last name is Wolf. We go to play Laser tag a lot (live near one, have 2 boys that love it) and I always use "Lonewolf" as my "codename". So it just popped into... -
ARCHIVED Confused About Testing For My Kids....
lonewolf replied to wolfie's topic in Parents, Friends and Loved Ones of Celiacs
It's a very long story, but the short version is that I had horrible arthritis, got an ELISA test done to see if I had food allergies/sensitivities and found out I was sensitive to wheat as well as several other things. I went on a VERY strict diet and completely got over the arthritis. When I tried to start adding spelt and other gluten containing foods... -
ARCHIVED We've Been Invited For Supper!?!
lonewolf replied to amymh's topic in Gluten-Free Restaurants
I've had this happen quite a few times. I can't eat eggs, dairy or soy either, so that usually makes it impossible for other people to cook for me. I usually just tell them that I have severe food allergies and I'll bring something for myself to eat, but would love to come to enjoy the company. Almost always, they will offer to make something special,... -
ARCHIVED Confused About Testing For My Kids....
lonewolf replied to wolfie's topic in Parents, Friends and Loved Ones of Celiacs
Hello Wolfie, Wonder if we're related? Your story sounds similar to mine - I haven't been diagnosed, but had such a positive response to gluten-free that I'm not about to suffer again to try to get positive results from tests. After talking to my doctor, she agreed that the kids should be tested, so I took them to the pediatrician and told him I wanted... -
ARCHIVED Press Reporting -- Soy-based Foods Bad For Us!
lonewolf replied to ms-sillyak-screwed's topic in Publications & Publicity
I think soy is pretty close to poison in anything more than small amounts. A teaspoon of soy sauce in a recipe might be okay, but I think mainstream research will start showing that all these people who eat large amounts of it are having problems. I know for me that drinking soy milk really exacerbated my joint pain when I had arthritis. And it can block... -
ARCHIVED Would You Cure Yourself If You Could....
lonewolf replied to Jnkmnky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Of course, I can't remember exactly what it does to to the grain. The book, "Nourishing Traditions" by Sally Fallon explains it. It's something to do with the digestibility. (If I wasn't still suffering from brain fog from being glutened yesterday I'd go look it up.) I wouldn't try it either, but it's also interesting to note that rice doesn't need to... -
ARCHIVED Would You Cure Yourself If You Could....
lonewolf replied to Jnkmnky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'd just like to add a comment to the off-topic discussion. Traditional cultures always soaked or fermented their grains before eating them. (And of course, their grains were not hybridized.) Think sourdough bread, etc. This is something that was lost in most of Western civilization in the mid-19th/early 20th century. Would be interesting to know if... -
ARCHIVED Pancake & Waffle Mix
lonewolf replied to mamaw's topic in Gluten-Free Foods, Products, Shopping & Medications
In all seriousness, I think pancakes are the easiest gluten-free/CF thing to make from scratch. I follow the recipe in Betty Crocker, just substituting my gluten-free flour mix cup for cup and use rice milk. I make them egg-free too, but they aren't quite as good that way. My kids don't even know they're gluten-free and I have made them for my daughter... -
ARCHIVED Was Thinking Maybe It Was All In My Head
lonewolf posted a topic in Coping with Celiac Disease
I know others here have said things like, "I thought it was all in my head, so I ate _______ and then suffered." So I know I'm not alone. Since I've never been officially diagnosed, just know that I feel way better off gluten, I have started thinking again that maybe I don't have to be so careful. My family wanted to go to Azteca Mexican restaurant after... -
ARCHIVED celiac disease And Other Food Intolerances?
lonewolf replied to ebrbetty's topic in Coping with Celiac Disease
I use rice milk (not Rice Dream, like others have said) in pancakes, muffins, waffles, etc. I've done it for almost 10 years and it works great. Liz -
ARCHIVED celiac disease And Other Food Intolerances?
lonewolf replied to ebrbetty's topic in Coping with Celiac Disease
Rice and almond milks are good replacements for dairy - why not just try one of those and see how you feel? Soy is horrible for me. I found out on my own, like you, by drinking soy milk and having a reaction. I was tested later and it just confirmed what I had already figured out. Liz -
ARCHIVED Gluten Intolerence And Thyroid Problems
lonewolf replied to tiffjake's topic in Related Issues & Disorders
I have hypothyroidism too, but found out that I don't have either of the main genes for Celiac. I'm most definitely gluten intolerant though, so there's a connection somewhere. My mother and both sisters are also on thyroid meds but none of them are off gluten. -
ARCHIVED Not Tested For celiac disease
lonewolf replied to sabrinajanae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Welcome aboard! It does sound like you have Celiac or gluten intolerance. If you feel better gluten-free, then by all means stick with it. From what I've experienced, read, and heard, a reaction to gluten can last anywhere from 2 days to 2 weeks. So it's very likely that you're feeling the effects from Monday. Also, have you eliminated... -
ARCHIVED Prepackaged gluten-free Flour Vs. Homemade
lonewolf replied to lonewolf's topic in Gluten-Free Recipes & Cooking Tips
Did you put in xanthan gum? It's really crumbly without it, but works great with about 1/2 tsp. per cup of flour. And I like brown rice flour instead of white rice. Liz -
ARCHIVED Nephrotic Syndrome/minimal Change Disease
lonewolf replied to Jnkmnky's topic in Related Issues & Disorders
I actually have Minimal Change Disease. I don't know a lot about research that links it with Celiac, but I know from my experience that Gluten Free helps me. It's uncommon for adults to get it (I was diagnosed at age 39) and they usually have a hard time staying in remission. It's a disease that goes through periods of remission and relapse. I realized... -
ARCHIVED Getting Closer With A Support Group
lonewolf posted a topic in Introduce Yourself / Share Stuff
Hello everyone in South King County, North Pierce County, Washington. I am hopeful that we can get an informal support group going at a health food store in Federal Way. I now need to talk to the owner, who is on vacation. It looks like they have openings in their "seminar room" twice a month on Sunday afternoons and possibly on Monday evenings. The manager...