RiceGuy
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Latest Celiac Disease News & Research:
Everything posted by RiceGuy
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ARCHIVED New To This!
RiceGuy replied to BelievinMiracles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know about the pudding, but oats are not for every celiac, and most are contaminated with wheat anyway. The ramen noodles are wheat based noodles, so it isn't any wonder you got sick on those. The advice about searching the board is good, but I'm sure this thread will get plenty of attention either way. Hope you feel better soon! -
What a great story!! ...but I still ain't gonna eat fish LOL!
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ARCHIVED Baking Gluten And Rice Free?
RiceGuy replied to Green12's topic in Gluten-Free Recipes & Cooking Tips
Many of the "experts" believe that millet and sorghum are related, so it would be interesting if you are able to have sorghum. It really does work well for breads too, so I hope you can. I think ivory teff flour works well for breads, though I haven't tried it as the main ingredient. Have you tried that one? Anyway, here's a really nice selection of... -
ARCHIVED Can It Happen This Fast
RiceGuy replied to jrose's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have heard of reactions from the aroma of wheat products, and I've also heard of such severe intolerance, so as to cause the person to lose muscle function and literally drop to the floor, just from getting within 20 feet of the offending substance, even though it was in a sealed bottle. However, I agree that this seems unlikely, and considering your... -
I just looked up the complex carb issue in relation to candida, and found the following: Open Original Shared Link Open Original Shared Link Open Original Shared Link
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AFAIK, honey will feed candida much more than carbs. It has always been my understanding that carbs only feed candida slowly, and the digestive system breaks them down into simple sugars. Yeasts don't thrive on complex carbs like they do sugars, but they can live on it.
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When checking soaps and so forth, look for ingredients like wheat protein, barley extract, etc. Basically anything from wheat, barley, rye, and possibly oats if you're sensitive to them. You can also look up the manufacturer online and find their site, and check their FAQs for a gluten-free product statement.
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If the recipe calls for dairy, that would be the reason to include baking soda. The soda neutralizes the acid in the dairy, so the baking powder doesn't fizzle out before you get the dough in the oven. Therefore, if you omit dairy and other acidic ingredients, you should be able to omit the baking soda. If it where me, I'd probably just use a little unsweetened...
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ARCHIVED What Can I Make For Bread?
RiceGuy replied to kjbrown92's topic in Gluten-Free Recipes & Cooking Tips
AFAIK, sorghum has no relation to corn. I have read that sorghum and millet are considered to be related by many but not all scientists who study such things (botanists?). I gave up rice flour in favor of sorghum and millet, because rice flour is gritty. In fact, rice flour is the only flour I find gritty. As for reacting to gliadin and not gluten,... -
I suppose it's possible for the reaction to have taking a week to begin, but have you ruled out things other than food? For instance, skin/hair care products, soaps/detergents, etc? Fabric softener sheets, postage stamps or envelopes, using a bar of soap at a friend's house, using a public restroom, kissing someone who recently ate gluten, a grocery cart...
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Well, for me it would be impossible. I mean, how do you make a meal without cooking anything? OK, I suppose you could eat raw veggies and fresh fruits, but I don't think that's what you mean, is it? Frozen dinners perhaps? Prepackaged gluten-free stuff is pricey, and eating out all the time is not only expensive, but I'd say the risk of getting glutened...
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ARCHIVED Gluten-corn-lactose-egg-sulfites-sulfate-sulfa-sulfure Free Meals What Do I Eat
RiceGuy replied to Gerri's topic in Food Intolerance & Leaky Gut
Well, there are many gluten-free grains you could have, including Kasha (roasted buckwheat), amaranth, millet, and teff. Beans and lentils are also good, but too much protein might not be advisable if you're dealing with malabsorption issues. If you find certain joints getting puffy, such as the ankles, that can be due to excess proteins. As was stated... -
In my experience, it didn't take abstaining from complex carbs. I just avoided sugars, yeasts, vinegars, and fruits, and I took caprylic acid capsules. The garlic and probiotics should help too. I doubt carrots and peas are going to mess up your efforts. I think the extremes you go through depend on how bad the infection is, how strong your system is, etc...
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ARCHIVED Antibiotics
RiceGuy replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In addition to what others have said, I'll just add that antibiotics do tend to kill off helpful intestinal bacteria, allowing candida to proliferate afterwards. This doesn't sound like that is happening in your case, but it's something to keep in mind. -
ARCHIVED New Memer - Seeking Information
RiceGuy replied to HulaGirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My first thought is to suggest magnesium and a sublingual methylcobalamin (B12). Have you tried these? Another might be zinc. Also, some of the symptoms you describe (itching in particular) sound like candida, so I'd suggest caprylic acid for that. And of course, those omega-3 fatty acids might help too. -
Wow, thanks! I hope the chia seeds work well enough, as it would save money over what it's costing me for the xanthan. They also have vanilla beans way cheaper than anyplace I've seen yet! Maybe I'll try the grownd one first, since I don't have a coffee grinder. Then if it works, I'll make the investment.
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ARCHIVED Hi Do You Remember Me? Really Need Some Advice Guys
RiceGuy replied to needtobebetter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, I don't see anything in what you've said that would rule out gluten intolerance or Celiac. Just keep in mind that Parry Romberg Syndrome, like IBS, has no known cause. That's basically the way it is for most if not all systemic diseases (stuff not caused by and invading organism). So even if they say you have Parry Romberg, it gets you no closer to... -
ARCHIVED Food
RiceGuy replied to cazzie's topic in Gluten-Free Foods, Products, Shopping & Medications
Opinions on the best breads vary greatly, but one thing which seems to be agreed upon is that homemade is the best (when it comes out right!). I haven't eaten any prepackaged breads, but others have, so I'm sure you'll get plenty of suggestions. -
Xanthan gum is a bit stretchier, thus better for breads, while guar gum is a bit spongier, thus better for cakes. However, guar gum tends to hold more moisture, so it can make things a little gooey depending on your recipe. If it turns out too dry with xanthan, guar gum might help. I've seen recipes calling for a blend of both too.
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ARCHIVED Cross Contamination
RiceGuy replied to LuvMoosic4life's topic in Coping with Celiac Disease
That's a great analogy! I Wish I thought of that myself! I'm definitely using it. -
ARCHIVED Hi Do You Remember Me? Really Need Some Advice Guys
RiceGuy replied to needtobebetter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow. So sorry that you've been having such a horrible time. It does sound to me like there are multiple things going on. While I cannot offer an "official" explanation or "expert" advice, what I'd say is massive malabsorption and candida. Both seem likely due to Celiac. I don't know what supplements you might be taking, but if I were dealing with the issues... -
ARCHIVED Sweetened Condensed Milk
RiceGuy replied to sickchick's topic in Gluten-Free Recipes & Cooking Tips
What about coconut milk? I'm sure the thickness won't matter much when xanthan is being used anyway. Plus, if you use sugar (I don't), that also acts as a binder. A little almond butter and water would also work I'd think. I find cookie recipes pretty versatile. I always use water or fruit juice as the main liquid ingredient anyway. What sort of cookie... -
ARCHIVED Can Someone Please Talk Me Off The Ledge
RiceGuy replied to shacon-bacon's topic in Coping with Celiac Disease
Tobacco is a nightshade, to which I react. I guess you already know you cannot come into contact with the glue on envelopes or stamps, stickers, etc. And yes, lactose, or dairy in general might be a problem right now. I'm thinking the dairy is the most likely culprit. Losing fat and losing muscle mass are two very different things. If you are losing... -
ARCHIVED gluten-free Flours
RiceGuy replied to RainyZ's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't noticed any gluten reaction to any gluten-free flours, though I agree it's possible to have CC issues due to where they are grown. There is some debate whether sorghum and millet are related, but from what I've read, millet is considered one of the least allergenic grains on the planet. I suppose if I wanted to be sure whether it was CC or not... -
ARCHIVED Vegan And Now Gluten Free! Help!
RiceGuy replied to givenupgluten's topic in Coping with Celiac Disease
I didn't go to any doctors - learned not to trust them long ago. I suppose it depends on lifestyle, whether your decision is challenged by friends and/or family. But, if the people in your life have seen you suffering, and after going gluten-free they see you feeling better, that I think should be convincing enough.