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tessa25

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Latest Celiac Disease News & Research:

Everything posted by tessa25

  1. tessa25
    Ask them for a copy of all your blood test results. They are required to give them to you.
  2. tessa25
    You could be sensitive to less than 20ppm gluten. You can get a Nima sensor and test all the food you eat to find the hidden gluten. It can take weeks for the antibodies to go up after gluten ingestion and months for them to come back down.
  3. tessa25
    To be clear. I stopped getting migraines when I started taking magnesium daily. posterboy and ennis are the experts on how much to take.
  4. tessa25
    A high TTG should lead to a gastroenterologist doing an endoscopy to verify a celiac diagnosis. Find a better gastroenterologist.
  5. tessa25
    I used to get migraines regularly. They stopped as soon as I started taking magnesium.
  6. tessa25
    Are you saying you never went gluten free in those 2 years?
  7. tessa25
    Feel Good Foods makes egg rolls and potstickers.
  8. tessa25
    Almost forgot. You can buy her some Udi's gluten free chicken florentine, broccoli kale lasagna and regular lasagna (frozen dinners). Quite yummy and quick for her to toss one in the microwave.
  9. tessa25
    Cook the food at her house.
  10. tessa25
    You can buy a pill cutter at the drugstore and do what ennis says.
  11. tessa25
    I changed my lotion to one without gluten in it. I use Jergens daily moisturizer fragrance free. She's probably getting glutened at camp.
  12. tessa25
    I would recommend that you get copies of your blood tests so you know what your celiac levels were at diagnosis. After 3 - 6 months you can retest the celiac blood tests at the same lab and see if your numbers have started going down. If they go down then you know your doing pretty well with the diet. With the undigested foods you can try eating more...
  13. tessa25
    I looked up 341142 celiac disease complete panel and the only test missing is EMA.
  14. tessa25
    Once you go 100% strict gluten free your celiac levels should go down to normal and your nutrient deficiencies should also go back to normal. Others will have to give you vitamin info as I just take magnesium, d3 and a multivitamin.
  15. tessa25
    My DGP blood test numbers go up 6 weeks after eating gluten and my TTG numbers go up 10 weeks after eating gluten. So the 12 weeks of eating gluten requirement makes sense.
  16. tessa25
    Get copies of your test reports and see if your testing was thorough and your results interpreted correctly. The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA See if they ran all of the blood tests. I once had to show a doctor the report line that said I had a full ACL tear after being told I was...
  17. tessa25
    The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA
  18. tessa25
    It's not an allergy. It takes time to do damage.
  19. tessa25
    I would try a whole foods only diet before trying a liquid diet. And my liquid diet is not a clear liquid diet. Try meat, veggies, potatoes (if they don't bother you), butter, cheese if they don't bother you. Hold off on the spicey food.
  20. tessa25
    It's possible there is hidden gluten in your diet. I've found out that my blood test numbers go up for <20ppm gluten so gluten free labels don't mean much for me. My numbers also go up when I eat solid food. At the moment I eat steak and zucchini on the weekend and liquid diet during the week. My numbers go down much quicker on a bland liquid diet.
  21. tessa25
    Silent celiac is when you don't notice a reaction to eating gluten. This quote tells me you do notice a reaction to gluten. So the biopsy showed villi damage, you went gluten free and your symptoms improved, you started eating gluten again and you have symptoms again. Sounds like celiac to me.
  22. tessa25
    I would think that washing the pans in your dishwasher (not over loaded) a couple of times would clean things enough. If they don't have old grease cooked into them.
  23. tessa25
    I can't read that report as the font is too small. Did you get that report on the day of the egd or a week later? If that report says everything is normal with the esophagus and the small intestine you can always try 100% gluten free for 3 months (no accidental gluten) and see if the TTG IGA goes down. You would have to get the blood test done at the...
  24. tessa25
    What apprehensiveengineer said. Great response!
  25. tessa25
    In your position I would try going 100% strict gluten free for three months and retest the high blood test numbers to see if they start going down. Strict is easiest if you eat a homemade meat, veggies, potatoes diet for the three months and avoid processed food to insure you do not eat any hidden gluten.
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