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DandelionH

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DandelionH

  1. DandelionH
    This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites... Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused...
  2. DandelionH
    Wow, JMG. That is such useful information! I hadn't thought about or Googled anything along those lines but that's exactly what it (has always) felt like. It looks (from what I've just read elsewhere thanks to your post) like something not thoroughly researched and perhaps a bit of a myth but so many things start that way before solid research confirms...
  3. DandelionH
    Oh wow, I'm so glad this thread exists. I'm terrified of figuring out pregnancy and such as is without the Celiac complications and then with them added... That's IF we can get pregnant. AND my GP advised avoiding soy because I'm small and it lengthens my cycles by about 20 days (but is otherwise great and delicious. Sigh.) and it's in EVERYTHING gluten...
  4. DandelionH
    Yep, there are threads about this and yep, I'm enthusiastically posting many posts today now that I'm here and happy to find all you guys! But bear with me... The other thread was old and there are new members etc. so I'm curious... Coeliac-diagnosed members, Do you eat dairy? If not, why not? Are your dairy symptoms similar to being glutened? Are...
  5. DandelionH
    Hello! Thanks for the reply and such thoughtful info. Sounds like it's been quite a journey for you but you're sure of where you stand. I can't wait to feel that way! Yes, I'd be glad to add gluten back, because I feel better as a vegetarian than eating meat and vegetarianism is more difficult without gluten (doable but difficult) and I've just reintroduced...
  6. DandelionH
    Ok. This forum is officially my lifeline. Ha. Oh I'm so glad this exists. Just in general. My exact queries are everywhere with helpful answers to boot!
  7. DandelionH
    Ugh! Quinoa! I LOVE it (and it's a useful food in general) so just kept trying and found that every single time it destroyed my guts. Incidentally, there's one coffee brand (definitely gluten-free) that does as well, for me. I suppose trial and error will make things clearer for you and it's not a superfun method (particularly because suspects have to...
  8. DandelionH
    Hi... so... this is going to sound weird... and admittedly it's probably not 'gluten' per se but ... I was miserable for decades and have had a better year (or rather, the year has been the same as many but my baseline emotions are just happier and less moody. Nutrition is such a good thing!) following diagnosis so I wouldn't say gluten was making me happy...
  9. DandelionH
    Ah wow! Happy to find this thread! I was vegan for a long time before my diagnosis and have put dairy and fish back in over the last 6 months and am hating it. I might try being gluten-free vegan again now. Inspired!
  10. DandelionH
    Hi all! I'm not expecting a big response to this post and I know it's all personal etc. anyway but I was diagnosed through blood tests (and family history just over a year ago and have been gluten-free and happy as Larry but now have to do another gluten challenge because some of the tests at the doctor were found to be errors etc. (I know... shocking...
  11. DandelionH
    Yep, it's everywhere! But also just in the form of milk sold as Guersey or Jersey (aka most of Europe's milk and a bit of it here in Aust.) or sheep and goat products. Had a glass of it at 2. It's 5 now. Still rockin'. But as above, maybe the last one was coincidence so tomorrow I test 'normal' (but tasty) organic milk and determine what sort of milk is...
  12. DandelionH
    Glad to inspire some experimentation! I'm personally hoping that, as big dairy corporations say (and can be the case with some health-conscious fads of course), it's an unsubstantiated myth because eating any dairy is easier than eating specific dairy but then... it's working for a lot of people I know who are 'lactose intolerant' and feeling good is good...
  13. DandelionH
    I'm sure this has been covered here but I'm not debating the theory... more just looking for your personal experiences ! I started eating dairy again recently and am thrilled that yoghurt and probably cheese have no ill effect. I even got up the guts (ha) to start drinking coffee at the local coffee shop...WITH MILK. As in... not even fermented. JUST...
  14. DandelionH
    Sorry, I mean glucose syrup from wheat . Or dextrose, for that matter. Those things with minimal ppm that are technically safe and many people don't react to but some do. Someone was telling me it was because there IS no gluten but a lot of celiacs are allergic to wheat and do react because of that (hence packaging saying 'contains wheat' but not 'contains...
  15. DandelionH
    Hi hi! Just a question for the people who do react to glucose syrup... Are your symptoms the same as with a regular glutening or slightly different or...?
  16. DandelionH
    Hi! (You guys know so much... I'm trying to soak it all up. Thankyou always for shedding wisdom on alllll the things and I hope you can on this.) Inspired by my rapid improvement having discovered I was Coeliac, a friend who's commiserated with me for years got her genes tested (negative blood results but she'd been off gluten for a while?) to see if she...
  17. DandelionH
    Wait...so... the pill kills your cycles? I thought it just made them regular? Can soy milk be the same? I drank it for years and when I stopped I lost my cycle. I just thought I didn't have enough estrogen naturally and soy milk had been 'making it happen' but maybe I do and it's just all messed up...
  18. DandelionH
    This is all great to know! I could have written exactly what the first poster said. I have an ample chest, some fat on me and have always been little but my BMI is technically 15 (I just worked this out) following being unwell for so long and I want to get pregnant and have a healthy baby! Extra weight would be useful but I'm already eating all the time and...
  19. DandelionH
    I don't have one . I lost it when I stopped drinking soy about 4 months ago (hurts my stomach. Drank it for about 5 years). The exact month I stopped. Perhaps coincidence but who knows. Admittedly I have a BMI of about 15 still (healthy! happy! active! eating! More than most people, in fact. Just never gained it back after being sick for years)... I was...
  20. DandelionH
    Yep, I'm only just now realising how regularly people do actually change their brand ingredients or info. Barley malt isn't listed on the white or 70% in Australia. Since it IS listed on the other chocolates I'll go with it being ok...
  21. DandelionH
    So nobody in Australia has gotten sick from the 70% or the white then... right? O.o I love those two but have been having some strange continuing issues I'd like to get to the bottom of and am just realising this may be it (I'm a regularly consumer... ha. Regular is an understatement...)!
  22. DandelionH
    Ah wow! Great thread! I wonder how many others have shifted their omni-veg eatings after diagnosis? I was basically vegan with occasional fish when I was diagnosed (vegetarian for sustainability reasons and lactose-intolerant!) and have recently embraced dairy again as my body has healed. I thought I'd feel weird relying on animals as much as I do now but...
  23. DandelionH
    Wow! Interesting! And I'm sorry your other family members went through that without the knowledge we're lucky enough to have about dealing with it now. <3
  24. DandelionH
    Oh gosh! Really?! Yikes. I might adopt the 'brush first' attitude too after reading this thread. I wonder if that explains a few inexplicable CC events as well... Bother . I don't want to be that person. Even though he doesn't mind. Part of me does. I guess that's also the part that doesn't like clarifying that a waiter heard me and gets that this is serious...
  25. DandelionH
    I can really relate to this! But can safely say it's fading. Originally when I started I was terrified of even gluten-free processed foods 'just in case' someone working on the production line had eaten gluten and touched something. Or... I don't even remember the other scenarios that were in my head but I do remember how exhausting that need to control it...
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