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Celiac Nutritionist

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Celiac Nutritionist

  1. Celiac Nutritionist
    I know there has been a lot of suggestions to go and talk to you doctor already - so I am on repeat - to get the best / accurate results - gluten should be eaten prior to the scope being done. I hope that you can get/ or already have been able to get the appointment bumped up - keep calling the doctors office and keep pressing them to move your...
  2. Celiac Nutritionist
    Hi, Lacey. Sounds like you have tried a lot. I just read the post that you have tried some of Dr. Axe's suggestions - that is great to see that they are helping! Have you done any specific work before with any of the other practitioners to specifically heal the gut? Keep us posted on the Dr. Axe protocol and don't hesitate to reach...
  3. Celiac Nutritionist
    O I feel your Migraine pain! That was my one and only symptoms for YEARS and YEARS..... until one day finally it all turned into tummy problems and joint issues, (the list goes on and on...) Often you will notice your "main" symptom/s appear pretty soon after eating gluten (some its minutes, others its a day or so..). Following the proper diet...
  4. Celiac Nutritionist
    How scary to watch your child go through what you have seen. I wish you huge luck with both biopsies. In urge before you and your daughter go gluten free - celiac can also be "silent" - and it is very common and normal to run in direct relatives- I would HIGHLY RECOMMEND you and your other children (even your spouse) seeking appropriate testing...
  5. Celiac Nutritionist
    I thought this would be a good resource for the newly diagnosed! What were the first celiac/ gluten free related pages you joined on Face book after being diagnosed???
  6. Celiac Nutritionist
    Hi! I would LOVE to discuss this with you and see if anything ever came of it! (Being 6 years later, I wonder how things have changed...?)
  7. Celiac Nutritionist
    Hi, Sterling. If it's possible - try and find out through your reports if there is ANY percentage of villi atrophy. Glad you are seeing a gluten consultant, is it at one of the celiac centres?
  8. Celiac Nutritionist
    When you are in the field, your mind always goes to the worst because you "know to much" - use your knowledge to research and logically think things through (which is super crazy difficult to do when its ourselves). That is not very cool that she said she didnt see "anything" - but maybe nothing of "concern" to her means nothing? I hope your insurance...
  9. Celiac Nutritionist
    That Tea blend sounds great I would caution that the Match may have the opposite effect of what we sometimes want green tea for (to calm and chill out with!) - Matcha can be quite stimulating!
  10. Celiac Nutritionist
    Green Tea is amazing for a ton of things. For joints it can help to bring down inflammation in the joints. Whatever brand you decide on, you can always call and ask questions about processing, if it comes into contact with anything that contains gluten etc.
  11. Celiac Nutritionist
    My rule is if it started with gluten or gluten in it - avoid it! Glad to see this labeling coming down the line.
  12. Celiac Nutritionist
    I have spoken with New Chapter on this topic a lot, and unfortunately I love them but can not recommend them from anyone with Celiac Disease- You are best to avoid anything grown or fermented on wheat (although the fermentation process minimizes the amount of gluten drastically). Quinoa is generally recommended as safe, although some celiacs have reacted...
  13. Celiac Nutritionist
    Do you have a good high speed blender, you can try and make a version of it at home! (Free of all the extra crap!) I LOVE home made almond and coconut milk also For Quinoa milk: Cook Quinoa Use one cup quinoa and 2-3 cups water, add 1-4 medjool dates, a pinch of himalayan salt, and cinnamon! BLEND. You can chose to leave...
  14. Celiac Nutritionist
    Do you have a copy of your pathology biopsy report? Yes? What exactly does it state? (ie: does it have any atrophy or duodenitis stated on the report?) No? - Ask your doctor for a copy. Is the pathologist unfamiliar with Celiac Disease? (this could potentially effect the results).
  15. Celiac Nutritionist
    They need to have taken at least 4-6 samples for accuracy. Many GI don't know this yet and only take one or two. Question both your Gastroenterologist and the pathologist to ensure that they are both familiar with Celiac disease. To respond to your question about if its still possible... maybe yes. If enough samples were not taken, it...
  16. Celiac Nutritionist
    Can you post a copy of the report?
  17. Celiac Nutritionist
    Were you diagnosed with DH? Have you started a gluten free diet to see if your symptoms clear up?
  18. Celiac Nutritionist
    Awesome news! Let us know what your results are like! This is just a guess about the capsule endoscopy - but he might want to see if anything else is missing/ out of place / everything is functioning how he things it should be. Did they schedule one already or are they waiting for the results of the first one?
  19. Celiac Nutritionist
    A lot of people with Celiac still react and have symptoms after consuming even certified gluten free oats (they still usually contain up to 20ppm of gluten - which is enough to trigger issues in some of us - myself including).
  20. Celiac Nutritionist
    Hey, Molly My recommendation is to always contact companies - so that is awesome that you have done so! Unfortunately it is pretty common for someone in the positions of replying back to customers to not know the answers correctly the first time and there for we need to push a little harder. If you can, try and choose products that have...
  21. Celiac Nutritionist
    This is the biggest risk with self-diagnosing - that once you start to feel better and then you have a few things come up you wonder if you were wrong. What exactly is the pain like and how long does it last for? Had you seen a dr. around that the time your were first having pains? If so - maybe they have some blood work results that you could...
  22. Celiac Nutritionist
    Crissy, are the bumps like little blisters? Have you had a chance to read about some DH? Although common for DH patients to test negatively on Celiac tests, they should still avoid gluten entirely. Just to clarify then, you have not been diagnosed with Celiac then? (referring to the ER dr. running tests - or have you previously been diagnosed...
  23. Celiac Nutritionist
    Sorry to hear about all your itching! Your body sounds like it may be having a histamine response to something(hives etc.).... The histamine response can be increased / much more irritating if you are even slightly dehydrated. So drink up! (2-3 litres a day- and see if anything changes!) When you first went gluten free was the itching the only...
  24. Celiac Nutritionist
    Is your son on any current supplementation? (vitamins / probiotics/nutriceuticals/ pharmaceuticals?) - And do you know of any other already diagnosed health issues? Dry skin (especially with Celiac Disease) can often be indicative of still not absorbing enough Essential Fatty Acids (or not getting enough in the diet to absorb), and or Thyroid imbalances...
  25. Celiac Nutritionist
    If someone removes Gluten before testing is done, they are at high risk for false test results. I wish you luck, I know it will be be hard for an additional month. Have you spoken with you parents? Let them know if you have not, and please do see a doctor for proper diagnosis.
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