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SLLRunner

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Everything posted by SLLRunner

  1. SLLRunner
    Your doctors are wrong. Read the links that @squirmingitch posted. If you still have DH, you have the skin adjacent tested, not the lesions. If the doctors suspect celiac then they have a 100% duty to test for DH and/or to take blood work and do an endescope.
  2. SLLRunner
    Welcone, @SunshineSometimes. Have you been diagnosed with DH? I ask because DH is an instant celiac diagnosis. In other words, has an area adjacent to the rash been biopsies and come back as positive for DH? If not, then you must continue eating gluten until all testing is complete.
  3. SLLRunner
    Welcome, @Airhi! You're right, your posting is quite long, so after awhile I scrolled to the end to find your questions. The only way to know whether you have celiac or not is to be tested, which includes blood tests and an endoscope. There are over 300 symptoms of celiac disease, but it can be present with no symptoms at all. I urge you to continue...
  4. SLLRunner
    Welcome, @BeeGfree. Are you aware you responded to a thread that was started in 2005, with its last post in 2012? I am sorry, but you may not get a response from any of those posters because they may not be around anymore..
  5. SLLRunner
    Welcome, @littlesquirrellygirl. I am not sure if you realize you're realize you are responding to a post from 2013. Seriously, I just wanted to welcome you and encourage you to share some of your experience.
  6. SLLRunner
    Welcome, @Debbie Stevens! I'm glad you found something from Amy Myers that helped you. However, keep in mind that she is not a celiac specialist, and when you go to her website your first image is her smiling face with her book behind it. She is clearly on a sales campaign. Besides, candida and celiac are two different things.
  7. SLLRunner
    Well, their website does say gluten free. Could you be reacting to something else in the tablets?
  8. SLLRunner
    That's right....not celiac educated.
  9. SLLRunner
    Welcome, @Chase80. As your doctor to refer you to a celiac saavy GI and start with the full blood testing for celiac. Do not go gluten free until all testing is complete, otherwise results will be invalid. I was diagnosed with GERD and Gastritis and medication has not helped a bit. In fact, it seemed to make it worse and I stopped taking it. Unfortunately...
  10. SLLRunner
    This seems a bit harsh. Not being celiac savvy, I believe the she thought she ordered them all.
  11. SLLRunner
    Welcome, @Adm08. Celiac has over 300 symptoms, and you can have celiac without having any symptoms at all. The problem with celiac is that it can damage your intestines without you even knowing it, or feeling it. The only way to tell if you have celiac is the get tested, the final test being an endoscope. You're smart to get tested.
  12. SLLRunner
    Exactly what I was going to say too. It's a shame, but true.
  13. SLLRunner
    Welcome, @paytong! First off, with your health issues, I would talk to your doctor about a referral to a celiac savvy GI and getting tested for celiac. This will require eating gluten 8-12 weeks prior to blood tests, and 2 weeks prior to an endoscope (gold standard for diagnosis). My answers to your questions: - Although the ALCAT test showed...
  14. SLLRunner
    On the thyroid- you're probably right about it being normal. I have trouble sleeping, but that could be because of anything. Kaiser is good at some things, but other things not so good. I've only had this doctor at Kaiser for maybe six or so months because my old doctor moved to a different practice area. He was very communicative but not celiac savvy...
  15. SLLRunner
    Thanks, everyone. I have 15 days before my new insurance is effective, and I signed up with Sutter because I found a GI who specializes in celiac who is also a PCP and taking new patients. In fact, I put him down as my new PCP. Once this is effective, I will get copies of all my records and have them sent to Sutter. @cyclinglady, I would love...
  16. SLLRunner
    I asked my doctor to take the full celiac panel and told her if insurance does not cover it I would be glad to pay for it. I don't think what she ordered is the full panel, and the blood tests I have look negative to me: This was after about 6-8 weeks of ingesting gluten again, after being gluten free for about a month (and feeling much better...
  17. SLLRunner
    @Edna, welcome! Bottom line-neither of those doctors know what they are talking about. First of all, Karen is right-celiac disease is not an allergy, it is an autoimmune disorder which has over 300 symptoms. Celiac can also be silent, which means a person has no symptoms. The only way to tell if you have celiac disease is via blood work and an...
  18. SLLRunner
    Welcome, Sue MD. Your doctor suspects you have celiacs and did not set up an endoscope to check for intestinal damage? If I were you, I'd ask to see your results for celiac and have him explain why he did not set up an endescope. Either you have celiac disease or you don't, and the only way to really tell is via an endescope. You must eat gluten...
  19. SLLRunner
    Calliope, Welcome! Since your doctor suspects you have celiac disease, the next step is an endoscope. Please do not stop eating gluten until all testing is complete, or the results will most likely be inaccurate.
  20. SLLRunner
    Welcome, @ex pastaprincess! I am sorry you are not feeling well. Is there a possibility you could be lactose intolerant? M&M don't have gluten, but they are milk chocolate. You said your doctor suggested gluten sensitivity. Did he take a blood test for celiac? Do an endoscope? If I were you, I'd suggest getting tested, but keep in mind...
  21. SLLRunner
    Welcome, @oli97. It takes time to heal. Your illness did not happen overnight, therefore neither will your recovery and healing. That said, could there be any cross-contamination to where you are actually ingesting gluten? This can happen in restaurants, at friend's homes even if they say they cooked you something gluten free, and at home if your...
  22. SLLRunner
    Welcome, @Musiclvr If you come here you will get plenty of support! It's tough when family and friends are not supportive. You said they are going to take a CT scan. Have they done an endoscope yet?
  23. SLLRunner
    Welcome, @ravenu5 For the blood tests it is recommended that you be on gluten for 8-12 weeks prior to blood tests, and 2 weeks prior to an endoscope. You must consume gluten until all testing is complete. Open Original Shared Link Good luck, and please keep us posted.
  24. SLLRunner
    Welcome, @Jasmine05 A link to answer your questions: Open Original Shared Link Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten.
  25. SLLRunner
    Welcome, @Anaheimangels40. Thanks for the update on the Blue Bunny products. This is very old post (2006), and information can change over time. It's also a good idea to read label for any gluten-containing ingredients. A lot of companies won't validate that their products are gluten free, even though ingredient list might not contain gluten ingredients...
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