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Latest Celiac Disease News & Research:
Everything posted by jaten
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I'll be doing BRAG 2013 - Bike Ride Across Georgia for the first time this year. Is anyone else riding this year or have experience with this event? I'm trying to find out what to expect in the way of REALLY gluten free offerings. Any help is appreciated!
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ARCHIVED Nut Thins Reaction
jaten replied to tristonsdad's topic in Gluten-Free Foods, Products, Shopping & Medications
This thread appears to be a few months old, but I'm going to respond anyway for future readers. Yes, I have eaten Nut Thins a few times, and I have had a reaction to them every time. The pecan and almond "flavors" are the only ones I tried. It took me about 3 times to narrow it down to the Nut Thins, but without doubt, any time and every time I ate them... -
Friday (the day after Thanksgiving) I fly into Charleston, SC. I'll be there until sometime Sunday, when I'll drive to Williamsburg County (Kingstree). Please if any of you have experience or suggestions for the Kingstree area, I will be forever grateful :-) I'll be there Sun afternoon through Wed afternoon for business. I'll have a rental car, but...
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ARCHIVED Gluten-Free Options In Charleston, Sc And Savannah, Ga
jaten replied to OkieGirl's topic in Traveling with Celiac Disease
I'm traveling to Charleston and on to Williamsburg Co the end of this week (will create a related thread), so I've been searching for Charleston-area gluten free, too! Please share here what you've learned so far. I leave this Friday! Here are two sites that may be helpful as you begin your research for Celiac-safe options in Charleston: Open... -
ARCHIVED My Dad Falls Asleep After Eating Wheat
jaten replied to bellysbetter's topic in Coping with Celiac Disease
I was diagnosed with Celiac in 2005. Even now when I am glutened I sleep for days. -
ARCHIVED What Candy Bars Are Ok For Super Sensitives
jaten replied to dws's topic in Super Sensitive People
Ditto exactly this!! -
ARCHIVED Completely gluten-free Resturaunts?
jaten replied to CeliacMom2008's topic in Gluten-Free Restaurants
Another vote for New Day Gluten Free outside of St. Louis. Used to be / still is Beck's Bakery. Yum. In Nashville, Aunt April's Bakery. This one is more a dedicated gluten-free bakery than restaurant, but she does have a few tables and ONLY gluten free sandwiches, etc. Highly recommend. -
ARCHIVED Fav From Whole Foods?
jaten replied to amcouch's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't been around this forum in several years, but another vote for Against the Grain baguettes!!! The most delicious and versatile gluten free product I've found. Period. -
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Hi Salax & welcome! How odd that your dr. didn't give you a name for the "slow emptying" malady Does it cause you much discomfort? I'm guessing maybe not, since it's not something you've needed to follow up on. Please ask questions (not that I have the answers, but perhaps someone here will), and share what you learn.
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Long story, short, I was diagnosed with Celiac in 2005 (biopsy), and went very strictly gluten free. I had grown pretty comfortable with the gluten free diet and life was good. Then gastroparesis struck. Almost a year ago I was diagnosed with idiopathic gastroparesis, and was prescribed domperidone and cisapride for the gastroparesis itself and zofran...
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I know that there are a number of us diagnosed with Celiac and also with gastroparesis because I've seen a few threads scattered around here and there. This thread is developed so that those of us diagnosed with both can ask questions, share suggestions, whatever is relevant to someone struggling with celiac and gastroparesis. I haven't found any reputable...
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ARCHIVED Kellogg's Special K Protein Shake & Protein Water
jaten replied to jaten's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks, GFresh, I'll do that! Meanwhile, does anyone know of any glutenfree protein enriched drinks? -
ARCHIVED Kellogg's Special K Protein Shake & Protein Water
jaten posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Between the title and the topic, I've just about asked my question. Because of severe gastroparesis most of my nutrition now has to come in the liquid form. I drink Ensure, & fruit juices, and make smoothies with yogurt and fresh fruit for nutrition, but protein is my concern. I saw Kellogg's Special K Protein Shakes and Protein Water today. Does... -
youLOVEamelia, I think you're on the road now You're right, so many people (friends & family) don't understand, but I don't think it's willful disregard, it's just a concept that's not easy to understand. I mean, come on, everybody can eat bread and pizza, right?? What? No soy sauce, either?? Think about it from their perspective, if we...
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ARCHIVED Chronic Stomach Pain--while Gluten-free
jaten replied to healthynewman's topic in Coping with Celiac Disease
Healthynewman, Has your doctor considered performing a capsule endoscopy (pill cam)? Our histories/symptoms are not exact but remarkably similar. Because of renewed symptoms I had colonoscopy/endoscopy a few weeks ago. The endoscopy biopsy showed sprue damage (villous atrophy) even though I have been strictly gluten free for 2 1/2 years. (Lab work... -
ARCHIVED Gluten Sneaking In? Refractory Sprue?
jaten replied to jaten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Update: My GI requested a Celiac Panel to be processed by Prometheus. I'm sure I won't know anything until my appt the end of May, but at least I feel a sense of relief knowing that the antibody testing is already being processed. (Lab drawn on Monday & Fed Ex'ed to Prometheus.) -
ARCHIVED Gluten Sneaking In? Refractory Sprue?
jaten replied to jaten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you all! The combination of information, explanations, and sites to reference were extremely helpful. -
ARCHIVED Gluten Sneaking In? Refractory Sprue?
jaten replied to jaten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for your help, but I don't understand this and haven't read this anywhere before. I thought the antibody tests would show what is actually going on in my system.....antibodies to gluten therefore gluten is present, or no antibodies to gluten and therefore gluten is not present. (As long as I am not iga deficient.) The biopsy shows physical... -
ARCHIVED Gluten Sneaking In? Refractory Sprue?
jaten replied to jaten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you, Rachel. I thought it was the same panel, but then somehow I wasn't completely sure.....but duh! That's why you have to do the panel BEFORE you're gluten-free Thanks for the help. -
ARCHIVED Gluten Sneaking In? Refractory Sprue?
jaten posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was diagnosed with Celiac 2 1/2 years ago, and I have been strictly gluten free ever since. Very strict. I had not had any follow up testing done since my diagnosis until earlier this week when my GI dr. performed an upper endoscopy with biopsy because of pretty severe abdominal pain. The biopsy shows Celiac damage...villous atrophy. I am as certain... -
ARCHIVED Do I Call Myself A Celiac?
jaten replied to GlutenFree4Life's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think the best answer would come from your dr. or from authority in the field of Celiac. Here is one place you may want to read. Open Original Shared Link This link takes you to the University of Chicago Celiac Disease Center. There are several pages of information, since your question asked about test results, this link takes you directly to "Testing... -
Mccormick Taco Seasoning?
jaten replied to newceliac's topic in Gluten-Free Foods, Products, Shopping & Medications
Just be careful to read the labels. Today, I considered buying the McCormick's Chicken Taco seasoning, but when I read the ingredients, that one does list WHEAT. Like others here, I use their products with no problem. Read. -
ARCHIVED Glutino Pizza Crust And Tinkyada Pasta
jaten replied to Joni63's topic in Gluten-Free Recipes & Cooking Tips
I echo this method. Tinkyada turns out perfect every time. Before I started using this method about a year ago, I always had mush or under done pasta. (I don't think to stir it every 4 minutes, but definitely a couple of times during the cooking. Guhlia's timing for stiring is probably best. I'll try that.) -
ARCHIVED Caramel
jaten replied to jaten's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you all for your answers. Joni, that does sound like a good source, and it corresponds to something I have since read on my own. "Caramel color According to the FDA Code of Federal Regulations (CFR), caramel color can be made from barley malt. But US companies use corn because it makes a better product." From GlutenFreeLiving Open Original Shared...