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apprehensiveengineer

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Everything posted by apprehensiveengineer

  1. apprehensiveengineer
    I'm not sure that this is the original study I looked at, but it does describe the different antibodies found circulating in the blood that is specific to DH (anti-eTG, which is analogous to anti-tTG in regular celiac disease). At any rate, it seems that they can test for it, but many labs do not have the ability to do so or doctors do not know to ask for...
  2. apprehensiveengineer
    I have not been diagnosed with DH via biopsy, but my rash is mainly centered around my neck/jawline/ears and upper back/spine. Despite what many doctors have told me (as an excuse for refusing to consider DH), these are common locations for the rash. You said you get it on your hands and knees, so be sure to mention that as well as those are considered more...
  3. apprehensiveengineer
    That's horrible about your son though. I suspect that the meds I was on didn't help my bone quality, but luckily I was not on them for most of the time I was growing. Fortunately, my asthma has always been on the less severe side so I've not really had too many scary moments.
  4. apprehensiveengineer
    Well, I think it was more that my sleep apnea was a symptom of asthma, so controlling that got rid of the problem. Since most asthma inhalers act to relax the respiratory muscles and/or reduce mucus product and inflammation in the lungs, I'd guess that this strategy wouldn't work unless the sleep apnea was due to asthma/inflammation in the respiratory tract...
  5. apprehensiveengineer
    I'm Canadian and don't have a endoscopy diagnosis... yet (had a scope done a few weeks ago, waiting on the lab results). The missing piece of info here for non-Canadians might be that specialist wait times can be quite lengthy depending on where you live, and cannot necessarily be transferred easily between provinces. Not sure what OP's timeframe is looking...
  6. apprehensiveengineer
    As far as I recall, I only saw my GP. Basically, I went in and my mother described the episodes and gave me an inhaler to see if it would help. Don't recall what medication it was specifically as I was too young, but it did actually control the apnea episodes at that time (as far as I was aware at the time). Since it did seem to help, no further investigation...
  7. apprehensiveengineer
    I was formally diagnosed with asthma twice - once at age ~8, then again at age 16 (they thought I grew out of it... they thought wrong). My primary symptom that prompted my parents to take me for visit to the doctor was persistent sleep apnea wherein I would stop breathing completely in my sleep, wake up and be so terrified that I would launch into a full...
  8. apprehensiveengineer
    I've been told a lot of things over the years... from allergic dermatitis, to "sensitive skin" to ???? to acne. I have tried to no avail to get the skin biopsy, so take my statements with a grain of salt. I am fairly confident (as was the GI I saw recently) that I have DH as my outbreaks are always directly linked to GI distress from gluten ingestion, and...
  9. apprehensiveengineer
    Former lifeguard and competitive swimmer here. There could be some potential issues, but I think it's pretty unlikely. Here's why I think that: 1. The water volume in a standard 25m pool is enormous (hundreds of thousands of liters). Assuming there are people swimming in the pool, any hot spots are likely to get dissipated pretty fast, so you'd have...
  10. apprehensiveengineer
    Hey, So I ran collegiate track and cross-country and trained at a high level while undiagnosed. Had I not been an elite level athlete, I do not think I would have been so insistent that there was something wrong with me. I suffered many stress fractures and had a lot of problems with anemia, but also had a lot of soft tissue injuries as well (herniated...
  11. apprehensiveengineer
    I have a true soy allergy (mouth and throat begin to itch immediately upon ingestion, positive skin prick test). I personally avoid soy lecithin, although I know that it should not contain any protein, which is the part that people with allergies react to. I don't worry about soybean oil (which can be labelled as vegetable oil in Canada) as much, though I...
  12. apprehensiveengineer
    I doubt they do any testing (never contacted them specifically though). I've never ordered from Edison, but had considered it before finding success with this brand. Another one that I've seen that's labelled gluten-free in Canada is San Remo (organic varieties only). Not sure if they test either, but had good results with their stuff too - it's just really...
  13. apprehensiveengineer
    I personally have had problems with store brand white distilled vinegar, but not pure distilled alcoholic spirits. I noticed this as I used a diluted cheap vinegar as a cleaning agent (which I put in a spray bottle) and would always get sick after cleaning - except when I wore a mask and gloves. I understand very well that from a theoretical perspective...
  14. apprehensiveengineer
    I had given up on beans for a bit, as I had problems with most brands of canned beans where I live (in Canada it's typically just store brand or other budget brands with warnings). I've since switched to dry beans, and had good luck with Western Rice Mills as they only process rice, quinoa and beans in their plant. AFAIK their stuff is generally sourced in...
  15. apprehensiveengineer
    I'm going to guess the additive effect of a few months of mystery CC glutenings (since resolved), plus heavy training load. The last time I had my antibodies/iron checked in Feb 2016, both were good. Since diagnosis to that point, I'd been taking iron supplements only sporadically, but stopped altogether at that point as my ferritin was quite high (hemochromatosis...
  16. apprehensiveengineer
    Ok... drum roll.... Cyclinglady wins! I am just anemic - ferritin is quite bad (10ng/mL), but hemoglobin still intact. Didn't get a look at the full results (Canada problems - doctors only give you the full print-off if you harass them for it), but everything else was apparently ok. I'll be downloading the full results for my file tomorrow from the lab...
  17. apprehensiveengineer
    I learned to drive a hard bargain after 3 years of useless doctors appointments in which I was told I was a hypochondriac/"stressed out student" Results are in, but all the medical receptionist said was that they were "non-urgent." Hard to say if that means there were no positive findings, or just that whatever they found isn't serious enough to kill...
  18. apprehensiveengineer
    Ok - so bloods have been taken, now I await the results! Luckily the doctor I saw at the walk-in (grad student problems, ugh) was actually pretty good and I didn't have to fight him, which was a nice change for me. Got my TSH, antibodies, blood glucose, iron and a few other markers on the checklist. I've been gluten-free for a little over 2 years as...
  19. apprehensiveengineer
    Yeah, not too surprised that this is the way Canada has decided to do things. Canada has what I would describe as a paternalistic "for the greater good" approach to health/medicine/safety regulations, which is sometimes good (bike/motorcycle helmet laws, outright ban on sales of unpasteurized milk) and sometimes frustrating (this scenario). In a way...
  20. apprehensiveengineer
    Thanks cyclinglady, I was hoping you'd respond! Although I'm hopeful that if it is indeed Hashimoto's that I might feel more like my old self, it's nice to have a realistic perspective on the matter. In distance running there are some notable cases of Olympians with Hashimoto's (see Kara Goucher), but I've also had teammates with the disease who had...
  21. apprehensiveengineer
    Hmm... I decided to dig a bit here, since that's a really good point which I hadn't thought about! I live in Canada and it turns out that here when salt is used as an ingredient there is no requirement to list iodide as a sub-ingredient or specify that the salt is iodized (link to Canada Food Inspection Agency rules Open Original Shared Link). Similar...
  22. apprehensiveengineer
    I've been feeling increasingly run-down over the past few months and suspect that I might be developing Hashimoto's. I have an aunt who has both celiac disease and Hashimoto's, who later developed thyroid cancer in her 30s - so I would say that my suspicion is extremely reasonable. Over the years I've had numerous blood tests were my TSH was measured (most...
  23. apprehensiveengineer
    Your spleen is on your left side, and is part of your lymphatic system (deals with fighting infections etc.). So not surprising or unreasonable for there to be some pain here due to swelling in response to gluten exposure. I also get this as well. When I first starting having severe symptoms, I actually thought I had mono because of this. Now I only...
  24. apprehensiveengineer
    @Jmg For sure. I think whatever one's consensus is on the validity of gluten causing problems for those diagnosed with NCGS, one has to admit that these people do have a real problem, even if it's one we don't fully understand. Articles like this do a disservice to that fact, which as you say is nuanced. There are also other autoimmune diseases that...
  25. apprehensiveengineer
    I think the gripe with this sort of article is that it's not telling the right story. When you write anything, you have a choice about whose story you tell and the consequences of it. While such articles are factual in the sense that objectively, a GFD is worse than a similar regular one, the focus of these articles undermines the struggles of those who...
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