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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Victoria1234
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ARCHIVED Potential false diagnosis of Celiac
Victoria1234 replied to JosephK116's topic in Related Issues & Disorders
There is at least one person here who does not have either of those 2 celiac genes who is celiac.- 18 replies
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- celiac
- esophogitis
- (and 4 more)
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ARCHIVED Lack of appetite after starting gluten-free diet
Victoria1234 replied to PhoebeC's topic in Parents, Friends and Loved Ones of Celiacs
I had hardly any appetite when I went gluten-free, for about 6 months to a year. I lost about 40 pounds. I saw food as a danger and in turn, it was nauseating to me. The less I ate the more nauseous the food made me. One day I remember food just tasted good again and then I was able to put back on some weight. These days I don't eat half of what I used to... -
ARCHIVED Symptoms caused by gluten intolerance?
Victoria1234 replied to Kirsty40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You mention low cortisol. Did you get tested for Addison's disease? -
ARCHIVED Halloween
Victoria1234 replied to Jherm21's topic in Gluten-Free Foods, Products, Shopping & Medications
15% off the licorice scotties here: Open Original Shared Link -
ARCHIVED Gluten found in gluten reduced beers
Victoria1234 replied to kareng's topic in Publications & Publicity
Thanks very much. A gluten removed anything just sounds wrong. sadly haven't found any gluten-free beer I like so I just stick with water, lol. -
ARCHIVED Halloween
Victoria1234 replied to Jherm21's topic in Gluten-Free Foods, Products, Shopping & Medications
Snickers and Reese's! -
ARCHIVED Still trying to process
Victoria1234 replied to Jules22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You can go here, which is found by clicking on the posters name https://www.celiac.com/profile/74789-jules22/ and read her most recent posts about the biopsies. -
ARCHIVED Symptoms caused by gluten intolerance?
Victoria1234 replied to Kirsty40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good luck with the holistic doc. I saw a naturopath for months who set me on a good path until I couldn't afford all the supplements anymore. Be careful with that. I found nothing helped me more than decent whole food and good quality vitamins. And of course sleep and lots of water! -
ARCHIVED Advice?
Victoria1234 replied to Breezy1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't go gluten-free yet. Get the full celiac panel asap. Others will chime in what the full panel is. Sounds a lot like celiac. Your daughter needs the full panel too. -
ARCHIVED News: Celiac.com: New 23andMe Report on Celiac Disease
Victoria1234 replied to Scott Adams's topic in Publications & Publicity
Where is the report? -
ARCHIVED Symptoms caused by gluten intolerance?
Victoria1234 replied to Kirsty40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mine got better, but it took almost a year for me to be good enough I stopped using a meter. I just found my meter the other day and it brought back all the memories. I had forgotten about it. -
ARCHIVED Symptoms caused by gluten intolerance?
Victoria1234 replied to Kirsty40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, many of your symptoms seem gluten related. This post had the same prob as you with the hypoglycemia, where it got worse gluten-free. -
ARCHIVED Symptoms caused by gluten intolerance?
Victoria1234 replied to Kirsty40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is a search of the topics on this website, maybe one can help you? https://www.celiac.com/gluten-free/search/?q=Hypoglycemia&fromCSE=1 -
No worries. What you said was super interesting and there's a ton of people who will read it when they google the right keywords!!!!!!
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ARCHIVED 6 Month update - Still broken
Victoria1234 replied to AAtroposP71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you had a sleep study? I have severe sleep apnea and used to sleep 12 hours a night and still was exhausted. Falling asleep at a stoplight exhausted. I do not fit the typical male and overweight stereotype either! But my cpap keeps me more well rested and alive. A sleep study is easy and it's the cost of an office copay. -
I know this thread is very very old, but I want to suggest one thing to tired people. Get a sleep study. Sleep apnea is something that can cause you to be very tired, and it can kill you. A sleep study is super easy and the cost of an office visit copay. It's easy to treat with cpap and it's amazing how much better you feel.
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ARCHIVED Gluten Free Greece
Victoria1234 replied to OliviaFW's topic in Traveling with Celiac Disease
Always carry lots of gluten-free snacks whenever you travel, on the flight and elsewhere. Sometimes you are hungry and need something right away and it's too hard to find a place to accommodate ! I always packed one suitcase of food, which also included non gluten-free snacks for my 3 boys. We are always very thrifty, lol. -
ARCHIVED 6 Month update - Still broken
Victoria1234 replied to AAtroposP71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
At 6. Months I was still recuperating for sure. Still had the dh but less of it, still had chronic pain in my abdomen but less of it, still constipated. I was in the stage of eating gluten-free processed foods, which was too much gluten for me, and keeping my symptoms active. In all actuality my C stopped a few months ago. I've been gluten-free for almost... -
Eating At A Chinese Restaurant
Victoria1234 replied to stitchy woman's topic in Gluten-Free Restaurants
Tamari is super delicious. -
Eating At A Chinese Restaurant
Victoria1234 replied to stitchy woman's topic in Gluten-Free Restaurants
How what is possible? Sorry I'm not entirely clear on what you are referring to. -
New To This! Any Celiacs/gluten Free In Uk?
Victoria1234 replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Argh! (Shaking my fist!) -
New To This! Any Celiacs/gluten Free In Uk?
Victoria1234 replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
No fair -
New To This! Any Celiacs/gluten Free In Uk?
Victoria1234 replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
No fair -
ARCHIVED Write a message to yourself on the day you found you had celiac
Victoria1234 replied to Jmg's topic in Coping with Celiac Disease
You know all those specialists you are seeing? They don't know a thing. Especially the obgyn who is getting you to do the hysterectomy. There's nothing wrong with your uterus. And stop letting all the docs push drugs on you. No amount of painkillers is going to stop that abdominal pain. It's just making things worse. All those months off work is just wreaking... -
New To This! Any Celiacs/gluten Free In Uk?
Victoria1234 replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
You guys seriously have something called curly wurlys? If so, I want to live in the U.K.....