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TCA

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Latest Celiac Disease News & Research:

Everything posted by TCA

  1. TCA
    Open Original Shared Link This is an article that documents the connection between heart defects (and other syndromes) and celiac. I thought all of you might be interested in reading it.
  2. TCA
    I too have asthma. My daughter was born in April with a heart defect and had open heart surgery at 9 days old. It is amazing at how God has used her illness as a witness to others. He has healed her in so many ways, including a diagnosis of Celiac and starting me on a gluten-free diet while breastfeeding. I will pray for your healing and strength and...
  3. TCA
    My father-in-law actually MAKES Brawny paper towels and other products. I'll ask him about this......It never occured to me....
  4. TCA
    We have excellent insurace and my son (just turned 3) has had 2 biopsies over the past 18 mos. Both were negative, but he had 2 very high antibodies, tooth enamel defects, failure to thrive, chronnic diarrhea, developmental delays, gas, etc. Even though the biopsies were negative, we decided to put him on a gluten-free diet as a trial and he is a different...
  5. TCA
    BC/BS is blue cross blue shield. That's the insurance we have. Hope you feel better soon!
  6. TCA
    Our GI found a way around the insurance. He sends them to Mayo and they forward it to Prometheus. I'm not sure how, but Bc/BS will pay this way. Check into it for your situation. Also - we just had the same thing with my daughter. She's only 9 mos. and the other tests weren't started before and gluten-free diet. LONG story. But she was DQ2 positive...
  7. TCA
    I've posted this a couple places, but it is soooo good PB Cookies 1 C. PB 1 egg 1 C sugar ( I use 1/4 C. sugar and 3/4 cups splenda since my hubby is diabetic and can't tell the difference) mix well. roll into balls and press with fork or fingers on a cookie sheet and bake 10-12 mins on 375. These are soooo easy and delicious. We keep them...
  8. TCA
    I'm new to this and this wounds really helpful. could you send it to tanyacoleandrews@yahoo.com Thanks!!!!!!!!!!!!!!!!1
  9. TCA
    Me and my kids have this problem a lot...but now that I think about it we havne't since starting a gluten-free diet...interesting.....anyway, give him acidophilis. Yogurt and buttermilk have it, but you can get a chewable vitamin type at the drug store that is good. I use Mason's brand because it's gluten free. I take a pill form, but give my son this...
  10. TCA
    Actually I've found more than one source that documents a connection with a heart defect. I've also found many sources that connect it with Down's Syndrome. Below is a link to one. I know how frustrated you must be. We were lucky in a way because my 3 year old son had been having so many problems an we had suspected celiac. Her reaction to formula was...
  11. TCA
    I learned this recipe as a kid and it has come in handy lately. PB cookies 1 c. Peanut Butter 1 egg 1 c. sugar ( I substitute 1/4 c. sugar and 3/4 c. splenda since my husband is diabetic and it works great) mix, roll into balls and press out on cookie sheet. Bake 10-12 mins at 375. I make 4 batches at once and am set for about 10 days. They're...
  12. TCA
    I just wanted to let you know that niether of my kids could tolerate ANY of thr formulas, enen the hydrolysed protein ones like Pegestimil, Nutramigen, etc. Projectile vomiting and listlessness were the primary responses. FYI - I had started cutting back on my fat intake to try to lose some weight and my milk production dropped a lot. Wanted to pass...
  13. TCA
    I've been working to educate my daughter's doctors (she has many since she is a heart patient). I find info that is backefd up in med journals so that it carries more weight. One good one I found is at Open Original Shared Link It's doctor speak for what we talk about here. I have approached it from the perspective of trying to help others not have...
  14. TCA
    I make little pizzas with corn tortillas for my son in the toaster oven. just put sauce and toppings and toast until the cheese is bubbly. It's quick and he loves them.
  15. TCA
    I learned this recipe as a kid and it has come in handy lately. PB cookies 1 c. Peanut Butter 1 egg 1 c. sugar ( I substitute 1/4 c. sugar and 3/4 c. splenda since my husband is diabetic and it works great) mix, roll into balls and press out on cookie sheet. Bake 10-12 mins at 375. I make 4 batches at once and am set for about 10 days. They're...
  16. TCA
    I hope we're not driving your crazy, but I'm new to this and would love the list too. thanks bunches! tanyacoleandrews@yahoo.com
  17. TCA
    I'm from the South and would sometimes give my right arm for a gravy and biscuit...... But I wanted to let you know that my mom recently ate at Olive Garden in Birmingham, AL and they had a gluten-free menu!!!!!! Maybe this will help those food woes! Now, if anyone has found a good recipe for biscuits PLEASE LET ME KNOW!!!! My son has been gluten...
  18. TCA
    Our 2nd child was born with a congenital heart defect and had open heart surgery at 9 days old. She's now 9 mos. and will have another surgery in april. The nutritionist kept pushing formula even though I was pumping and giving her breast milk through a feeding tube. They wanted to provide her with more calories and they almost killed her. After 4 months...
  19. TCA
    This info is so helpful. My father has been in chronic pain for 7 years and no one has been able to find out why. After learning about celiac with my kids being diagnosed, I suspect it to be his problem. This is very informative and I'm passing it on. Do you have ataxia and, if so, what are your symptoms. Tanya
  20. TCA
    I've found some gluten free prepackaged chicken fingers at Publix. Breadless Coating is the brand name. They're pretty good, but expensive. They're advertised as Low Carb, but also say gluten free in smaller print. I also found that Delimex taquitos are gluten-free. They're a cheap and pretty good too. I bought some at Walmart. Both are quick fixes...
  21. TCA
    Our Ped GI fopund a way around it. if they send the blood to Mayo Clinic, Mayo will forward it to Prometheus and Ins. will cover it. We just went through this testing with my son and daughter and we recommend that you go ahead and run all the tests, the 5 panel screen and the CeliaGene test. We're having to go back for more testing - more sticks - and...
  22. TCA
    I am a nursing mom and I went on a gluten-free diet in September to treat my daughter's horrible GI issues, which I suspected to be celiac. She has improved tremendously. We have no history of celiac in the family, but a lot of people with possible symptoms on both sides of the family. I was suspecting my husband was the gene carrier because he and his brother...
  23. TCA
    I am a nursing mom and I went on a gluten-free diet in September to treat my daughter's horrible GI issues, which I suspected to be celiac. She has improved tremendously. We have no history of celiac in the family, but a lot of people with possible symptoms on both sides of the family. I was suspecting my husband was the gene carrier because he and his...
  24. TCA
    I'm a mom of 2 so time is limited. I keep these PB cookies made that are filling and can be grabbed in a tight: 1 c. Peanut Butter 1 egg 1 c. sugar ( I substitute 1/4 c. sugar and 3/4 c. splenda since my husband is daibetic and it works great) mix, roll into balls and press out on cookie sheet. Bake 10-12 mins at 375. I make 4 batches at once and...
  25. TCA
    Ready for this? this is all just my dad's side of the family. Dad: Diabetes, connective tissue disorder, kidney disease, heart disease - MANY issues grandfother: chronic ulcers grandmother: thyroid issues (removed at around 35) aunt: diabetes, severe allergies, thyroid issues, fibromyalgia uncle: diabetes, severe allergies, milk sensitivities,...
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