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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    7 days is probably not enough to give a valid test, especially if you had been gluten free for a while.
  2. trents
    Was the endoscopy done before or after you went gluten free?
  3. trents
    30 grams of fiber seems to be the magic number for me insofar as regularity goes. And make sure you drink plenty of fluids with it if you take psyllium.
  4. trents
    How much fiber are you getting each day? Have you done the math on that? The medical community recommends getting 25-30 grams per day but most people fall well short of that. This is especially true when people rely a lot on processed gluten free foods. The celiac community doesn't have the benefit of being able to consume a lot of mainline whole grain foods...
  5. trents
    Welcome to the forum, Lynne! Yes, it certainly could be the avenin. An intolerance to oat protein is very common in the celiac population. I think the figure I've heard is about 10% of celiacs can't tolerate oat protein. Being as how these stomach aches coincide with the addition of this oat product you mention, I would certainly look at that.
  6. trents
    Welcome to the forum, Raquel! I use Costco's Nature Made and Kirkland Signature line of vitamins and supplements without issue. It will state clearly on the packaging or the bottle if they are gluten free. But then, I'm not a particularly sensitive celiac. Also, have you considered that it might be some other ingredient in the vitamins you are reaction...
  7. trents
    Welcome to the forum, alross! It is perfectly normal to feel overwhelmed at the outset of the celiac/gluten free journey. We have all been there and done that and many in our forum community have had to cope with the extra complexity of having small children in the house. Let me assure you, it will get easier over time and everyone in the family will...
  8. trents
    Do you have the numerical value of the blood antibody test along with the reference range for positive vs. negative? Could you post it? Are you in the UK by any chance? I ask that because the far out there scheduling of the endoscopy/biopsy sounds typical of what our UK members report.
  9. trents
    Yes, they instructed you correctly. How long before the endoscopy/biopsy?
  10. trents
    Okay, I interpreted the "camera down the throat" to refer to swallowing a camera pill but I see that was my assumption. It's just a regular endoscopy you were referring to.
  11. trents
    Go to the three horizontal dots in the upper right corner of any new post window if you want to attach pics to a post. However, there is a fairly brief time window to do that (or any other editing of a post) so have the pic ready and know where it is. Once the time window is closed, you would need to create a new post to attach a pic. You say you have...
  12. trents
    Mucous in stools is a classic symptom of celiac disease, indicating fat in the diet is not being digested. But the orange tint is a concern. The pain in your back could be many things. You may find some answers once you go gluten free and eliminate that variable.
  13. trents
    Could be. Or, it could be something else that is related to the celiac disease or not. Are you practicing a strict gluten free diet yet? And if so, how long?
  14. trents
    Welcome to the forum, Burted! Which side is the rib and back pain on?
  15. trents
    You might appreciate this now or if not, in time:
  16. trents
    The difference between celiac disease and NCGS is that NCGS doesn't cause inflammation of the villous lining of the small bowel. Therefore, it does not produce antibodies and does not cause blunted villi. Though celiac disease and NCGS produce many of the same symptoms, there is not yet any test for NCGS. celiac disease must first be ruled out if there are...
  17. trents
    Your tTG-IGA and EMA would not be positive if you had NCGS (Non Celiac Gluten Sensitivity). There are a few other things that can cause villi blunting such as a cross-reaction to the dairy protein (casein), some tropical parasitic infestations, Crohn's disease, a certain blood pressure medication and NSAIDs I believe. But a positive EMA just about nails it...
  18. trents
    Your genetic testing indicates you have potential for celiac disease. Your tTG-IGA is strongly positive. This is the first, the most common and often the only test physicians will order when checking for celiac disease. It is considered to be the test that combines good sensitivity with good specificity. And keep in mind, this is after you had been gluten...
  19. trents
    Welcome to the forum, Lauren! Yes, we have had several people join the forum lately who reported left side abdominal pain. Diverticulitis perhaps? Are you still consuming oats, even gluten-free oats? The oat protein, avenin, causes inflammation in the gut like gluten does for quite a few celaics. Dairy and oats are fairly common offenders in that sense...
  20. trents
    Lu, can you post the results of the initial antibody blood work along with the reference ranges for negative vs. positive? Did you experience an improvement in symptoms after a month of being gluten free?
  21. trents
    Welcome to the forum, Lu Sims! The lack of IELs makes sense to me if you had been on a gluten free diet for a month. Once you withdraw gluten, the inflammation of the small bowel lining stops and the villi begin to recover. The IELs would be part of the immune system response and the inflammation. It may be that the old IELs had already been cleared...
  22. trents
    Welcome to the forum, katattack27! Yes, the symptoms you are experiencing have been shared by many who have embarked on the gluten challenge. Once people go off of gluten they lose all tolerance they might have had and when they go back on it for testing the symptoms are usually worse. Are you sure you are scheduled for a colonoscopy and not an endoscopy...
  23. trents
    Carley, what do you mean by low blood counts? The blood is has many different components. Do you mean your blood iron level was low? When you get infusions, what are they infusing you with? Iron? It is not necessary to resort to specifically gluten free food products in order to avoid gluten. Many foods are naturally gluten free. With canned goods and...
  24. trents
    What you describe is common. Here are some possibilities: 1. CC (Cross Contamination). Things that do not purposely include gluten as an ingredient come in contact with gluten containing grains during production, transportation, storage and/or processing. Classic examples would be oatmeal and lentils. 2. There has been a change in the formulation...
  25. trents
    Welcome to the forum, celiac00. Yes, the symptoms you describe could certainly be a gluten reaction. Many celiacs do not have classic GI distress symptoms, at least not until the damage to the small bowel villi becomes quite advanced. We call them "silent celiacs". Please know that eating out poses the number one risk of getting "glutened". Even...
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