Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,403

  • Joined

  • Last visited

  • Days Won

    507

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The results you posted did not include a total serum IGA so I assume your doctor did not test you for this, which should have been done. It sounds like you probably know already that low total IGA can result in false negative tTG-IGA scores. The tTG-IGA is considered the best one test to order since it combines good specificity with good sensitivity. Was...
  2. trents
    Welcome to the forum, Shamogi! I can answer one of your questions at least. Yes, we have had many forum participants report definite improvement in mental health issues when going off gluten. A number of the symptoms you describe are common to celiac disease and most are related to vitamin and mineral deficiencies. Celiac disease is an autoimmune...
  3. trents
    The only real follow up care would be that within a year after starting the gluten free diet you should seek a repeat serum antibody panel to check for progress in healing and compliance with diet. As far as vitamins and supplements go, most of us routinely recommend starting supplementation with a B-complex, D3 and magnesium (all gluten-free of course) to...
  4. trents
    This might be helpful:
  5. trents
    Yes, you can have celiac disease even though the total IGA is not low and the tTG-IGA is in normal range. We have people report that very thing not infrequently on this forum. You can also have negative biopsy and positive celiac antibody scores. Recent studies show that the #1 factor in sabotaging the efforts of those with celiac disease in eating...
  6. trents
    Welcome to the forum, Sarah, Yes, your situation has not been handled properly by the medical professionals you have been dealing with. The PC doc should have run a "full celiac panel" and not just the total serum IGA and the tTG-IGA. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Some people's immune system responds...
  7. trents
    Captaincrab55, I don't think it's a matter of cherry picking. Agreed, having access to restaurants that have a gluten-free menu section is certainly preferrable to patronizing ones that don't. And I appreciate Outback's being so transparent about what gluten intolerant people can expect and not expect. But in the context of this thread the important point...
  8. trents
    "“Food is prepared in a common kitchen with the risk of gluten exposure. We cannot guarantee any menu item is completely free of gluten. When placing your order, please let your server know you are ordering a gluten-free menu item.”
  9. trents
    I think it would be wise to add in a gluten-free B-complex as the B vitamins act together as a group. If you are deficient in one you are likely deficient in others. Also magnesium and D3 are good. I can't speak for the UK healthcare system as to whether or not they would cover ALCAT. Food sensitivity tests can be helpful and provide guidance but they should...
  10. trents
    But it's usually not the gluten free options that is the problem. It's the cross contamination from how the food is cooked and handled in that it is not done with cookery and utensils that haven't also been used for gluten containing foods. Do you know if that's different at Outback restaurants? Are the gluten-free offerings prepared and handled in a dedicated...
  11. trents
    Liam, are you taking any gluten-free vitamins and supplements? We generally recommend this as celiac disease typically creates nutrient deficiencies. B-complex, D3 and magnesium are typically recommended. It seems to take about two years for adults to experience complete villi recovery after going truly gluten-free. Also, there could be some additional...
  12. trents
    You can try it but I'm not expecting it would be well-received by the kitchen staff. Have you tried requesting that your food be prepared in it's own, clean pots/pans and handled with separate, clean utensils? Have you tried GliadinX?
  13. trents
    I would also be suspicious of the modified cellulose since there is no source specified.
  14. trents
    Yes, most people who have positive antibody tests will have positive biopsies but some so not. Depends on many things, actually: How soon the disease was caught, individual immune system responses and constitutions, and, perhaps more than anything else, the thoroughness and experience of the one doing the scoping. Unfortunately, many GI docs don't sample...
  15. trents
    Actually, the community experience is that most physicians, including GI docs, are more conservative than what we feel comfortable with when it comes to concluding that their patients who test positive have celiac disease. So, if your GI doc says you have celiac disease I would take that as gold. I don't understand your reluctance to accept the celiac diagnosis...
  16. trents
    Correct, but almost every B12 supplement on the market today has that much. They discovered a secondary assimilation pathway that can be successfully utilized with these large doses. The supplement companies picked up on that and since then most B12 supplements are large dose pills.
  17. trents
    I want to echo what KK said about Magnesium having potential to have a laxative effect. Choosing one of the more easily assimilated forms will reduce the risk of this. In general, magnesium is not absorbed well by the gut and tends to draw water into the intestines, thus creating the laxative effect. The more easily assimilable forms (like magnesium glycinate...
  18. trents
    Then the Then they should be okay. I think the concern is that people would assume that because lentils are a "naturally gluten free" food there could not be an issue with gluten.
  19. trents
    The medical world's standard answer because of their focus on treating symptoms rather than causes and not giving attention or having knowledge of subclinical signs of vitamin and mineral deficiencies. Also, I believe the RMDA standards themselves are insufficient. You have nothing to lose by taking B vitamin supplements. They are water soluble so excesses...
  20. trents
    There is a gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but doe not damage the small bowel villi and therefore does not produce antibodies. There is no test for NCGS. Celiac disease must first be ruled out. NCGS is 10-12x more common than celiac disease.
  21. trents
    https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ I would ask for three tests: 1. Total serum IGA 2. tTG-IGA 3. Deamidated gliadin peptide (DGP IgA and IgG) You need to be eating gluten daily (2 slices of wheat bread or the equivalent) for 6-8 weeks leading up to the test in order not to invalidate them. ...
  22. trents
    Welcome to the forum, Angie Pie! "an a and e" check? What is that? "bloods etc all fine" Have you had testing done that is specifically for celiac disease? There are serum antibody tests specifically designed to check for celiac disease.
  23. trents
    MerryA, welcome to the forum! Recent studies have demonstrated that most people who claim to be eating gluten-free are actually eating lower gluten. They are unaware that they are getting gluten contamination from various sources even though they are (somewhat) conscious of trying to avoid gluten. The studies show that the number one source of this gluten...
  24. trents
    There is a difference between the label "Gluten Free" and the label "Certified Gluten Free". You can be sure the latter has been tested and it has been tested to confirm that it complies with the Certified Gluten Free standard of 10ppm or less of gluten which is stricter than the FDA standard of 20ppm. 20ppm is not good enough for some of the more sensitive...
  25. trents
    Developing a truly gluten-free lifestyle is not as easy as many people think because of cross contamination issues (CC) and the multitude of ways gluten is hidden in the process food supply. This might help: You also would do well to get some good gluten-free vitamins and supplements. Celiac disease generally results in nutrient deficiencies...
×
×
  • Create New...