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trents

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Everything posted by trents

  1. trents
    A number of people on this forum have reported that experience. And don't go off of gluten before your biopsy or it may invalidate the results.
  2. trents
    You are replying to a thread two years old.
  3. trents
    If by "the doctor" you mean the one doing the endoscopy told your mom "everything looked good," that one is easy to explain. Depending on the extent of the damage, the experience of the one doing the scope, and the magnification quality of the scope itself, the damage may not be visible. That's why they send it to a lab for microscopic inspection.
  4. trents
    Yes, this is what it takes. Either that or physicians who themselves develop celiac disease or one of their immediate family members. Nothing like personal experience to educate.
  5. trents
    Still one of the biggest misconceptions about celiac disease, that digestive issues are it's only manifestation, and one embraced by far too many doctors out of ignorance.
  6. trents
    Welcome to the forum, Russ. Yes, nearly everything you describe screams of celiac disease. Not sure about the body odor as I don't recall others reporting that one. Just one thing to keep in mind. If you go for testing to get an official diagnosis, you must be eating gluten daily for 6-8 weeks before the antibody blood test and at least 2 weeks before...
  7. trents
    You need to be back on gluten daily for 6-8 weeks before the blood test and at least 2 weeks before the endoscopy/biopsy if the doc wants both.
  8. trents
    Bill, is the problem you have with cow's milk caused by the casein (a protein in milk) or the sugar in milk (lactose)? There are lactose free dairy products available and if the casein is the culprit you can still probably consume whey-based products. Whey is another protein in milk and commonly used by body builders and athletes as a high quality form of...
  9. trents
    You're good to go! Just a spring chicken. We cannot change what damage may have already been done to our bodies by living with undiagnosed celiac disease. And some kinds of damage may continue to play themselves out over time, even after we adopt a gluten free lifestyle. Some kinds damage is usually quite reversible by gluten free eating, e.g., liver...
  10. trents
    Maybe 51 or 52.
  11. trents
    Look, I'm 70 years old so by now I would expect this and that medical issue to develop whether or not I have celiac disease. I have some osteoarthritis here and there but in good general health and still mobile and active. I have osteopenia, likely from the celiac disease, but have not suffered any fractures to this point. I count my blessings that I have...
  12. trents
    Maybe about a year I think and there was not much healing at that point. Over the span of about 15 years post diagnosis I had three follow-up endoscopies. If my memory serves me correctly, the second follow-up endoscopy came at about three years post diagnosis and the third about three years ago or about 15 years post diagnosis. The last one showed I had...
  13. trents
    No. In fact, there are plenty of people who actually have negative bloodwork but confirmed as celiacs by biopsy. If your total IGA is low then the blood test may not be positive or show a weak positive. Also, many people make the mistake of trying to cut out gluten in their diet before testing and that can invalidate the tests, either the blood antibody tests...
  14. trents
    Elevated liver enzymes is what led me to a celiac diagnosis almost 20 years ago. I had mildly elevated liver enzymes for about 13 years before that and primary care docs tested me for various kinds of hepatitis and this and that but those tests were all negative. This was going on from late 1980's to early 2000's when very little was known about celiac disease...
  15. trents
    Yes. Your body is now absorbing more of the nutrition you take in.
  16. trents
    Sounds like an idea with promise. But the tool you speak of would need to be interactive such that users could add their own experience to the data base. And would there need to be some way of vetting their input? I would also worry about the door being open for someone to sue you if they experienced personal harm based on trusting the information in the...
  17. trents
    The forum PM tool is sort of like in house email that only the recipient sees.
  18. trents
    Malt would be made from either barley or wheat and both are gluten containing grains.
  19. trents
    Sarah, welcome to the forum! I strongly suspect you are correct in concluding your son has a problem with gluten, either celiac disease or gluten sensitivity. I would not wait for the appointment months away. I would pick up a home test kit for about $100 USD. https://www.imaware.health/at-home-blood-test/celiac-disease-screening. Unfortunately, many...
  20. trents
    Jill, Celiac.com does have a blog section but you are currently not posting in that area. The name that shows up in your posts is what you supply as a user name when you register as a forum member. It can be anything that isn't already in use by another member. I'm not sure it can be changed without creating a new account. But Scott Adams can answer...
  21. trents
    This is a good read: https://www.niddk.nih.gov/health-information/professionals/clinical-tools-patient-management/digestive-diseases/celiac-disease-health-care-professionals The tTG-IGA test is the most specific for celiac disease but if IGA levels are low or damage to the small bowel villi is not extensive it may be negative because it is not as sensitive...
  22. trents
    I don't think this is such a mystery. Your efforts over the years at avoiding gluten, even though there were occasional episodes of exposure, has allowed a measure of healing for the villi lining our small bowel. The last two months of only eating your own cooking (where you had complete control of ingredients) has allowed for the healing to be complete....
  23. trents
    Celiac disease is an autoimmune condition and would engage the immune system through an entirely different pathway than substances that would trigger anaphylaxis. But you could also be allergic to gluten coincidentally.
  24. trents
    I think you have your answer. And if you are still preparing wheat four containing foods for other family members you are likely getting exposed through inhalation of wheat four dust or cross contamination. Realize also that if you have active celiac disease there is a 44% chance that your first degree relatives have or will also develop active celiac disease...
  25. trents
    Celiac disease and gluten sensitivity/intolerance produce very variable symptoms from one individual to another. Many do not experience nausea/vomiting or diarrhea.
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