Wheatwacked
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Latest Celiac Disease News & Research:
Everything posted by Wheatwacked
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My first two nights I had VIVID dreams of donuts. Until this phase passes eat whatever helps, No wheat, barley or rye, though. It is temporary and once you've kicked that little gluten devil off your shoulder your taste buds will find wondrous new things. Here are my hints; take large doses of vitamin D and Thiamine . Raising your vitamin D plasma level...
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"Idiopathic arachnoid cysts in children are associated with neural tube defects." https://pubmed.ncbi.nlm.nih.gov/622492/ "An arachnoid cyst is a noncancerous fluid-filled sac that grows on the brain or spinal cord. Symptoms include headaches and seizures, but many arachnoid cysts don’t cause symptoms. Treatment isn’t always necessary. Providers dra...
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Some of the confusion with B3 is that Niacin used to be called Nicotinic Acid. Years ago when the war on smoking began, someone decided to change the name to further distance from nicotine. It was announced that there is no connection. In fact Nicotine can be oxidized to Nicotinic Acid. "Niacin was originally called nicotinic acid because it can be...
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Just an educated guess but your dyspepsia is from Choline deficiency. If you can get blood tests for vitamim D, homocysteine, vitamin B12, b6, Folate it would be helpful. There is no test for Choline deficiency. Eat eggs and meat or take a Phosphotidly Choline pill. Could we be overlooking a potential choline crisis in the United Kingdom? "Core tip...
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Can biopsy come back negative?
Wheatwacked replied to MiaBia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The most important step now is helping your son find foods he likes and will choose over wheat, barley and rye. In the beginning the hardest part is breaking the old eating habits. Wheat is addictive, so there will be strong cravings. There will be peer pressure on him. Hard boiled eggs, Fritos, Cheese Doodles, Potato chips, ripe bananas, Snickers, almost... -
Can biopsy come back negative?
Wheatwacked replied to MiaBia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One more personal note. Does he have a stuffy nose all the time? I was a mouth breather as a kid until GFD at 63. Now 90% nose. No allergies, nothing wrong to be found. Basically they told my parents not to worry. Maybe he'll grow out of it. It was the wheat for 63 years! Might be worth making the whole family GFD. -
Can biopsy come back negative?
Wheatwacked replied to MiaBia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is a clearly written explaintion of the genes in Celiac Celiac Disease Genetic Testing. My son had it at weaning. I had an acute attack at 63, but once on a gluten free, vitamin and mineral rich diet I counted 19 lifelong issues that cleared. See Scott's article link below. While it seems very hypochondriac to do in the case of celiac disease it... -
Confusions about Specific Carbohydrate diet
Wheatwacked replied to Grandma Mary's topic in Food Intolerance & Leaky Gut
Do you know your vitamin D plasma level? -
Newly diagnosed - Very anxious
Wheatwacked replied to sadfaceemoji's topic in Coping with Celiac Disease
Those were just diversions to keep you eating wheat which they add to these foods because wheat makes you want to eat more. Wheat is addictive. You stopped eating fried. Did you get better? You stopped eating bbq. Did it help anything? Gave up Chinese and beer. Any better? Use Tamari instead of Soy Sauce. I don't like beer but was addicted... -
Pre-Diagnosis, a few questions
Wheatwacked replied to JOZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I like cherry flavored magnesium citrate. 1 or 2 ounces in a glass of water tastes like lemonade to me. makes orange juice instead of water taste interesting. 10 ounce bottle about >$2. Each ounce has 390 mg of magnesium. The RDA is 310 (female, 18-30) . As a laxative the dose is 6.5 to 10 ounces. Start low, work your way up over a few days. What...- 8 replies
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After 3 month GFD I increased my vitamin D to 10,000 iu a day. On day 4 I looked at the bottle and exclaimed; "This truly is sunshine in a bottle" Somewhere around that time I started inviting people to my 130th birthday party in 2081. You'll have good days and better days then bad days. These are the foods I eat: cottage cheese, meat, vegatables...
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Pre-Diagnosis, a few questions
Wheatwacked replied to JOZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is likely you have had malnutrion from unrecognized Celiac Disease most of your life, not uncommon with celiac disease. Of the more than 200 symptoms associated with Celiac Disease I counted 19 that improved for me just from GFD and vitamin replenishment. This is the perfect time to get the full panel of Celiac tests and vitamins from your primary...- 8 replies
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Supplements
Wheatwacked replied to Grandma Mary's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some of the B vitamins, B3 Niacin, B6 Pyridoxine, and Folic Acid (B9) and vitamin E have upper limits on supplements but no upper limit to food sourced. Synthetic A, E and Folic Acid have been linked to stomach, prostate and lung cancer in some intervention trials. "While their benefits are generally unclear, beta-carotene supplements do seem to... -
Newly diagnosed - Very anxious
Wheatwacked replied to sadfaceemoji's topic in Coping with Celiac Disease
Here is the list of what I eat. They are all gluten free with little chance of cross contamination. To increase muscle mass eat more protein and less carbs. Cottage Cheese Oranges Waternellon Meat Bananas Vegatables Meal planning for athletes "A growing body of research indicates that protein intakes well... -
Celiac just diagnosed
Wheatwacked replied to versace114's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A short time gluten free and you will start getting better. Next step is to replenish your vitamins and minerals. Some are low because of malabsorption (the reason for Carti) but some could be diet. Recovery is do-able. In 2013 I could not stand long enough to watch a single cup coffee brewer do its job. -
Celiac just diagnosed
Wheatwacked replied to versace114's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Make sure you are getting Choline. Either eggs and meat or pills. Apparently no one sells choline in parenteral feeding choices. They do in Europe. "choline deficiency appears to activate cellular apoptosis." https://pubmed.ncbi.nlm.nih.gov/19874943/ -
How long have you had low D? Taking the prescribed 400 iu a day they typically prescribe is simply a cruel joke on you. Vitamin D is not just about Rickets. It is a major player in the autoimmune world. Low D could be your answer, Fix that and look for more. My son is a lifeguard, spends his whole day in the sun and was diagnosed low D (less than 29 ng/ml...
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What kind of problems? On GFD with appropriate nutrition you should be getter better while your friends not on GFD will get sicker. Are you eating enough vitamins in your food. Are you on prescribed medications. Many problems are simply nutrition but get misdiagnosed and treated with drugs that cause other problems. Choline is one that deficiency will cause...
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New possible Celiac?
Wheatwacked replied to Dy89's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"a person who is abnormally anxious about their health." I think almost everyone of us either has been told that flat out or slowly began to believe it over the years. Try to get your vitamin D blood level tested and homocysteine along with the tests @trentssuggested. High homocysteine is a indicator of inflammation. My son has celiac Disease and... -
This series of articles might help you.
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I've been smoking since 1963. Cigarette smoking and risk of celiac disease: A systematic review and meta-analysis
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More Than Gluten Intolerance
Wheatwacked replied to Dixzechic's topic in Food Intolerance & Leaky Gut
This may help you feel less alone -
Hi @Skellig welcomt to the forum. Given your dramatic improvement on GFD you either have Celiac Disease or Non Celiac Gluten Sensitivity. 1% of the world is diagnosed Celiac, 10% have NCGS. NCGS is diagnosed by eliminating Celiac and then showing improverment on GFD. What do you suppose your doctors reaction would be if you told her that even Irish...
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Low Ferritin
Wheatwacked replied to Angela1287's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had plantar fasciitis before the neurapathy. Rolling a tennis ball helps. Shallow knee bends under a hot shower running down the back. The goal is to relaxe and stretch the foot, calves and lower back. My sister in law went to a foot doctor and she vibrated it loose with some kind of impact hammer. Reminds me of the old days when the treatment for Carpal...