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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    Did you try this? Put this diet in the spreadsheet and see what pops. Researchers found that milk from grass-fed cows had 147 percent more omega-3s than conventional milk and 52 percent more than organic milk. By the way, a sign of iodine deficiency is reduced sweating to preserve iodine. Dairy is a source of iodine. Grass Fed Dairy: Two birds...
  2. Wheatwacked
    300 Signs and Symptoms of Celiac Disease Go over this list and see if it changes your calculations. Certain vitamin and mineral deficiencies can also be indicative. celiac disease is a disease of malabsorption.
  3. Wheatwacked
    Gliaden X breaks down the accidental gluten in the stomach. Banner above. Others say it works well. I keep my vitamin D at 80 ng/ml and at that level I have had gluten, but not been "gluttoned", though at 50 ng/ml in 2019 I would feel the effects, mostly sinus congestion and itchy eyes. Benadryl did not help me. celiac disease causes malabsorption...
  4. Wheatwacked
    My feeling is it comes frozen. Sometimes I don't touch it for weeks,
  5. Wheatwacked
    Ask for a vitamin D blood test. Possible Role of Vitamin D in Celiac Disease Onset
  6. Wheatwacked
    I do understand her inability to tolerate anything. I spent a week NPO in the hospital when I had acute pancreatitis. I am glad they are addressing the potassium deficiency but sorry to hear they are not the choline. Perhaps adding a phosphatidyl choline pill with the thyroxine? Better than nothing. Hopefully the folks at Stanford will help. Keep us updated...
  7. Wheatwacked
    It is important to evaluate for diet for deficiencies. Have you seen a nutritionist familiar with Celiac?
  8. Wheatwacked
    Budesonide is a potent corticosteroid with low systemic bioavailability due to an extensive first pass liver metabolism. Why not consider Prednisolone. Better bioavailability and much cheaper. I paid $75 for 360 5 mg tablets last December. Often prescribed for refractory celiac disease, but not as profitable to pharmacy. For some medical insurance there...
  9. Wheatwacked
    Low or deficient vitamin D is a common finding among Celiac Disease and other autoimmune diseases. "A study by researchers at UNMC shows vitamin D as an add-on therapy could provide some relief for chronic hives, a condition with no cure and few treatment options....Researchers found after just one week, the severity of patients' symptoms decreased by...
  10. Wheatwacked
    Not enough potassium in the diet. Diarrhea can cause excess potassium loss which is why the World Health Organization, and many countries consider potassium status a nutrient of interest. The US 100% DV for potassium is 4.7 grams (4700 mg) daily, while most countries use 3 grams a day for the RDA. While plasma levels of potassium are regularly checked...
  11. Wheatwacked
    What's nice is the Heritage style ends up the size of a real sandwich, not something made on melba toast.
  12. Wheatwacked
    People who keep kosher know how. Meat from milk or gluten from gluten free. They have to be even better because of their supervisor.
  13. Wheatwacked
    With Celiac Disease you want to replenish vitamins so the target intake should be somewhere more than 100% DV and less than the RDA safe upper limit. It isn't easier but you reap the rewards. A food log with vitamins and minerals content. It does not include iodine or lithium. http://doodlesnotes.net/index3.html What I Supplement: Thiamin...
  14. Wheatwacked
    I hear your anger. Been there. Everything you believed in has turned on you. Give up all processed prepackaged food. Boycott the cereal aisle. Get a bottle of high dose vitamin D. See what happens. I think 10,000 iu a day is best because you want to raise your plasma vit D quickly.
  15. Wheatwacked
    It may not be a power struggle. Maybe she just wants you to share the bliss of a gluten meal. Not unlike drinkers at a party pushing alcohol on a recovering alcoholic. They just do not understand and are oblivious. It was similar back when cigarettes were cool.
  16. Wheatwacked
    Here's an interesting comment from the National Institutes of Health on Choline. https://ods.od.nih.gov/factsheets/Choline-HealthProfessional/ "Groups at Risk of Choline Deficiency: Patients requiring total parenteral nutrition At present, choline is not routinely added to commercial parenteral solutions for infants and adults [28,29]. As...
  17. Wheatwacked
    Is Lithium Deficiency Real? Health Effects of Low Lithium With everybody drinking bottled water more people are becoming Lithium deficient. The 5 mg dose of Lithium Orotate is not the 600 to 1500 mg massive dose of Lithium Carbonate used for bipolar disorder. The proposed RDA is 1 to 40 mg a day. I found that with 5 mg a day I don't need the Buspirone...
  18. Wheatwacked
    Yes. Thiamine and Choline are interdependent, and both are undervalued. I assumed that her vitamin and lipid packs include thiamine, but we know for sure she is not getting any choline.
  19. Wheatwacked
    Try Canyon Bakehouse Gluten Free Heritage Style Honey White. It's not Wonder Bread but pretty good. Good taste and mouth feel. Keep it frozen. Nuke the frozen slices for a minute and let cool. It makes a nice sandwich. If you are Celiac there is a 44% chance that so is your little one but the symptoms are not recognized or passed off as normal.
  20. Wheatwacked
    DO IT. Don't wait on the doctors because they have no official guidance in this. Procrastination is dangerous, if it is the problem, improvement will be seen. Fix what you know is wrong and reevaluate. For only $15 a bottle of choline bitartrate or phosphatidyl choline may save her life. The use of prednisone may be an appropriate...
  21. Wheatwacked
    Wheat is an opiate Read this article it may help you understand. https://drdavisinfinitehealth.com/2012/04/wheat-is-an-opiate/ Don't feel guilty about anything. It is sad you are even in the position but remember they are addicted too, just don't know it. That's why they get angry at the suggestion of not eating wheat. It's unamerican....
  22. Wheatwacked
    Could the doctor order a blood draw by the home health nurse to see if the celiac panel results have changed or at least to get a basis to compare again later? No reason for another endoscopy especially in her fragile state I am sure she does not want anesthesia if it can be avoided. The TPN was formulated prior to the celiac disease diagnosis, so...
  23. Wheatwacked
    See if you can get her to do a urine test for iodine deficiency. The NIH maintains that the US population is sufficient so not usually checked. The average intake of iodine has dropped 50% since 1970. Iodine Absorption in Celiac Children: A Longitudinal Pilot Study Iodine Fact Sheet for Health Professionals
  24. Wheatwacked
    Another similar case:
  25. Wheatwacked
    bingo! More information: This case from 2014 seems similar to yours. Their case resolved with only 5 days TPN. "In the majority of RCD type 1 cases, steroid use is effective in inducing clinical remission and mucosal recovery; however, use in RCD type 2 shows clinical response in 75%, but does not induce mucosal recovery or prevent the progression...
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